Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Fainting before an upset tummy


mummy-to-mini-bees

Recommended Posts

mummy-to-mini-bees Newbie

Hi people, I have not yet been officially diagnosed with celiac disease, biopsy awaited, but all blood results are pointing in that direction. I have been avoiding gluten foods for a week now.

For nearly 20 years I was led to believe I had IBS and now I am worried that this misdiagnosis has damaged my organs. 

The reason I went for tests was down to fainting when a diarrhoea episode was coming on. Today it happened again straight after eating a lemon drizzle naked bar (gluten free).

Does anyone else suffer with fainting? I have all horrible thoughts going through my head that it may be more serious than celiac disease. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master
11 minutes ago, mummy-to-mini-bees said:

Hi people, I have not yet been officially diagnosed with celiac disease, biopsy awaited, but all blood results are pointing in that direction. I have been avoiding gluten foods for a week now.

For nearly 20 years I was led to believe I had IBS and now I am worried that this misdiagnosis has damaged my organs. 

The reason I went for tests was down to fainting when a diarrhoea episode was coming on. Today it happened again straight after eating a lemon drizzle naked bar (gluten free).

Does anyone else suffer with fainting? I have all horrible thoughts going through my head that it may be more serious than celiac disease. 

Look up vasovagal reaction or response.  Its not too serious,  but you will want to try to manage it.  Sometimes just recognizing that it will happen and sitting down, taking a deep breath, etc can help.  Getting scared can make it worse.  

mummy-to-mini-bees Newbie

Thank you, this is something I had read about so will mention it to my doctor.

Wheatwacked Veteran

I had an episode last night. I was feeling unusually good, both physically and mentally and watching a movie. I am anorexic so don't usually have an appetite, but there I was feeling good and hungry. So I ate. I had a coke, some prosciutto, cooked salami, and provolone. Not the best choice but I have been eating this occasionally and enjoying it with no reaction, for a while. In fact I had it for lunch earlier. About 1/2 hour later, I start losing consciousness, like low blood pressure, tuck my head down and take deep breathes, eventually it eases and blood pressure feels like it is rising, start sweating profusely and shaky, then throw up. The whole episode ends a while later, when I have a bowel movement and its like it never happened.  I do believe it is a vasovagal reaction, unrelated to any particular food because it has happened other times, sometimes without even having eaten.

mummy-to-mini-bees Newbie

That' reassuring to know that it isn't just me having these episodes.  This time was slightly different as I was at work, sat in my office, and suddenly my head felt pressurised so I looked in the mirror and I was all res and my eyes bloodshot then I came over feeling sick  and faint so I quickly laid on the bathroom floor. This went on for about an hour, with diarrhoea inbetween. I knew the signs this time so avoided fainting. I felt awful all day and washed out for the next day too. I am wondering if it is stress related as we are buying and selling our house at the moment and things have been dragging. I thought I was keeping calm when friends have asked why I am not stressed through it all. 

Would be interested to hear from any other fainters.

cyclinglady Grand Master

I am the Queen of fainting.  I have been experiencing it since I was a little kid.  I have had a few evaluations, but nothing has come up.  

Buying a house?  That is SO stressful on top of a new celiac disease diagnosis.  Things will improve!  I promise.  ?

Posterboy Mentor

Mummy,

I don't have your symptom's but it sounds like you have POTS.  But I had a friend who had it and researched it for them.

Open Original Shared Link

It is most common when you get up too quickly but can be associated with sitting/lying down to.

quoting webmd

"Postural orthostatic Open Original Shared Link syndrome (POTS) is a disorder that has orthostatic intolerance or (OI) as its most common symptom. When you have POTS, most of your Open Original Shared Link stays in the lower part of your body when you stand up. This makes your Open Original Shared Link beat faster to try to get blood to your Open Original Shared Link. Your Open Original Shared Link can go up by 30 beats or more a minute after you stand up. As that happens, your Open Original Shared Link is likely to drop.

Scientists aren’t sure exactly why, but women between 15 and 50 years old are more likely to have POTS."

It is most commonly associated with Sjogrens disease and is often considered any early sign of SD.

Here is a list of other diseases' POTS can occur in.

Open Original Shared Link

Celiac is on that list.

Underlying Vitamin deficiencies can also contribute to some of the symptom's one experiences with POTS.

The Dysautonomia International page lists the below vitamins as possibly playing a role in POTS.

quoting

Vitamin Deficiencies
"Vitamins are organic substances made by plants or animals that are required for human health. Many of these vitamins, including Vitamins E, B1 (thiamine), B3 (niacin) B6 (pyridoxine), and B12 are essential to healthy nerve function. Thiamine deficiency, in particular, is common among people with alcoholism. People who have digestive problems, which are very common in people who have autonomic disorders, are often deficient in B12. Vitamin deficiencies can usually be corrected with a proper diet, and if that is not sufficient, supplementation with oral, intravenous, or injectable vitamins may be necessary."

I would suggest a good B-complex might help to address some of the Vitamin deficiencies.

I hope this is helpful.

****this is not medical advice just my own personal research for a friend.

2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included.

Posterboy by the grace of God,


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Wheatwacked Veteran

In my case, not POTS. I did have years ago, it was called Postural Orthopedic Hypotension and I probably was vitamin deficient then. Situp or standup brain blood pressure drops and you faint. I do not know why it stopped. The closest thing I can compare this to is when I was put under with nitrous oxide by the dentist. Going down down down. And it happened while perfectly relaxed, sitting still in a chair. Another time, standing still at the kitchen counter.

I think it may be that the combination of very little dietary fiber recently, while combined with the nitrates and maybe the coke without anything else to move it along,  I basically anaesthetized myself. The cheese just sped up the nausea. Once I throw up and poop, which can be minutes or hours later, all is back to normal. Based on my eating patterns and vague memories of previous occurrences, this actually makes sense. It was not low blood sugar because I drank the coke first. 

I hope this helps someone because it has certainly helped me.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,654
    • Most Online (within 30 mins)
      7,748

    Uli
    Newest Member
    Uli
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      I don't see how cornstarch could alter the test results. Where did you read that?
    • knitty kitty
      For pain relief I take a combination of Thiamine (Benfotiamine), Pyridoxine B 6, and Cobalamine B12.  The combination of these three vitamins has analgesic effects.  I have back pain and this really works.  The B vitamins are water soluble and easily excreted.   Hope this helps!  Keep us posted on your results!
    • knitty kitty
      Welcome to the forum, @Xravith. I experienced similar symptoms before my diagnosis.  Mine were due to the loss of vitamins and minerals, essential nutrients we must get from our food.  With Celiac Disease, the intestinal lining, made up of thousands of villi, gets damaged and cannot absorb essential vitamins and minerals, especially the eight B vitamins.  The loss of Thiamine B 1 can cause muscle loss, inability to gain weight, edema (swelling), fatigue, migraines and palpitations.  Low thiamine can cause Gastrointestinal Beriberi with symptoms of nausea, abdominal pain and bloating.   Thiamine is only stored for a couple of weeks, so if you don't absorb enough from food daily, as the thiamine deficiency worsens physical symptoms gradually worsen.  If you're eating lots of carbs (like gluten containing foods usually do), you need more thiamine to process them (called high calorie malnutrition).  Thiamine works with all the other B vitamins, so if you're low in one, you're probably getting low in the others, too, and minerals like iron, magnesium, zinc, and calcium, as well as Vitamin D..  Talk to your doctor about checking for nutritional deficiencies.  Most doctors rarely recognize vitamin deficiency symptoms, especially in thiamine. Get a DNA test to see if you carry any Celiac genes.  If you do not have genetic markers for Celiac, it's probably IBS.  If you do have genetic markers for Celiac, it's probably Celiac.  I was misdiagnosed with IBS for years before my Celiac diagnosis.   Keep us posted on your progress. P. S. Deficiency in thiamine can cause false negatives on antibody tests, as can diabetes and anemia.  
    • Julie 911
      No she didn't because if I want to ask I have to pay 700$ for 1 hour appointment so I couldn't even ask. I read that fillers like cornstash can alter the result and tylenol contains it so that's why I tried to find someone who can answer. 
    • trents
      Did the GI doc give you any rational for stopping the Tylenol during the gluten challenge? I have never heard of this before and I can't imagine a good reason for it. Ibuprofen, maybe, because it is an anti inflammatory but acetaminophen?  I don't see that it would have any impact on the test results to take Tylenol.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.