Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Diagnosed couple of questions

TrainInVain
 Share

Recommended Posts

TrainInVain Apprentice
TrainInVain
Posted

Just got my diagnosis last Thursday and couple questions.

1) Do doctors continue to test and monitor with t-Transglutaminase (tTG) IgA blood tests? I know I have to go 100% gluten free and am working on it, but does that measure how well you are doing at elimination gluten?

2) After going gluten free, how soon after accidentally eating something with gluten would you know it ?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

Welcome!

1) Follow up testing is advised.  Are measuring your antibodies a good indication that you are adhering to the gluten free diet?  Celiac experts think so, but the tests were designed to help diagnose celiac disease.  They are not perfect, but they are the only tool in the toolbox for now.   Biopsies obtained via endoscopy are still the best means of diagnosing and monitoring celiac disease.  The problem is an endoscopy is expensive and invasive. 

Here is the recommendation from the University of Chicago for follow-up Care.  Share it with your GI or PCP.

Open Original Shared Link

2) you will know......everyone is different, so you will get a different answer.  

TrainInVain Apprentice
TrainInVain
Posted
  • Author
3 hours ago, cyclinglady said:

Welcome!

1) Follow up testing is advised.  Are measuring your antibodies a good indication that you are adhering to the gluten free diet?  Celiac experts think so, but the tests were designed to help diagnose celiac disease.  They are not perfect, but they are the only tool in the toolbox for now.   Biopsies obtained via endoscopy are still the best means of diagnosing and monitoring celiac disease.  The problem is an endoscopy is expensive and invasive. 

Here is the recommendation from the University of Chicago for follow-up Care.  Share it with your GI or PCP.

Open Original Shared Link

2) you will know......everyone is different, so you will get a different answer.  

Thanks : ), I did have an oscopy-on-both-ends and the upper revealed, "a lot of inflamation from acid reflux," and they biopsied. The GI ordered follow up blood tests and then she confirmed the celiac diagnosis. They also dilated my esophagus and she said I should repeat the upper in a year.

Mea0714 Newbie
Mea0714
Posted

I am just curious how many people with celiac have previously been diagnosed with RA and fibromyalgia. And if so are your symptoms better, worse or the same?  Tia

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Have Tru Joy Sweets Choco Chews been discontinued??

      But M&M's contain milk, and would not be at all like a Tootsie Roll.
    2. Jmartes71
      - Jmartes71 replied to chrish42's topic in Doctors
      7

      Doctors and Celiac.com

      I appreciate you validating me because medical is an issue and it's not ok at all they they do this. Some days I just want to call the news media and just call out these doctors especially when they are supposed to be specialist Downplaying when gluten-free when they should know gluten-free is false negative. Now dealing with other issues and still crickets...
    3. Wheatwacked
      - Wheatwacked replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Have Tru Joy Sweets Choco Chews been discontinued??

      M&M Peanuts. About the same calories and sugar while M&M Peanuts have fiber, potassium, iron and protein that Tootsie Rolls ("We are currently producing more than 50 million Tootsie Rolls each day.") don't. Click the links to compare nutritional values. Both are made with sugar, not high fructose corn syrup. I use them as a gluten free substitute...
    4. Theresa2407
      - Theresa2407 replied to chrish42's topic in Doctors
      7

      Doctors and Celiac.com

      I see it everyday on my feeds. They go out and buy gluten-free processed products and wonder why they can't heal their guts. I don't think they take it as a serious immune disease. They pick up things off the internet which is so far out in left field. Some days I would just like to scream. So much better when we had support groups and being able to teach...
    5. Scott Adams
      - Scott Adams replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Have Tru Joy Sweets Choco Chews been discontinued??

      Some of the Cocomels are gluten and dairy-free: https://cocomels.com/collections/shop-page
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,266
    • Most Online (within 30 mins)
      7,748
    Barbara lynn
    Newest Member
    Barbara lynn
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      Have Tru Joy Sweets Choco Chews been discontinued??

      By Scott Adams · Posted

      But M&M's contain milk, and would not be at all like a Tootsie Roll.
    • Jmartes71
      Doctors and Celiac.com

      By Jmartes71 · Posted

      I appreciate you validating me because medical is an issue and it's not ok at all they they do this. Some days I just want to call the news media and just call out these doctors especially when they are supposed to be specialist Downplaying when gluten-free when they should know gluten-free is false negative. Now dealing with other issues and still crickets for disability because I show no signs of celiac BECAUSE IM GLUTENFREE! Actively dealing with sibo and skin issues.Depression is the key because thats all they know, im depressed because medical has caused it because of my celiac and related issues. I should have never ever been employed as a bus driver.After 3 years still healing and ZERO income desperately trying to get better but no careteam for celiac other than stay away frim wheat! Now im having care because my head is affected either ms or meningioma in go in tomorrow again for more scans.I know im slowly dying and im looking like a disability chaser
    • Wheatwacked
      Have Tru Joy Sweets Choco Chews been discontinued??

      By Wheatwacked · Posted

      M&M Peanuts. About the same calories and sugar while M&M Peanuts have fiber, potassium, iron and protein that Tootsie Rolls ("We are currently producing more than 50 million Tootsie Rolls each day.") don't. Click the links to compare nutritional values.  Both are made with sugar, not high fructose corn syrup.  I use them as a gluten free substitute for a peanut butter sandwich.  Try her on grass fed, pasture fed milk. While I get heartburn at night from commercial dairy milk, I do not from 'grassmilk'.     
    • Theresa2407
      Doctors and Celiac.com

      By Theresa2407 · Posted

      I see it everyday on my feeds.  They go out and buy gluten-free processed products and wonder why they can't heal their guts.  I don't think they take it as a serious immune disease. They pick up things off the internet which is so far out in left field.  Some days I would just like to scream.  So much better when we had support groups and being able to teach them properly. I just had an EMA blood test because I haven't had one since my Doctor moved away.  Got test results today, doctor ordered a D3 vitamin test.  Now you know what  type of doctors we have.  Now I will have to pay for this test because she just tested my D3 end of December, and still have no idea about my EMA.    
    • Scott Adams
      Have Tru Joy Sweets Choco Chews been discontinued??

      By Scott Adams · Posted

      Some of the Cocomels are gluten and dairy-free: https://cocomels.com/collections/shop-page
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.