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Inadequate Explaination of Test Results

Jeb02840

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Jeb02840 Newbie
Jeb02840
Posted

Hello Everyone!

A little background history, about 4 years ago, I was diagnosed with Hypothyroidism and Hashimoto's Disease.  I had half of my thyroid removed due to an irregular biopsy.  No cancer, but a plethora of daily meds for the rest of my life!   My Endocrynologist ran a full comprehensive blood test and it showed that I was anemic as well as my liver functions were low.  She recommended that I visit my PCM and have him check both of them more extensively.  

Well, I did go visit my PCM, and he ran a Celiac Panel and a Ferritin test.  The Ferritin came back slightly anemic but my hemoglobin levels were fine!  However....my Celiac Panel came back with what seems to me to be a mess.  My Gliadin Ab IgG is 160 higher than normal, Gliadin Ab IgA is 234 higher than normal, my tissue transglutaminase Ab IgG is normal at 2 but my  tissue transglutaminase Ab IgA is >100 higher than normal and my IgA is normal at 258.   His nurse called me this afternoon and told me that my results "indicated" celiacs and that I was being referred to a Gastroenterologist as well as a nutritionist.  "Indicated", could you please be a bit more descript?????  Can anyone enlighten me as to what these results actually mean???  Do I have Celiacs?  And I Gluten Intolerant, or have a gluten intolerance???   This is just so frustrated?!?!

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tessa25 Rising Star
tessa25
Posted

You failed three celiac tests with flying colors assuming normal is < 20. Indicated you have celiac (in my opinion) means you have celiac. A high on anyone celiac test should mean you go to a gastroenterologist  for an endoscopy/biopsies to confirm the celiac diagnosis and see how bad the damage is.

You should keep eating gluten until the endoscopy.

CYA: I am not a doc

RMJ Mentor
RMJ
Posted

Many doctors will not give a firm celiac diagnosis without an endoscopy/biopsy.  I think that is why you were told your results “indicated” celiac instead of being told you have celiac.  With those antibody results it would be very surprising if the biopsy does not show celiac.

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      Small Bowel Resection 12 inches

      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response.
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    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      I have always eaten gluten and never stopped until my recent episode. I started more wheat products as my Dr. requested for the Tissue Transglutaminase Iga Antibody. mye result Value <1.0 Value interpretation: <15.0 Antibody not detected > or =15.0 Antibody detected I do not understand any of it. After eating all that wheat product my body exploded with all sorts of symptoms. I stop gluten ASAP. I am still in the healing process. I started having issues after my surgery. 
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      Welcome to the celic.com community @Ello! You say you had a blood test for celiac disease after eating gluten for 2 weeks. Were you gluten free before that? Had you ever been officially diagnosed with celiac disease previously? You say the result of the blood test was 1.5. Can you provide the name of the test and the reference range for negative vs. positive for the test? I ask because different labs used different reference ranges so scores without a reference range aren't very helpful.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      Surgery was in April 2023 due adhesions wrapped around my small bowel which caused blockage and had to be removed. Adhesions were so badly entangled that Surgeon could not cut out them, so the resection was performed. July 2025 started having severe yellow diarrhea and sometimes constipation. Just had another episode and was tested for celiac. Blood test stated 1.5 after eating gluten for 2 weeks. Lipase level was 120. Having an CT scan to check the pancreas. I have never had any issues eating gluten and now I am so fearful that I might have celiac. Has anyone had a small bowel resection? I am 65 years old. UGGH! I am still feeling bloating etc. 
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