Highest Levels of IGA-TTG tests

[sanjlika]

I recently took a blood test and went over the results with my family doctor who has confirmed me having the celiac disease as my levels were 1500 whereas the normal level should be 7 or less and so are extremely high, I believe he was talking about my IGA-TTG levels I am not sure of the same as I did not write it down as I was in a kind of shock. I think he was talking about IGA-TTG but I'm not sure. He has referred me to a GI but unfortunately I have to wait 9 months for the first available appointment. He has asked me to stop Gluten and I am sure feeling better since I have stopped with very less abdominal cramps and less bloatedness, but as a newbie I am making mistakes and getting glutened  once in a while with now more severe reactions than before I stopped eating gluten.

For people who have done this test what were your high levels ?

Thanks In Advance.

Sanjeev

Edited June 11, 2018 by sanjlika
want to add content

[MichelleSC]

Omg you poor thing! Mine were also super high, but they only specified that it was over 100. So I don’t know how high mine was, but I had the same symptoms of pain and bloating. Don’t worry, it gets A LOT easier with time. Something that can help, is a medication called Dicyclomine, which is basically a muscle relaxer for your intestines. If I take it within 10-20 of accidentally eating gluten, I don’t get all the bad symptoms. It’s technically for IBS, but it helps when I accidentally get “glutened.” Worth asking your dr about! 

I hope you start to feel better soon! And good luck! There are lots of good groups on Facebook and Twitter, with lots of resources and recipes for great gluten-free food. I personally loved GlutenFreeOnAShoestring.com for recipes, and found the BEST gluten-free flour ever there. Called Better Batter All Pourpose gluten-free Flour. I get big boxes on Amazon for cheap. It can be used in a 1:1 ratio for regular flour, for any recipe! Others can have weird ratios, that can make cooking and baking hard. But this stuff has been tested HARD by my family, and nobody can tell a difference! 

[sanjlika]

Thanks Michelle for the info, appreciate the revert.