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Scott Adams

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Scott Adams Grand Master

The naturally gluten-free pizzas are lower in calories, sugar, fat, and sodium and higher in protein, fiber, and vitamins than most traditional and ... line of frozen pizzas and plain crust that quickly became the fastest growing frozen pizza brand in the U.S. Inspired by her two sons with celiac disease, Gail ...

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  • 3 years later...

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Pilgrimgirl Newbie
On 3/28/2018 at 8:11 AM, Scott Adams said:

The naturally gluten-free pizzas are lower in calories, sugar, fat, and sodium and higher in protein, fiber, and vitamins than most traditional and ... line of frozen pizzas and plain crust that quickly became the fastest growing frozen pizza brand in the U.S. Inspired by her two sons with celiac disease, Gail ...

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I have recently been diagnosed with gluten sensitivity and I just purchased this pizza. Thank you for doing an article on this brand.  I am still learning what I can safely eat. I noticed you published something on gluten and neuropathy.  On September 1st. I had an episode where my lips and the fingers on my right hand were tingling. It lasedt about 30 minutes. I still get numbness now and then in my lips and tongue and a couple of my fingers on my right hand. Do you think this could be what I am dealing with? My doctor ordered an MRI and Cat scan. Both came back normal. I never thought to tell him about the gluten sensitivity. Thanks for all you do to monitor this site.

trents Grand Master
1 hour ago, Pilgrimgirl said:

I have recently been diagnosed with gluten sensitivity and I just purchased this pizza. Thank you for doing an article on this brand.  I am still learning what I can safely eat. I noticed you published something on gluten and neuropathy.  On September 1st. I had an episode where my lips and the fingers on my right hand were tingling. It lasedt about 30 minutes. I still get numbness now and then in my lips and tongue and a couple of my fingers on my right hand. Do you think this could be what I am dealing with? My doctor ordered an MRI and Cat scan. Both came back normal. I never thought to tell him about the gluten sensitivity. Thanks for all you do to monitor this site.

But you do not have celiac disease, correct?

Pilgrimgirl Newbie
7 hours ago, trents said:

But you do not have celiac disease, correct?

No, my nutritionist said I have gluten sensitivity.

trents Grand Master
4 minutes ago, Pilgrimgirl said:

No, my nutritionist said I have gluten sensitivity.

How were you diagnosed with gluten sensitivity? Really, the only reliable way to arrive at that diagnosis is to first rule out celiac disease through testing designed to detect celiac disease. Many of the symptoms between the two are essentially the same. Testing for celiac disease can be done in one or two ways or both. The first way involves a blood draw looking for elevated antibodies that are produced from the damage celiac disease does to the small bowel lining. The other way is to have an endoscopy done with biopsy of the small bowel lining. The biopsy is sent to a lab for microscopic examination of the "villi" that line the small bowel. Celiac disease damages the villi whereas gluten sensitivity does not. I would not trust a nutritionist to make that call.

Pilgrimgirl Newbie
On 10/26/2021 at 10:34 PM, trents said:

How were you diagnosed with gluten sensitivity? Really, the only reliable way to arrive at that diagnosis is to first rule out celiac disease through testing designed to detect celiac disease. Many of the symptoms between the two are essentially the same. Testing for celiac disease can be done in one or two ways or both. The first way involves a blood draw looking for elevated antibodies that are produced from the damage celiac disease does to the small bowel lining. The other way is to have an endoscopy done with biopsy of the small bowel lining. The biopsy is sent to a lab for microscopic examination of the "villi" that line the small bowel. Celiac disease damages the villi whereas gluten sensitivity does not. I would not trust a nutritionist to make that call.

I had an IGga test, which involved blood. It showed sensitivity to gluten, legumes, soy, yeast etc. I have always had a problem with dairy.  I also did a breath test for bacteria. I'm realizing I really have to do my detective work. Even though something says gluten free, it still can have yeast, soy and other ingredients that I am sensitive to. I had some Progresso gluten free soup and had a real problem with gas afterwards, then I read the other ingredients and knew why! I am 73 yrs. old and this has been a challenge for me. Is it common to discover these things later in life? I live in New England and we had power outages yesterday. Sorry I didn't get back to you sooner.

trents Grand Master

IGga test? Do you mean IGG?

Pilgrimgirl,

You really need to get screened for celiac disease with tests that are specifically for celiac disease. You need to get several IGA tests run. Sounds like you got allergy/food sensitivity testing done but not celiac disease testing. Do you understand there is a difference between gluten sensitivity and celiac disease even though both involve a reaction to gluten?Here's a primer: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/


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    • trents
      My reaction to a gluten bolus exposure is similar to yours, with 2-3 hours of severe abdominal cramps and intractable emesis followed by several hours of diarrhea. I don't necessarily equate that one large exposure to gluten with significant intestinal lining damage, however. I think it's just a violent reaction to a what the body perceives to be a somewhat toxic substance that I am no longer tolerant of because I have quit exposing myself to it regularly. It's just the body purging itself of it rather than an expression of significant damage. Before diagnosis, when I was consuming gluten daily, I had little to no GI distress. I was, for the most part, a "silent celiac". The damage to my small bowel lining didn't happen all at once but was slow and insidious, accumulating over a period of years. The last time I got a big shot of gluten was about three years ago when I got my wife's wheat biscuits mixed up with my gluten-free ones. There was this acute reaction after about two hours of ingestion as I described above. I felt washed out for a few days and fully recovered within a week or so.  Now, I'm a 74-year-old male. So, I'm not worried about being pregnant. And I don't want to contradict your physicians advice. But I just don't think you have done significant damage to your small bowel lining by one episode of significant gluten ingestion. I just don't think it works that way.
    • Skydawg
      Wondering about some thoughts on how long to wait to try to get pregnant after a gluten exposure?  I have been diagnosed for 10 years and have followed the diet strictly. I have been cross contaminated before, but have never had a full on gluten exposure. I went to a restaurant recently, and the waiter messed up and gave me regular bread and told me it was gluten free. 2 hours later I was throwing up for the whole evening. I have never had that kind of reaction before as I have never had such a big exposure. My husband and I were planning to start trying to get pregnant this month. My dr did blood work to check for electrolytes and white blood cells, but did not do a full nutritional panel. Most of my GI symptoms have resolved in the past 2 weeks, but I am definitely still dealing with brain fog, fatigue and headaches. My dr has recommended I wait 3 months before I start to try to get pregnant.   I have read else where about how long it can take for the intestine to fully heal, and the impacts gluten exposure can have on pregnancy. I guess I am really wondering if anyone has had a similar experience? How long does it take to heal after 1 exposure like that, after following the diet so well for 10 years? Is 3 months an okay amount of time to wait? Is there anything I can do in the meantime to reduce my symptoms? 
    • ShadowLoom
      I’ve used tinctures and made my own edibles with gluten-free ingredients to stay safe. Dispensary staff don’t always know about gluten, so I double-check labels or just make my own.
    • Scott Adams
      It's great to hear that there are some good doctors out there, and this is an example of why having a formal diagnosis can definitely be helpful.
    • RMJ
      Update: I have a wonderful new gastroenterologist. She wants to be sure there’s nothing more serious, like refractory celiac, going on. She ordered various tests including some micronutrient tests that no one has ever ordered before.  I’m deficient in folate and zinc and starting supplements for both. I’m so glad I decided to go to a new GI!
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