Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cealic and dissociation?


CholoeS

Recommended Posts

CholoeS Rookie

I’ve had dissociation issues since I was little, it can’t be trauma related nor drug related since I had a great childhood and never done drugs nor drunk alcohol in my life. I remember someone said that dissociation could have something to do with the stomach. I have something called derelization and depersonalization. Which makes you feel detached from everything around you, like you’re in a dream. I can look at myself in the mirror and think it’s a stranger, my hands and arms feel foreign. And it’s difficult to concentrate. I’m wondering with cealic has something to do with this mysterious dissociation 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master
17 hours ago, CholoeS said:

I’ve had dissociation issues since I was little, it can’t be trauma related nor drug related since I had a great childhood and never done drugs nor drunk alcohol in my life. I remember someone said that dissociation could have something to do with the stomach. I have something called derelization and depersonalization. Which makes you feel detached from everything around you, like you’re in a dream. I can look at myself in the mirror and think it’s a stranger, my hands and arms feel foreign. And it’s difficult to concentrate. I’m wondering with cealic has something to do with this mysterious dissociation 

Unsure it does have issues with the brain via ataxia in some, can cause imbalances due to b-vitamin and magnesium deficiency. So Spectrum B-vitamin supplementation.

Dissociation....so many different perspectives with this, I for one am a bit of a introvert, and find true happiness in imagined senerios in my head when alone....or used to, imagination been stalled since 6 years ago, but I still try to work them out like I used to. I still do have to be alone to myself for a good amount of time after being out dealing with humans.I also find myself disconnected from "normal gluten eaters" I mean...they eat something that can have such horrendous effect on me....I see them eating it and I no longer can look at them like a human being and have to leave and not talk to them or distract myself.

From the dream like perspective....I have only had that kind of experience on a few occasions, ...a bad night of drinking...lost count at 26 shots? I was literally looking over my own shoulder from above my head perspective wise and felt like I was controlling myself with strings.....This was over 7 years ago? 3 Years ago, I cut the inside of my throat on a pumpkin seed really bad when a sliver slit my esphougus, I was coughing up tons of blood into a bucket and going light headed and that whole out of body experience, ER gave me some stuff to coat and stop the bleeding and I was again back in my body without the fly by wire feeling a few hours later. Again when I was running a 103-104 fever last fall from the flu and had to go lay in a cold shower to get my temp down and felt like I was shifting back into my body from outside. And a few months ago when I had really bad Diarrhea going on all day, and vomiting from a gluten exposure, I assume this was dehydration and a electrolyte imbalance but I got that whole fly by wire feeling sort of zoning out over my own shoulder. Generally something is pretty out of wack when I had these experiences...so I would not take them lightly if they just come up.

On a disconnected level...I do not feel much for anyone or anything I can not relate to...I mean my health is so FUBAR at times and my life so messed up...I really do not have time to worry about those who I can not relate to with either common health issues, family, or someone who can influence my day to day life. But I figure this whole indifference to life and focus on your own is more a logical/biological imperative to keep you focused on prioritizing your own health...or that cold hard reality that real life issues drill into older traumatized people.

knitty kitty Grand Master
6 hours ago, CholoeS said:

I’ve had dissociation issues since I was little, it can’t be trauma related nor drug related since I had a great childhood and never done drugs nor drunk alcohol in my life. I remember someone said that dissociation could have something to do with the stomach. I have something called derelization and depersonalization. Which makes you feel detached from everything around you, like you’re in a dream. I can look at myself in the mirror and think it’s a stranger, my hands and arms feel foreign. And it’s difficult to concentrate. I’m wondering with cealic has something to do with this mysterious dissociation 

Get your vitamin B12 checked asap! 

Vitamin B12 (cobalamine) deficiency can cause mental symptoms exactly like you're describing.  I've been deficient in B12 and have experienced and  understand dissociation.  Some people can be deficient in B12 and not have any mental or emotional problems.  A lucky few have the mental changes long before anemia shows up.  B12 deficiency that presents at first as mood alterations can be easily overlooked by doctors.  

Celiac Disease causes malabsorption which results in malnutrition and vitamin and mineral deficiencies.  Cobalamin (B12) deficiency is one of the most common deficiencies in Celiacs.  

Here's an article about mental changes in a young man with B12 deficiency.

Open Original Shared Link

Hope this helps.

ch88 Collaborator

I have heard some people can get disassociation after traumatic life experiences. Other people say that there disassociation was not caused by any event. There is a strong genetic component to mental illness, in some cases at least.

Probably everyone with a mental disorder should be screened for celiac disease.

Open Original Shared Link

Open Original Shared Link

cristiana Veteran

Echoing knitty kitty above - check B12, and also ferritin.  I suffered something similar when my levels were low,  which brought on severe anxiety.

I found reading At Last a Life and the Anxiety No More website helped too and equipped me to deal with depersonalisation, and the anxiety that was causing it.

Posterboy Mentor

CholoeS,

On 5/3/2018 at 6:23 PM, Ennis_TX said:

So Spectrum B-vitamin supplementation.

 

On 5/3/2018 at 6:23 PM, Ennis_TX said:

Unsure it does have issues with the brain via ataxia in some, can cause imbalances due to b-vitamin and magnesium deficiency

Echoing what Ennis_Tx said find a good B-Complex and Magnesium.

Here is a good overview of how B-Vitamins can help our mental health.

Open Original Shared Link

I also recommend a good Magnesium form like Citrate or Glycinate.

Here is a research article on how Magnesium Glycinate can help depression.

Open Original Shared Link

Taking Niacinamide and Magnesium first as Magnesium Citrate and now Magnesium Glycinate really helped my depression.

I also had the B-12 deficiency that Knitty Kitty mentioned before taking a FABB tablet under doctor's supervision to treat my homocysteine levels.

I no longer take a B-complex but found I needed to take them at least 6 months to get the desired result of improved mood(s).

But Magnesium Citrate worked much quicker in only 6 weeks or so I felt much better and my fatigue greatly improved. A sign the Magnesium is working is restful sleep marked by dreams.

This  health line link explains how a Niacin deficiency can effect your serotonin levels and thus your moods.

Open Original Shared Link

Quoting

"Serotonin deficiency can lead to depression. This is why antidepressants known as SSRIs (selective serotonin reuptake inhibitors) are so effective at treating depression.

Serotonin is created by an amino acid called tryptophan. Niacin is Open Original Shared Link the metabolizing process of forming serotonin from tryptophan. Therefore, niacin deficiency can directly impact mood by affecting your production of serotonin."

I know taking Niacinamide and Magnesium Citrate helped my moods.

Good luck  on your continued journey.

**** this is not medical advice but I hope it is is helpful.

2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things”

Posterboy by the grace of God,

 

CholoeS Rookie

Thanks to everyone who replied 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,983
    • Most Online (within 30 mins)
      7,748

    CRae
    Newest Member
    CRae
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      @Riley., Welcome to the forum.   It was once believed that Celiac Disease was only a childhood disease and it can be outgrown.  That was before 1951, before gluten was discovered to be cause of Celiac Disease, also called Infantilism.  Back then Cileac Disease was thought to be only a gastro intestinal disease, once you  "outgrew" the colicky phase, you were cured. You were so lucky to be diagnosed at 5 years old so your developing years were normal.  Gluten can affect multiple systems.  The nervous system, your intellegence. The muscules, skeleton. It can cause neurological issues like brain fog, anxiety, and peripheral neuropathy.  It can cause joint pain, muscle weakness, and skin rashes. Epilepsy is 1.8 times more prevalent in patients with celiac disease, compared to the general population. Because through malabsorption and food avoidances, it causes vitamin D and numerouus other essential nutrient deficiencies, it allows allergies, infections, poor growth, stuffy sinuses and eustacian tubes. There is even a catagory of celiac disease called "Silent Celiac".  Any symptoms are explained away as this, that or the other thing. Gluten is one of the most addictive substances we consume.  Activating the Opiod receptors in our cells, it can numb us to the damage that it, and other foods are causing.  It has become socially acceptable to eat foods that make us feel sick.  "There's a pill for that".   It is generally accepted that n fact you are weird if you don't. The hardest part is that if you don't eat gluten you will feel great and think why not.  But slowly it will effect you, you'll be diagnosed with real diseases that you don't have. You'll be more susseptable to other autoimmune diseases.  As you read through the posts here, notice how many are finally dianosed, after years of suffering at older ages.  Is it worth it? I think not. Perhaps this book will help:  Here is a list of possible symptoms:   
    • Riley.
      Hi! Im Riley, 18 years old and have been diagnosed for 13 years.. the testing started bc I stopped growing and didn’t gain any weight and was really small and thin for my age.  I got diagnosed when I was 5 and have been living gluten free since, in elementary and middle school it was hard for me and I kept contaminating myself bc I wanted to fit in with my friends so so badly. I ate gluten secretly at school and mostly regretted it 30 minutes later.  I’ve had symptoms like diarrhea, nausea, headaches, stomachaches, threw up a lot and was really emotional.  In 2022 I really started working on myself and tried to stay gluten free and if I did eat gluten I wouldn’t tell anyone and suffer in silence.  Last year in July I begged my mom to let me „cheat“ one day bc I just wanted to fit in… I ate a lot of different stuff, all the stuff I missed out on in my childhood like nuggets, pizza and all that.. I didn’t have symptoms that day and was doing really fine My mom and I wanted to test how far we can go and said we would test it for 12 weeks to get my blood taken after to see if I’m doing good or if symptoms start showing  As a now 18 year old girl who finally gained a normal weight and doesn’t get symptoms I’m to scared to get tested/my blood taken cuz I finally found comfort in food and it got so much easier for me and my family.  A year and 4 months later i still didn’t get any symptoms and have been eating gluten daily.  I’m scared to get tested/my blood taken cuz what if I’m actually not fine and have to go back to eating gluten free. Any tips to get over that fear and „suck it up“ cuz I know I could seriously damage my body… sorry if I seem like a idiot here… just don’t really know what to do :,)
    • Mari
      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop celiac disease after exposure to a environmental trigger. These 2 versions of the DQ gene are useful in diagnosing  celiac disease but there are about 25 other genes that are known to influence celiac disease so this food intolerance is a multigenic autoimmune disease. So with so many genes involved and each person inheriting a different array of these other genes one person's symptoms may be different than another's symptoms.  so many of these other genes.  I don't think that much research on these other genes as yet. So first I wrote something that seem to tie together celiac disease and migraines.  Then you posted that you had migraines and since you went gluten free they only come back when you are glutened. Then Scott showed an article that reported no connection between migraines and celiac disease, Then Trents wrote that it was possible that celiacs had more migraines  and some believed there was a causal effect. You are each telling the truth as you know it or experienced it.   
    • tiffanygosci
      Another annoying thing about trying to figure this Celiac life out is reading all of the labels and considering every choice. I shop at Aldi every week and have been for years. I was just officially diagnosed Celiac a couple weeks ago this October after my endoscopy. I've been encouraged by my local Aldi in that they have a lot of gluten free products and clearly labeled foods. I usually buy Milagro corn tortillas because they are cheap and are certified. However, I bought a package of Aldi's Pueblo Lindo Yellow Corn Tortillas without looking too closely (I was assuming they were fine... assuming never gets us anywhere good lol) it doesn't list any wheat products and doesn't say it was processed in a facility with wheat. It has a label that it's lactose free (hello, what?? When has dairy ever been in a tortilla?) Just, ugh. If they can add that label then why can't they just say something is gluten free or not? I did eat some of the tortillas and didn't notice any symptoms but I'm just not sure if it's safe. So I'll probably have to let my family eat them and stick with Milagro. There is way too much uncertainty with this but I guess you just have to stick with the clearly labeled products? I am still learning!
    • tiffanygosci
      Thank you all for sharing your experiences! And I am very thankful for that Thanksgiving article, Scott! I will look into it more as I plan my little dinner to bring with on the Holiday I'm also glad a lot of research has been done for Celiac. There's still a lot to learn and discover. And everyone has different symptoms. For me, I get a bad headache right away after eating gluten. Reoccurring migraines and visual disturbances were actually what got my PCP to order a Celiac Panel. I'm glad he did! I feel like when the inflammation hits my body it targets my head, gut, and lower back. I'm still figuring things out but that's what I've noticed after eating gluten! I have been eating gluten-free for almost two months now and haven't had such severe symptoms. I ate a couple accidents along the way but I'm doing a lot better
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.