Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Losing my mind


deep pressin

Recommended Posts

deep pressin Newbie
(edited)

I'm so tired of everything. I can't enjoy food anymore. I can't go out to eat. I can't gain weight. I can't find motivation. I can't afford everything that comes with this disease. I want to scream as hard as i possibly can until i feel better. My mom is too poor to afford the expensive gluten free food. Every night i eat rice with chicken and brocolli. I can't do it anymore. I can't talk to anyone about my disease because no one understands. I wish i could just stop existing so my suffering could finally stop. Edit: thank you all for your suggestions and kind words, i'm going to tell my mom about all the foods you suggested 

Edited by deep pressin

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

Hi,

Welcome to the forum! :)

You may be surprised to hear that eating foods like rice and veggies and meats is actually a very good way to start the gluten-free diet.  I don't know if you are old enough to cook your own food yet, but maybe you can give your mom some other meal ideas.

We generally suggest people not eat all the expensive processed gluten-free baked goods for the first few months of the gluten-free diet.  That is because they can be hard to digest and cause bloating due to the high carbs and sugars.  It's much better and you'll heal faster not eating that kind of thing.

It's also good to stop eating dairy for a few months until your gut can heal and start making the enzymes to digest lactose again.

Being sick is not easy and the lack of vitamin and minerals being absorbed can cause depression effects IMHO.  You may feel much better in 6 months.

Meats, veggies, nuts, eggs and fruits are good for you and they don't cost any more for us than other people pay.  They are really the best diet for anyone.  It does take some time to adjust to eating differently from other people though.  But it's necessary because the gluten-free diet is a medical diet.  The gluten-free diet is the only treatment for celiac disease.

I hope you feel better soon. 

kareng Grand Master
(edited)
23 minutes ago, deep pressin said:

I'm so tired of everything. I can't enjoy food anymore. I can't go out to eat. I can't gain weight. I can't find motivation. I can't afford everything that comes with this disease. I want to scream as hard as i possibly can until i feel better. My mom is too poor to afford the expensive gluten free food. Every night i eat rice with chicken and brocolli. I can't do it anymore. I can't talk to anyone about my disease because no one understands. I wish i could just stop existing so my suffering could finally stop.

Not to make fun of this but - maybe switch out the broccoli for green beans?  Broccoli every night is no fun!  

Seriously, while it might be nice to have gluten-free pasta or bread or crackers - there are so many naturally gluten-free foods you could eat.  Add BBq sauce to that chicken.  Eat a different meat.  Pork is cheap.  Try other veggies and fruit.  Use corn tortillas and some salsa and cheese and turn that chicken into a taco or nachos.  

Last night we had chicken I browned in a pan and  then added canned beans, frozen or canned corn (canned hominy is a fun change), can of Rotel tomatoes, shredded carrots, a bell pepper, put on rice and added a little cheese on top.  

You can make stir fry with gluten-free soy sauce - there are some main stream ones out there..  Add your own seasonings like orange juice, garlic, cayenne pepper, etc  Serve it over asian rice noodles.

chili, soups, - easy to make gluten-free.  

Maybe the money you save by not eating out could be used to buy some pasta or Canyon Bakehouse bread or cookies

Edited by kareng
tessa25 Rising Star

Maybe give your mom some safe food ideas like potatoes with butter, cheese and bacon.  Potatoes, ham and cabbage can be boiled in a pot if you can have those things.

If you're 16 you can get a part time job and buy some gluten free equivalents like pasta and bread.

kareng Grand Master

Here is a yummy and easy cookie recipe.  does not require any special and expensive flour.

 

Flourless Peanut Butter Cookies
 
Ingredients
·  1 cup creamy peanut butter (chunky would be good, too)
·  1/2 cup granulated sugar 
·  1/2 cup packed light brown sugar (dark brown is OK,too)
·  1/2 cup semisweet chocolate chips 
·  1 large egg
·  1 teaspoon vanilla extract 
 
1.preheat the oven to 350°F. 
2. Combine all the ingredients except chips in a bowl, and stir with a wooden spoon until smooth. Stir in chips.
3. Divide the dough into 24 portions, about 1 heaping tablespoon each. Roll each portion between your hands to form a smooth ball. Place the balls of dough on ungreased cookie sheets, spacing them 1 inch apart. You should get about 12 cookies per sheet. Using 
a fork, press on the dough in two directions to form a crosshatch pattern. 
4. Bake the cookies until the cookies are puffed and lightly golden, about 10 minutes. Remove the baking sheets from the oven and let the cookies cool on the sheets. Then remove them with a metal spatula. 
 
Makes about 24 cookies 
 
These freeze very well!  I have heard that others have made them with almond butter with great success.
 
Ennis-TX Grand Master

I love omelettes myself, mix it up with different seasonings like hte blend from Big AXE spice and add in different veggies/meats. Fun things I used to do like scrambled eggs, pour tomato sauce over them and eat with tortillas or lettuce wraps
Migas, crush up some Protes Chips, or plain fritos in a skillet, drop in some eggs scramble it up serve with salsa a dairy free cheese shreds.
Deli meat roll ups are fun, you can even cut deli meat into shreds for a noodle and stir fry with veggies in a pan, Coconut Secret makes some great teriyaki sauce to finish it off with.
Homemade Guacamole and chips are great, nut butters on spoons for snack or with veggie sticks
Have you look up various sheet pan and crock pot meals, using crockpot liners or foil on your pans makes clean up super easy and safe from contamination
Look at getting some Nordicware Microwave cookware, they make omelette makers, rice cookers, steamers, grill plates with splatter covers for quick and easy meals.
Fish is one of my favorite meats that I can still eat on rare occasions (I have other issues now day due to complications), grilled, baked, or my favorite smoked.
I been doing some fun catering as of late like pan cooking burger patties, cutting them up and serving them in a salad with diced tomato, bacon, vegan cheese, with ketchup and mustard for hamburger salad, you can even do bun less burgers.
OreIda Makes safe fries, tater tots, and hashbrowns

PS Read the Newbie 101 thread, for more info and I have a list of stuff you can look forward to for "treats" few times a month have something a bit more processed, I do it with Califlour foods pizza crust sometimes, or make a new item in my bakery for myself.
https://www.celiac.com/forums/topic/121802-gluten-free-food-alternative-list-2018-q3/
 

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Theresa2407 replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Probiotics

    2. - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      2

      New here

    3. - Scott Adams replied to KathyR37's topic in Coping with Celiac Disease
      2

      New here

    4. - KathyR37 posted a topic in Coping with Celiac Disease
      2

      New here

    5. - Scott Adams replied to Colleen H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Celiac attack confusion and anxiety


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,808
    • Most Online (within 30 mins)
      7,748

    mhendy123
    Newest Member
    mhendy123
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Theresa2407
      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • KathyR37
      I am new here but celiac disease is not new to me. I was diagnosed with it at age 60. At the time I weighed a whopping 89 pounds. I was so ignorant to celiac so I buried myself in learning all about it and looking for food I could eat. I lost so much weight and stayed sick all the time. So to combat the sickness I was give all sorts of meds for loose bowels and vomiting. All that just made me sicker. Eventually I chucked it all and went back to eating like I had all my life. Now I am from the south and biscuits and gravy are a big part of our food, as are breaded foods, pasta, and sandwich bread. Through the years I would try to do the gluten free thing again and am doing it now. It has not helped any. Within and hour of eating I have to run to the bathroom. I am now 75 and am wondering if I should just forget it and eat what I like, take Immodium and live the best I can. I cannot eat before going anywhere for fear of embarrassing myself. Family and church dinners are out of the question unless I eat and run straight home. I am so frustrated I just want to sit down and cry or throw something. Does everyone go through all this?
    • Scott Adams
      This article, and the comments below it, may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.