Still having diarrhea

[CeliacMan2112]

Hey, I was diagnosed with celiac like six months ago. I have been gluten free now since being diagnosed. The problem is I'm still having diarrhea. I was having it every single day like 6 times a day until recently I was put on Budesonide. That has slowed down or stopped the diarrhea, the problem is as soon as I stop taking the pills I start having diarrhea the very next day. I don't want to have to take the steroids for the rest of my life since they have side effects too. Any advice on this or please provide your perspective.

Thanks

[Ennis-TX]

1 hour ago, CeliacMan2112 said:

Hey, I was diagnosed with celiac like six months ago. I have been gluten free now since being diagnosed. The problem is I'm still having diarrhea. I was having it every single day like 6 times a day until recently I was put on Budesonide. That has slowed down or stopped the diarrhea, the problem is as soon as I stop taking the pills I start having diarrhea the very next day. I don't want to have to take the steroids for the rest of my life since they have side effects too. Any advice on this or please provide your perspective.

Thanks

Are you 100% your gluten free? Like not eating outside of your house, not eating processed foods? Please read up on teh newbie 101 section for anything you might have missed like scratched dishes, crumbs in condiment jars, etc. Try removing all dairy, soy, and oats as these are common culprits that we develop issues with. https://www.celiac.com/forums/topic/91878-newbie-info-101/

Next up, keep a food diary, it is not uncommon to develop other food sensitives or intolerance issues. Limit your daily foods to just 3-5 ingredients a meal and record reactions and bowel habits and timing. Try to remove certain foods and eat the same foods for 3-5 days at a time rotating one in one out then trying them again. Point is to find patterns and foods that might make it worse, IE coffee, a spice, night shades, carbs, sugars. I found I work best on a no carb diet with a keto/paleo base but everyone is different.
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Next looking into digestive enzymes, If your not getting enough to digest your foods it can cause all kinds of issues.https://www.celiac.com/forums/topic/119919-digestive-enzymes/
 

I deal with mine and help by consuming 3000mg of potassium daily, and consuming foods with coconut flour like coconut flour porridge, baked goods etc. it tends to thicken up and give bulk to stool.

 

[cyclinglady]

What exactly do you eat?  Do you ever eat out?  Do you eat oats?  Have you tried the Fasano diet?  

Learn here:

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You joined in January.  Did you get an endoscopy?  Assuming you had one, other AI issues, like Ulcerative Colitis been ruled out?   If you never got that endoscopy and you are dietary compliant, consider getting one.  It might not just be celiac disease.  

Going on a steroid without a dietitian reviewing your diet or  attempting the Fasano diet seems pretty drastic.  

I am not sure I understand your situation or your whole story.  

 

[Ashish1988]

Try having probiotic..

[knitty kitty]

I hope you are feeling better.  I experienced diarrhea for a long time.  It resulted in nutritional deficiencies.  My doctors overlooked simple vitamin deficiencies in favor of writing numerous, expensive prescriptions that never improved the symptoms.  

Deficiencies in certain vitamins, like Vitamin D, B12, thiamine and niacin, will actually cause diarrhea. 

Here's a list of vitamin deficiencies and their symptoms.

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Hope this helps.

On 4/15/2018 at 6:57 PM, CeliacMan2112 said:

Hey, I was diagnosed with celiac like six months ago. I have been gluten free now since being diagnosed. The problem is I'm still having diarrhea. I was having it every single day like 6 times a day until recently I was put on Budesonide. That has slowed down or stopped the diarrhea, the problem is as soon as I stop taking the pills I start having diarrhea the very next day. I don't want to have to take the steroids for the rest of my life since they have side effects too. Any advice on this or please provide your perspective.

Thanks