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Scott Adams

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Scott Adams Grand Master

The naturally gluten-free pizzas are lower in calories, sugar, fat, and sodium and higher in protein, fiber, and vitamins than most traditional and ... line of frozen pizzas and plain crust that quickly became the fastest growing frozen pizza brand in the U.S. Inspired by her two sons with celiac disease, Gail ...

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  • 3 years later...

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Pilgrimgirl Newbie
On 3/28/2018 at 8:11 AM, Scott Adams said:

The naturally gluten-free pizzas are lower in calories, sugar, fat, and sodium and higher in protein, fiber, and vitamins than most traditional and ... line of frozen pizzas and plain crust that quickly became the fastest growing frozen pizza brand in the U.S. Inspired by her two sons with celiac disease, Gail ...

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I have recently been diagnosed with gluten sensitivity and I just purchased this pizza. Thank you for doing an article on this brand.  I am still learning what I can safely eat. I noticed you published something on gluten and neuropathy.  On September 1st. I had an episode where my lips and the fingers on my right hand were tingling. It lasedt about 30 minutes. I still get numbness now and then in my lips and tongue and a couple of my fingers on my right hand. Do you think this could be what I am dealing with? My doctor ordered an MRI and Cat scan. Both came back normal. I never thought to tell him about the gluten sensitivity. Thanks for all you do to monitor this site.

trents Grand Master
1 hour ago, Pilgrimgirl said:

I have recently been diagnosed with gluten sensitivity and I just purchased this pizza. Thank you for doing an article on this brand.  I am still learning what I can safely eat. I noticed you published something on gluten and neuropathy.  On September 1st. I had an episode where my lips and the fingers on my right hand were tingling. It lasedt about 30 minutes. I still get numbness now and then in my lips and tongue and a couple of my fingers on my right hand. Do you think this could be what I am dealing with? My doctor ordered an MRI and Cat scan. Both came back normal. I never thought to tell him about the gluten sensitivity. Thanks for all you do to monitor this site.

But you do not have celiac disease, correct?

Pilgrimgirl Newbie
7 hours ago, trents said:

But you do not have celiac disease, correct?

No, my nutritionist said I have gluten sensitivity.

trents Grand Master
4 minutes ago, Pilgrimgirl said:

No, my nutritionist said I have gluten sensitivity.

How were you diagnosed with gluten sensitivity? Really, the only reliable way to arrive at that diagnosis is to first rule out celiac disease through testing designed to detect celiac disease. Many of the symptoms between the two are essentially the same. Testing for celiac disease can be done in one or two ways or both. The first way involves a blood draw looking for elevated antibodies that are produced from the damage celiac disease does to the small bowel lining. The other way is to have an endoscopy done with biopsy of the small bowel lining. The biopsy is sent to a lab for microscopic examination of the "villi" that line the small bowel. Celiac disease damages the villi whereas gluten sensitivity does not. I would not trust a nutritionist to make that call.

Pilgrimgirl Newbie
On 10/26/2021 at 10:34 PM, trents said:

How were you diagnosed with gluten sensitivity? Really, the only reliable way to arrive at that diagnosis is to first rule out celiac disease through testing designed to detect celiac disease. Many of the symptoms between the two are essentially the same. Testing for celiac disease can be done in one or two ways or both. The first way involves a blood draw looking for elevated antibodies that are produced from the damage celiac disease does to the small bowel lining. The other way is to have an endoscopy done with biopsy of the small bowel lining. The biopsy is sent to a lab for microscopic examination of the "villi" that line the small bowel. Celiac disease damages the villi whereas gluten sensitivity does not. I would not trust a nutritionist to make that call.

I had an IGga test, which involved blood. It showed sensitivity to gluten, legumes, soy, yeast etc. I have always had a problem with dairy.  I also did a breath test for bacteria. I'm realizing I really have to do my detective work. Even though something says gluten free, it still can have yeast, soy and other ingredients that I am sensitive to. I had some Progresso gluten free soup and had a real problem with gas afterwards, then I read the other ingredients and knew why! I am 73 yrs. old and this has been a challenge for me. Is it common to discover these things later in life? I live in New England and we had power outages yesterday. Sorry I didn't get back to you sooner.

trents Grand Master

IGga test? Do you mean IGG?

Pilgrimgirl,

You really need to get screened for celiac disease with tests that are specifically for celiac disease. You need to get several IGA tests run. Sounds like you got allergy/food sensitivity testing done but not celiac disease testing. Do you understand there is a difference between gluten sensitivity and celiac disease even though both involve a reaction to gluten?Here's a primer: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/


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    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
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      Those are driving distance from me--I will try to check them out, thanks for sharing!
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      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
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