Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New to forum, just want advice on how to test for celiac and if anyone has similar symptoms I have and I do have a lot of questions about celiac.

Allikitten
 Share

Recommended Posts

Allikitten Newbie
Allikitten
Posted
(edited)

Hello everyone. I'm new to the forum. I have been gluten free for a long time since I know I cannot tolerate gluten very well. I have been tested for celiac but since I wasn't even eating gluten at the time, of course my results came back negative. I do, however, get really terrible symptoms when I accidentally ingest it. I get nausea, vomiting, migraines, if I ingested a lot lets say in meat products that contain wheat in it, I used to be able to tolerate traces of wheat but not anymore. I feel even more lethargic than I usually do, I have fibromyalgia so that comes with it, but even more so when I eat gluten.  My muscles start to hurt and my fibro flares, I get stomach cramps, irritability, mood swings, feeling depressed after eating it, a few times I have also had b 12 deficiency that looked like pernicious anemia when I had gone to my naturopath, I also experience kidney pain on my right side after eating it. I'm wondering if anyone who is actually diagnosed with celiac disease has these symptoms as well. Also is there another way to test for celiac disease besides eating it for a certain amount of time? I've read that you have to consume gluten for 6 months to actually get a positive result in a blood test which is quite a long time to torture myself. Another reason why I am here is because I have been told and read that this disease is more prominent or happens in Caucasians and I'm Asian, probably mixed with some Spanish descent so I'm not sure if I can possibly have celiac or not because I don't personally know anyone with celiac disease. I just have such awful symptoms when I get glutened so I don't know if it's just a really bad intolerance or if I have celiac.  I'm wondering if I have it so I am waiting to see my GI and am going to try to network with other celiacs in my area to see how they were diagnosed because it's really frustrating when you don't know what's really going on with your body. If anyone has any suggestions please share. Thanks.

Edited by Allikitten
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted
(edited)
  On 5/24/2018 at 2:19 AM, Allikitten said:

Hello everyone. I'm new to the forum. I have been gluten free for a long time since I know I cannot tolerate gluten very well. I have been tested for celiac but since I wasn't even eating gluten at the time, of course my results came back negative. I do, however, get really terrible symptoms when I accidentally ingest it. I get nausea, vomiting, migraines, if I ingested a lot lets say in meat products that contain wheat in it, I used to be able to tolerate traces of wheat but not anymore. I feel even more lethargic than I usually do, I have fibromyalgia so that comes with it, but even more so when I eat gluten.  My muscles start to hurt and my fibro flares, I get stomach cramps, irritability, mood swings, feeling depressed after eating it, a few times I have also had b 12 deficiency that looked like pernicious anemia when I had gone to my naturopath, I also experience kidney pain on my right side after eating it. I'm wondering if anyone who is actually diagnosed with celiac disease has these symptoms as well. Also is there another way to test for celiac disease besides eating it for a certain amount of time? I've read that you have to consume gluten for 6 months to actually get a positive result in a blood test which is quite a long time to torture myself. Another reason why I am here is because I have been told and read that this disease is more prominent or happens in Caucasians and I'm Asian, probably mixed with some Spanish descent so I'm not sure if I can possibly have celiac or not because I don't personally know anyone with celiac disease. I just have such awful symptoms when I get glutened so I don't know if it's just a really bad intolerance or if I have celiac.  I'm wondering if I have it so I am waiting to see my GI and am going to try to network with other celiacs in my area to see how they were diagnosed because it's really frustrating when you don't know what's really going on with your body. If anyone has any suggestions please share. Thanks.

Expand Quote  

A gluten challenge is not six months, but it is around 8 weeks:

Open Original Shared Link

The decision is yours to make.  While I am diagnosed, my hubby is not.  He went gluten free per the advice of two medical doctors (no celiac testing was done) 17 years ago.    It worked though.  He never cheats.  He also would never consider a challenge.  He likes feeling good and frankly we also like paying our bills.  ?

Just something to consider.  

Oh, Asian and Spanish.  It is possible.  Celiac disease is no longer considered a European Disease.

Open Original Shared Link

 

Edited by cyclinglady

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,519
    • Most Online (within 30 mins)
      7,748
    FuzzHead
    Newest Member
    FuzzHead
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Contamination symptoms?

      By Scott Adams · Posted

      There are test kits available (urine test) that can tell you if you consumed gluten in the last ~24 hours, but without that, there is no way to be certain. Eating out in restaurants in the primary source of contamination for most celiacs.  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months...
    • Scott Adams
      Juice shots? Anti inflammatory

      By Scott Adams · Posted

      I've not tried them, but making your own anti-inflammatory juice shots at home can be a great way to support gut health while ensuring ingredients are fresh, cost-effective, and tailored to your needs. Many store-bought options (like Thistle’s) are convenient, but DIY versions allow you to control ingredients and avoid additives. Some powerful anti-inflammatory ingredients to include are: Turmeric & Ginger (known for reducing inflammation and soothing digestion) Aloe Vera Juice (supports gut lining and reduces irritation) Pineapple (contains bromelain, an enzyme that aids digestion) Leafy Greens (kale, spinach—rich in antioxidants) Beetroot (supports liver detox and reduces oxidative...
    • Scott Adams
      Caribbean Sailing with Celiac

      By Scott Adams · Posted

      It sounds like an exiting plan, and there is a lot of great naturally gluten-free foods in the Caribbean islands, Mexico, Central America, etc.
    • Scott Adams
      What should tTG IgA be if Gluten Free?

      By Scott Adams · Posted

      If you’ve been strictly gluten-free for several years, your tTG IgA level of 13.6 (within the normal range of <15) is generally a good sign, as it suggests no significant gluten exposure or ongoing immune response. However, some celiac patients on a gluten-free diet may still have low but detectable tTG IgA levels due to minor cross-contamination, slow healing, or other factors. Your recent symptoms (Bristol 6 stools, abdominal pain, nausea) could indicate accidental gluten ingestion, but they might also stem from other issues like IBS, food intolerances, or gut dysbiosis. Since your GI is concerned about more serious conditions, an endoscopy with biopsy could help confirm...
    • JD-New to Celiac
      Need advice for some relief!

      By JD-New to Celiac · Posted

      I am surprised that your doctor would not diagnose based on sight? I was diagnosed with dermatitis herpetiformis but the biopsy came back negative. The dermatologist said that can happen as the disease was not active at the time, but it was classic dermatitis herpetiformis in his opinion especially since I was already diagnosed with celiac several years prior to the dermatitis herpetiformis flare up. Like many on the dermatitis herpetiformis threads I suffered from itchy burning lesions on my elbows. Very painful when I was in the shower. Dermatologist prescribed dapsone gel 7.5%. There is a pill option but I wanted to first try the topical gel and it eased the burning sensation and after a few...
×
×
  • Create New...