Clueless, looking for a natural way out

[Isami]

Hi fellow celiacs! I have been diagnosed with celiac disease when I was 19 years old, 13 years ago! I have always face my diagnosis with optimism and a positive mind but as I grew older I started to feel a little hopeless sometimes about all my health issues that may or may not be related to celiac disease. 

I have always consider that I had a good health overall but now, at 32 I have a diagnosed celiac disease, I take mild medication for anxiety/depression, two years ago I started to have a hormonal imbalance and digestive disorders like ibs (maybe ¿?) and I often suffer from brain fog. I have always have high myopia, runner's knee, seasonal allergies... I am very careful with my gluten free diet but with the years If I accidentally get some gluten I get itchy blisters and one month ago I got something similar to eczema. 

It is my first time in a forum since I have started wondering if there is something else that I should be taking care of. I don't want to get to obsessed with my health but the truth is that I feel that I am young to have all this little health concerns.

I am exploring alternative medicine solutions, specially related to nutrition to ease my different issues and heal my gut.  I don't know any professional in my country that can take a holistic look at my health so I have done most of the research by myself in the internet which can be a little confusing and overwhelming at times...

Any word of encouragement or advise will be much appreciated : )
All the best to you, 

[NicLes]

I have found an amazing product that I started taking last November which has helped with my quality of life so much. It’s called Kyäni. It’s anti inflammatory, antioxidants, vitamins and minerals and so much more helping with my symptoms from gluten contamination. I feel so much better with less fatigue, less joint pain, less muscle aches, sleeping better and less brain fog. Let me know if you are interested in finding out more, I can help you. It has definitely helped me!

[Ennis-TX]

6 hours ago, Isami said:

Hi fellow celiacs! I have been diagnosed with celiac disease when I was 19 years old, 13 years ago! I have always face my diagnosis with optimism and a positive mind but as I grew older I started to feel a little hopeless sometimes about all my health issues that may or may not be related to celiac disease. 

I have always consider that I had a good health overall but now, at 32 I have a diagnosed celiac disease, I take mild medication for anxiety/depression, two years ago I started to have a hormonal imbalance and digestive disorders like ibs (maybe ¿?) and I often suffer from brain fog. I have always have high myopia, runner's knee, seasonal allergies... I am very careful with my gluten free diet but with the years If I accidentally get some gluten I get itchy blisters and one month ago I got something similar to eczema. 

It is my first time in a forum since I have started wondering if there is something else that I should be taking care of. I don't want to get to obsessed with my health but the truth is that I feel that I am young to have all this little health concerns.

I am exploring alternative medicine solutions, specially related to nutrition to ease my different issues and heal my gut.  I don't know any professional in my country that can take a holistic look at my health so I have done most of the research by myself in the internet which can be a little confusing and overwhelming at times...

Any word of encouragement or advise will be much appreciated : )
All the best to you, 

Depends what your issues are, many side effects are nutrient deficiency ones ....many people heal where they can get them from a whole foods diet...me I still require constant B-12 complex like Liquid Health Stress & Energy and Neurological Support 3 times a day, Still require magnesium Citrate from natural vitality calm with doses split out throughout the day, etc.  I also had to turn to alternative medicine for my Ulcerative Colitis....Rx for it is $600 a month so I use a regime of aloe vera, slippery elm, and marshmallow root powder to keep it in check.
I found I have to use a high iron pea protein, and vitamin C complex to keep my anemia at bay.
I have pancreas issues and have to take pancreatic enzymes to digest food....learned this might be related to nerve damage in my spine.

Getting glutened sucks....I still am feeling the set backs a month later myself .....digestive tract being a whiny picky kid.....can take spices again but still requires me to blend foods and cook them to mush or it has me in the bathroom with solids. Been this way since my accidental exposure from contaminated coconut flakes...month before that I got hit by something and few months before that I got a batch of contaminated hemp....I found glidenX helps stop the worse of it right off the bat, but I still have complications and quirks for a few weeks to a month after it.

[cyclinglady]

Have you had follow-up testing for celiac disease?  All your current issues may not be celiac-related at all!   For example, I was having stomach issues that persisted after a glutening at the beginning of last year.  I was driving my self crazy thinking I was getting gluten somehow into my diet.  My celiac antibodies were elevated as confirmed by my GI.   I went on a pretty restricted gluten-free diet (no processed food and no going out to eat).  Still I had problems.  A repeat endoscopy revealed a completed healed small intestine, but chronic autoimmune gastritis.  I do have other autoimmune issues, so I guess this is just another one!  Anyway, make sure you have had follow-testing.  Note that the antibodies tests are good for diagnosing, they are not always good for dietary compliance (celiac researchers are finding this out, but it is the only non-evasive “tool in the toolbox”  for now (better than nothing). 

Besides testing, look to your gluten-free diet.  Non-processed foods and NOT going out to eat at restaurants might help you for a few months.  Avoiding even gluten-free grains might be beneficial in the short term.  

The Gluten Free Watchdog, Trisha Thompson, Dietician who has celiac disease and advocates for us) published a new study.  (Seems like gluten might be in more gluten-free foods than we thought).  ?. Read for yourself.   You might be doing everything right!  I am not affiliated financially with GFW, but I am a subscriber.  

Open Original Shared Link

The reality is not much research has been done for celiacs after they have been diagnosed.  So, we are learning as we go.  

Remember, supplements are processed.  Just a few years ago, celiac researchers found that many probiotic supplements did contain gluten.  Make sure for SURE that your supplements and prescription medications do not have gluten.  Better yet, focus on non-processed nutritionally dense foods.  Much less risk.  Funny, but celiac centers will place non-responsive celiac patients on the Dr. Fasano gluten-free diet.  Guess what?  It is mostly non-processed foods.  I wonder why?  ?

 

[cyclinglady]

10 hours ago, NicLes said:

I have found an amazing product that I started taking last November which has helped with my quality of life so much. It’s called Kyäni. It’s anti inflammatory, antioxidants, vitamins and minerals and so much more helping with my symptoms from gluten contamination. I feel so much better with less fatigue, less joint pain, less muscle aches, sleeping better and less brain fog. Let me know if you are interested in finding out more, I can help you. It has definitely helped me!

What?  Another multi-network (aka hitting up your friends to meet your sales goals). marketing product?  

[tessa25]

4 hours ago, cyclinglady said:

e Gluten Free Watchdog, Trisha Thompson, Dietician who has celiac disease and advocates for us) published a new study.  (Seems like gluten might be in more gluten-free foods than we thought).  ?. Read for yourself.   You might be doing everything right!  I am not affiliated financially with GFW, but I am a subscriber.  

Open Original Shared Link

The reality is not much research has been done for celiacs after they have been diagnosed.  So, we are learning as we go.  

Great article! I wonder how use of a Nima sensor or two by people would affect daily gluten ingestion.

[Isami]

On 27/3/2018 at 3:06 AM, NicLes said:

I have found an amazing product that I started taking last November which has helped with my quality of life so much. It’s called Kyäni. It’s anti inflammatory, antioxidants, vitamins and minerals and so much more helping with my symptoms from gluten contamination. I feel so much better with less fatigue, less joint pain, less muscle aches, sleeping better and less brain fog. Let me know if you are interested in finding out more, I can help you. It has definitely helped me!

Quote

 

 

 

[Isami]

On 27/3/2018 at 1:23 PM, cyclinglady said:

Have you had follow-up testing for celiac disease?  All your current issues may not be celiac-related at all!   For example, I was having stomach issues that persisted after a glutening at the beginning of last year.  I was driving my self crazy thinking I was getting gluten somehow into my diet.  My celiac antibodies were elevated as confirmed by my GI.   I went on a pretty restricted gluten-free diet (no processed food and no going out to eat).  Still I had problems.  A repeat endoscopy revealed a completed healed small intestine, but chronic autoimmune gastritis.  I do have other autoimmune issues, so I guess this is just another one!  Anyway, make sure you have had follow-testing.  Note that the antibodies tests are good for diagnosing, they are not always good for dietary compliance (celiac researchers are finding this out, but it is the only non-evasive “tool in the toolbox”  for now (better than nothing). 

Besides testing, look to your gluten-free diet.  Non-processed foods and NOT going out to eat at restaurants might help you for a few months.  Avoiding even gluten-free grains might be beneficial in the short term.  

The Gluten Free Watchdog, Trisha Thompson, Dietician who has celiac disease and advocates for us) published a new study.  (Seems like gluten might be in more gluten-free foods than we thought).  ?. Read for yourself.   You might be doing everything right!  I am not affiliated financially with GFW, but I am a subscriber.  

Open Original Shared Link

The reality is not much research has been done for celiacs after they have been diagnosed.  So, we are learning as we go.  

Remember, supplements are processed.  Just a few years ago, celiac researchers found that many probiotic supplements did contain gluten.  Make sure for SURE that your supplements and prescription medications do not have gluten.  Better yet, focus on non-processed nutritionally dense foods.  Much less risk.  Funny, but celiac centers will place non-responsive celiac patients on the Dr. Fasano gluten-free diet.  Guess what?  It is mostly non-processed foods.  I wonder why?  ?

 

Thank you so much for your reply. You certainly encourage me to get tested and to hang in there with other fellow celiacs for new research.
All the best!

M.

[Isami]

On 27/3/2018 at 6:23 AM, Ennis_TX said:

Depends what your issues are, many side effects are nutrient deficiency ones ....many people heal where they can get them from a whole foods diet...me I still require constant B-12 complex like Liquid Health Stress & Energy and Neurological Support 3 times a day, Still require magnesium Citrate from natural vitality calm with doses split out throughout the day, etc.  I also had to turn to alternative medicine for my Ulcerative Colitis....Rx for it is $600 a month so I use a regime of aloe vera, slippery elm, and marshmallow root powder to keep it in check.
I found I have to use a high iron pea protein, and vitamin C complex to keep my anemia at bay.
I have pancreas issues and have to take pancreatic enzymes to digest food....learned this might be related to nerve damage in my spine.

Getting glutened sucks....I still am feeling the set backs a month later myself .....digestive tract being a whiny picky kid.....can take spices again but still requires me to blend foods and cook them to mush or it has me in the bathroom with solids. Been this way since my accidental exposure from contaminated coconut flakes...month before that I got hit by something and few months before that I got a batch of contaminated hemp....I found glidenX helps stop the worse of it right off the bat, but I still have complications and quirks for a few weeks to a month after it.

Thank you so much for your reply. It seems that you are going through a lot yourself. My problem with that is that I don't know any professional here in Uruguay that would help me manage all those supplements, we don't even have that much variety of supplements to begin with is not really embed in our culture. But you give me strengh to keep looking.

All the best,