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What is wrong with me?


Murphdawg

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Murphdawg Newbie

I’m wondering what my next steps should be. I’m struggling, I can’t figure it out, I’ve been dealing with the following symptoms since I can remember. I’ve talked to my GP, but I haven’t had much luck. 

 

Fatigue/sluggish

Brain Fog

Irritable/moody

Anxious

Disoriented at times

No focus

No motivation

Constant Blocked sinus/switches sides

Insatiable appetite

stomach issues/IBS

Reoccurring nightmares

Never feel rested

 

Occasionally:

Dizzy/nauseas

Swollen occipital lymph nodes

 

Where do I start?  Who should I go see?  I’m currently gluten and dairy free, but I haven’t noticed much of a difference.

 

 

 

 


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GFinDC Veteran

Hi,

How long have you been on the gluten-free / dairy-free diet?  It can take months or years to recover from celiac disease damage.  Have you been diagnosed yet?  It is better and easier to get tested for celiac disease before going gluten-free.

  • 4 weeks later...
Murphdawg Newbie

I’ve been gluten free for about 3 months. I haven’t been diagnosed yet, and I’ve only had a few conversations with my primary care physician.

I have days where I feel better, and days where I feel much worse. It seems like my good days are a little better and my bad days are worse, especially with fatigue, brain fog and anxiety levels.

My primary care Dr doesn’t seem to care very much, so I’m just wondering who I should go see.  Thank you for any advice! 

tessa25 Rising Star

You go to a gastroenterologist to get tested for celiac. Ask for the full celiac panel.

The full celiac panel includes:

TTG IGA
TTG IGG
DGP IGA
DGP IGG
EMA
IGA

You have to be eating gluten daily for 12 weeks before the blood test. A positive on any one blood test should lead to a gastroenterologist doing an endoscopy /biopsies to confirm a celiac diagnosis.

 

Murphdawg Newbie

I will do that, thank you!

ch88 Collaborator

There are other types of digestive problems besides celiacs and you might want to get tested for them.

Mild food allergies can cause IBS in some cases. 

You could get blood test to see if you are deficient in any vitamins.

  Maybe you could try rotate your foods to see if it effects anything? You could try an AIP diet, a foodmap diet, or an elimination diet. 

Those are some ideas. 

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      I think your initial idea, eat gluten and be tested, was excellent. Now you have fear of that testing, but isn’t there also a fear each time you eat gluten that you’re injuring your body? Possibly affecting future fertility, bone health and more? Wouldn’t it be better to know for sure one way or the other? If you test negative, then you celebrate and get tested occasionally to make sure the tests don’t turn positive again. If you test positive, of course the recommendation from me and others is to stop gluten entirely.  But if you’re unable to convince yourself to do that, could a positive test at least convince you to minimize your gluten consumption?  Immune reactions are generally what is called dose response, the bigger the dose, the bigger the response (in this case, damage to your intestines and body). So while I am NOT saying you should eat any gluten with a positive test, the less the better.  
    • knitty kitty
      @Riley., Welcome to the forum, but don't do it!  Don't continue to eat gluten!  The health problems that will come if you continue to eat gluten are not worth it.  Problems may not show up for years, but the constant inflammation and nutritional losses will manifest eventually.  There's many of us oldsters on the forum who wish they'd been diagnosed as early.    Fertility problems, gallbladder removal, diabetes, osteoporosis and mental health challenges are future health issues you are toying with.   To dispel fear, learn more about what you are afraid of.  Be proactive.  Start or join a Celiac group in your area.  Learn about vitamins and nutrition.   Has your mother been checked for Celiac?  It's inherited.  She may be influencing you to eat gluten as a denial of her own symptoms.  Don't let friends and family sway you away from the gluten-free diet.  You know your path.  Stick to it.  Be brave. 
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