Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Entrolab Results

christa

By christa
in Doctors

Recommended Posts

christa Contributor
christa
Posted

I just got my results back from entrolab. they were:

Gluten sensitivity testing

fecal antigliadin IgA 31 units (normal range <10 units)

fecal antitissue transglutaminase IgA 26 units (normal range <10 units)

microscopic fecal fat score: 141 units (normal range <300 units)

HLA-DQ Gene molecular analysis: HLA-DQB1*0302,0301

Fecal anti-casein IgA antibody 20 units (Normal range <10)

I am going to bring these results to my medical doctor and I was wondering what other people's doctors responses were to this testing. Do they think it is a big haux or so they actually take it seriously. Also since I have gluten sensitivity and not celiacs shouldn't a gluten free diet solve everything immediatly since there is no intestinal damage? Also does that mean once a gluten free diet is followed then the casein intolerance should improve or is that only with celiacs? I am confused and just wondering what other people have experienced?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tiffjake Enthusiast
tiffjake
Posted

I just got mine too, very simular to yours!! LOL.

Gluten Sensitivity was 34 with normal being less than 10

Fecal Antitissue transglutaminase 12 with normal beint less than 10

Casien IgA was 14 with normal being less than 10

And my genes were HLA-DQB1*0201, 0301 which is DQ2 and DQ3 subtype DQ7

I have no idea what that means, but my doctors appointment with my primary doctor is on the 30th, so I will ask him about it then. If anyone else knows, I would love to hear what the gene stuff means! I am going to try to call Enterolab in the a.m. and ask them.

Good luck! I hope your results help your doc to figure things out!!!!!!!

Tiffany

DonnaD Apprentice
DonnaD
Posted
I just got mine too, very simular to yours!! LOL.

Me too!

mine are: Gluten Sensitivity Testing

Fecal Antigliadin IgA 38 Units (Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA 10 Units (Normal Range <10 Units)

Microscopic Fecal Fat Score: 406 Units (Normal Range < 300 Units)

HLA-DQ Gene Molecular analysis: HLA-DQB1*0501, 0501 (Intolerant not celiac but a bit unsure about this bit)

Food Sensitivity Testing

Fecal anti-casein (cow's milk) IgA antibody 12 Units (Normal Range

<10 Units)

Guest barbara3675
Guest barbara3675
Posted

To answer your question about the casein sensitivity......quite certainly it will go away after some time. That has been my experience. I have a gluten intolerance and when I got my results from Enterolab it showed a casein problem too. I didn't eat dairy for awhile and after about six month, then I could eat it without any problem. It is a healing issue. This is common. As far as the doctor goes, I sure wouldn't count on much understanding. It would be rare. Most regular doctors are pretty clueless about a gluten intolerance even if they are a little bit knowlegable about celiac disease. It is just amazing. It would be nice if all the doctors could be rounded up and clued in somehow!!!!! Barbara

DQ1Squared Newbie
DQ1Squared
Posted

Christa—My E-lab results were similar to yours--positive for antigliadin IgA, tTG and casein. My GP recently diagnosed me with celiac disease based primarily on my medical history and diminishing gastro, joint, and other symptoms on the gluten-free diet. I gave him my Enterolab results and he certainly wasn’t rude although he was more interested in specific symptoms along with the marked improvement from the diet. (I had already tested negative for Crohn’s, colitis, etc.) Based on the reports of others in this forum, your mileage will probably vary considerably! If your doctor is rude or dismissive, you might want to find some celiacs in your area and ask them for the names of their doctors.

Also, don’t assume that you absolutely aren’t celiac based on the genes. A small percentage of biopsy diagnosed celiacs have genes other than the main celiac genes.

Best of luck with your doc. If you’ve done enough research to understand your test results, you know more about celiac disease/gluten sensitivity than most of the physicians out there. Please let us know how it goes.

DQ1Squared

DonnaD Apprentice
DonnaD
Posted
Christa—My E-lab results were similar to yours--positive for antigliadin IgA, tTG and casein. My GP recently diagnosed me with celiac disease based primarily on my medical history and diminishing gastro, joint, and other symptoms on the gluten-free diet. I gave him my Enterolab results and he certainly wasn’t rude although he was more interested in specific symptoms along with the marked improvement from the diet. (I had already tested negative for Crohn’s, colitis, etc.) Based on the reports of others in this forum, your mileage will probably vary considerably! If your doctor is rude or dismissive, you might want to find some celiacs in your area and ask them for the names of their doctors.

Also, don’t assume that you absolutely aren’t celiac based on the genes. A small percentage of biopsy diagnosed celiacs have genes other than the main celiac genes.

Best of luck with your doc. If you’ve done enough research to understand your test results, you know more about celiac disease/gluten sensitivity than most of the physicians out there. Please let us know how it goes.

DQ1Squared

I have just got back from my appointment with a newish younger female doctor at my practice. I have given up on my usual GP of 30 years. I explained that while looking for cooking tips for my D I had come across lots and lots of parents of coeliac children on this forum with the exact same pattern of illnesses and progression as me and my sisters, Ibs, fibro, neuro, freezing hands and feet, brain fog, etc so I had spent some time researching gluten and coeliac. She listened to me, read the results from Enterolab accepted my reasoning that as I am off wheat and 95 gluten-free bloods would be false negative like my daughter's. I had printed out some studies regarding genetics, celiac, and gluten-free neuro problems quoted from 'the Lancet' She said it was significant that while on 'Atkins' (essentially gluten-free) I had been 3 stone lighter and healthy with no IBS for a year or so until my decline into the Fibro twilight zone 2 years ago :( She is sending me for a bone density scan, (dowagers hump getting worse) thyroid function, glucose, folate, b12. Liver function, FBC and ESR. Interestingly she talked about the 'iceberg' theory regarding coeliac diagnosis (before I had a chance to mention it to her :) ) and was quite willing to accept that I demonstrated 'gluten sensitivity' (as I have an auto immune reaction to gluten, with a genetic link,) she even wrote that on the clinical details box of the lab test form. ! I was expecting to have to argue my case for testing so was very surprised that she actually knew that most coeliacs stay undiagnosed, coeliacs can be overweight and not have the 'classic' symptoms.

All in all I came away feeling very postive about the whole appointment.

dlp252 Apprentice
dlp252
Posted

Donna, that is fantastic! Congratulations on finding a doctor who is willing to listen. I went to a new ENT a few weeks ago, who was also willing to listen and it felt great! I hadn't had my testing done yet, but will show it to her next time I see her.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


DonnaD Apprentice
DonnaD
Posted
Donna, that is fantastic! Congratulations on finding a doctor who is willing to listen. I went to a new ENT a few weeks ago, who was also willing to listen and it felt great! I hadn't had my testing done yet, but will show it to her next time I see her.

I am still in shock! it feels like christmas came early! I am sure that most people on here HATE going to the Docs! :lol::lol:

I was also being 'filmed for training purposes' so hope that in my small way I will help to educate a newbie doctor not to dismiss dietary illness or make waste basket diagnosis.

dlp252 Apprentice
dlp252
Posted
I was also being 'filmed for training purposes' so hope that in my small way I will help to educate a newbie doctor not to dismiss dietary illness or make waste basket diagnosis.

Even better!!!! :D

  • 3 weeks later...
puppasita Newbie
puppasita
Posted
I just got my results back from entrolab. they were:

Gluten sensitivity testing

fecal antigliadin IgA 31 units (normal range <10 units)

fecal antitissue transglutaminase IgA 26 units (normal range <10 units)

microscopic fecal fat score: 141 units (normal range <300 units)

HLA-DQ Gene molecular analysis: HLA-DQB1*0302,0301

Fecal anti-casein IgA antibody 20 units (Normal range <10)

I am going to bring these results to my medical doctor and I was wondering what other people's doctors responses were to this testing. Do they think it is a big haux or so they actually take it seriously. Also since I have gluten sensitivity and not celiacs shouldn't a gluten free diet solve everything immediatly since there is no intestinal damage? Also does that mean once a gluten free diet is followed then the casein intolerance should improve or is that only with celiacs? I am confused and just wondering what other people have experienced?

I just got my results back from entrolab. they were:

Gluten sensitivity testing

fecal antigliadin IgA 31 units (normal range <10 units)

fecal antitissue transglutaminase IgA 26 units (normal range <10 units)

microscopic fecal fat score: 141 units (normal range <300 units)

HLA-DQ Gene molecular analysis: HLA-DQB1*0302,0301

Fecal anti-casein IgA antibody 20 units (Normal range <10)

I am going to bring these results to my medical doctor and I was wondering what other people's doctors responses were to this testing. Do they think it is a big haux or so they actually take it seriously. Also since I have gluten sensitivity and not celiacs shouldn't a gluten free diet solve everything immediatly since there is no intestinal damage? Also does that mean once a gluten free diet is followed then the casein intolerance should improve or is that only with celiacs? I am confused and just wondering what other people have experienced?

Wow, it is as if I wrote this myself. I was tested positive by Enterolab. I have "the gene" too and a mother who has serious stomach problems but is stubborn about getting tested. My GI said I did not have celiac based on the biopsy. That is of course good news but I am still struggling with the whole gluten thing. I need a supportive doctor, one who I will listen and will look me in the eye and say, "just because you don't have celiac, you can't eat/tolerate gluten." This is such a struggle for me.

JasonJayhawk Newbie
JasonJayhawk
Posted

Has anyone using EnteroLab's testing service actually been diagnosed as NOT having a gluten sensitivity?

My wife is considering the test, but thus far, everything we read, seems to indicate that people are reporting positive or borderline results.

I'd like to hear from someone having abdominal pains or celiac-like symptoms who has results falling in the normal (non-positive) ranges -- has anyone come across such results from EnteroLab?

$349 is a lot to spend on a test if we have a sure chance of it coming back positive/borderline. :-(

Nancym Enthusiast
Nancym
Posted

Yes, I've seen people posting here and also at Open Original Shared Link who have gotten cleared of it, or their family member. Its sort of a self-selecting group here, ones that post here tend to be folks that actually do have a problem with gluten.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. lizzie42
      - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Son's legs shaking

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc. Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food....
    2. Scott Adams
      - Scott Adams replied to Russ H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anti-endomysial Antibody (EMA) Testing

      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
    3. knitty kitty
      - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Son's legs shaking

      @lizzie42, You're being a good mom, seeking answers for your son. Cheers! Subclinical thiamine deficiency commonly occurs with anemia. An outright Thiamine deficiency can be precipitated by the consumption of a high carbohydrate meal. Symptoms of Thiamine deficiency include feeling shakey or wobbly in the legs, muscle weakness or cramps...
    4. Scott Adams
      - Scott Adams replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Bob red mill gluten free oats

      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this...
    5. knitty kitty
      - knitty kitty replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

      @SamAlvi, It's common with anemia to have a lower tTg IgA antibodies than DGP IgG ones, but your high DGP IgG scores still point to Celiac disease. Since a gluten challenge would pose further health damage, you may want to ask for a DNA test to see if you have any of the commonly known genes for Celiac disease. Though having the genes for Celiac...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,869
    • Most Online (within 30 mins)
      7,748
    MaryannHall
    Newest Member
    MaryannHall
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      Anti-endomysial Antibody (EMA) Testing

      By Scott Adams · Posted

      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      @lizzie42, You're being a good mom, seeking answers for your son.  Cheers! Subclinical thiamine deficiency commonly occurs with anemia.  An outright Thiamine deficiency can be precipitated by the consumption of a high carbohydrate meal.   Symptoms of Thiamine deficiency include feeling shakey or wobbly in the legs, muscle weakness or cramps, as well as aggression and irritability, confusion, mood swings and behavior changes.  Thiamine is essential to the production of neurotransmitters like serotonin and dopamine which keep us calm and rational.   @Jsingh, histamine intolerance is also a symptom of Thiamine deficiency.  Thiamine is needed to prevent mast cells from releasing histamine at the slightest provocation as is seen in histamine intolerance.  Thiamine and the other B vitamins and Vitamin C are needed to clear histamine from the body.  Without sufficient thiamine and other B vitamins to clear it, the histamine builds up.  High histamine levels can change behavior, too.  High histamine levels are found in the brains of patients with schizophrenia.  Thiamine deficiency can also cause extreme hunger or conversely anorexia.   High carbohydrate meals can precipitate thiamine deficiency because additional thiamine is required to process carbohydrates for the body to use as fuel.  The more carbohydrates one eats daily, the more one needs additional thiamine above the RDA.  Thiamine is water soluble, safe and nontoxic even in high doses. Keep in mind that gluten-free processed foods like cookies and such are not required to be fortified and enriched with vitamins and minerals like their gluten containing counterparts are.  Limit processed gluten-free foods.  They are often full of empty calories and unhealthy saturated fats and additives, and are high in histamine or histamine release triggers.  It's time you bought your own vitamins to supplement what is not being absorbed due to malabsorption of Celiac disease.  Benfotiamine is a form of Thiamine that has been shown to improve intestinal health as well as brain function. Do talk to your doctors and dieticians about supplementing with the essential vitamins and minerals while your children are growing up gluten free.  Serve nutritionally dense foods.  Meats and liver are great sources of B vitamins and minerals. Hope this helps!  Keep us posted on your progress!
    • Scott Adams
      Bob red mill gluten free oats

      By Scott Adams · Posted

      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
      High TTG-IgG and Normal TTG-IgA

      By knitty kitty · Posted

      @SamAlvi, It's common with anemia to have a lower tTg IgA antibodies than DGP IgG ones, but your high DGP IgG scores still point to Celiac disease.   Since a gluten challenge would pose further health damage, you may want to ask for a DNA test to see if you have any of the commonly known genes for Celiac disease.  Though having the genes for Celiac is not diagnostic in and of itself, taken with the antibody tests, the anemia and your reaction to gluten, it may be a confirmation you have Celiac disease.   Do discuss Gastrointestinal Beriberi with your doctors.  In Celiac disease, Gastrointestinal Beriberi is frequently overlooked by doctors.  The digestive system can be affected by localized Thiamine deficiency which causes symptoms consistent with yours.  Correction of nutritional deficiencies quickly is beneficial.  Benfotiamine, a form of thiamine, helps improve intestinal health.  All eight B vitamins, including Thiamine (Benfotiamine), should be supplemented because they all work together.   The B vitamins are needed in addition to iron to correct anemia.   Hope this helps!  Keep us posted on your progress!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.