Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Osteoporosis?


VydorScope

Recommended Posts

VydorScope Proficient

I was in a bad car accident in 1994, and somehow along the way I acquired all the actual films and radiologists reports from it. You know, the CAT scans and X-rays, etc. I finally got around to showing them to my doc, well faxed them over this am, and they called back 2 hours later and have me scheduled for a bone scan tomorrow at 3:45pm. Before getting the reports it was "I would like to get you screened for osteoporosis at some point, prbly early next year..." after getting them its now "come in tomorrow for the screening". :o

Would have been nice had the docs at that time mention to us the fractures in my spine that are mentioned in this report. My doc's down here in TN are so much more caring then what I have seen up there. I got the impression from my doc that she could have diag'd celiac disease back in '94 had she been my doctor then! Think of all the damage and trouble I could have been spare... then again I probably would not have listen at that age LOL. Teenagers are immortal! LOL

I hope that osteoporosis is not an issue with me, but if it is , anyone know anything about the treatment?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lauren M Explorer

I have osteopoenia, but I'm only 24. I was on a prescription level Calcium supplement for awhile. I know I am due for another bone scan, and if things get worse I assume that I'll need to go on Actonel or Fosamax. I've heard about some not-so-great side effects with these drugs however, and I'm sure your doctor will be able to counsel you on your best options. Until then - do what I do (if you can tolerate it): lots of yogurt, and Rainbow Light calcium with D.

Good luck, let me know what your doctor decides to do.

- Lauren

key Contributor

Where do you live in TN? I live in Knoxville, TN. Just curious. What is your health like now?

Monica

VydorScope Proficient
Where do you live in TN? I live in Knoxville, TN. Just curious. What is your health like now?

Monica

As it says under my son picture on every post, Nashville :P:P

I guess slowly getting better hard to tell with this stupid cold I got :(

VydorScope Proficient
I have osteopoenia, but I'm only 24. I was on a prescription level Calcium supplement for awhile. I know I am due for another bone scan, and if things get worse I assume that I'll need to go on Actonel or Fosamax. I've heard about some not-so-great side effects with these drugs however, and I'm sure your doctor will be able to counsel you on your best options. Until then - do what I do (if you can tolerate it): lots of yogurt, and Rainbow Light calcium with D.

Good luck, let me know what your doctor decides to do.

- Lauren

So treatment is calicum and vit d suppliments?

jenvan Collaborator

vin-read this thread on osteo. scroll down to see posts and my experience with treatments etc:

Open Original Shared Link

VydorScope Proficient
vin-read this thread on osteo. scroll down to see posts and my experience with treatments etc:

Open Original Shared Link

did your doc talk to you about options for treating your osteopenia? my mom had it. some docs may try and tell you to go on meds such as fosamax...but my rec is to not do so. since it is osteopenia and you are young, the drug will actually freeze your bone mass, so to speak, thereby freezing depletion, however it can also stop your chances of increasing your bone mass. instead of drugs initially, you can try other things to increase mass, limit alcohol and caffeine (which can deplete bones), start doing weight bearing exercises and begin taking a calcium supplement every day, if you aren't. docs wanted to put my mom on fosomax, she is in her 50s, and she refused. they told her she wouldn't reclaim any bone mass, esp. at her age...BUT she has been working out, lifting weights, taking a supplement, and has increased her bone mass, and is testing okay now. so, it can be done... there's my treatise on bones!!

Intresting, dunno if I can give up coffee! But I bascily dont drink, been years since my last "adult beverage", just not somthing I do much. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jenvan Collaborator

well, maybe you could 'sneak' a decaf every once in a while. (since they still can have a measure of caffeine). but i'm not endorsing that! :) if you're like my dad, you won't give it up...he is supposed to give up coffee, has barret's espophagus etc., but for christmas he wanted a cappuccino maker. go figure!

VydorScope Proficient
well, maybe you could 'sneak' a decaf every once in a while. (since they still can have a measure of caffeine). but i'm not endorsing that! :) if you're like my dad, you won't give it up...he is supposed to give up coffee, has barret's espophagus etc., but for christmas he wanted a cappuccino maker. go figure!

Decaf has liek 4mg of cafine, you get more from a hersey's bar. :P I might learn to like decaf...ugh! :(

tarnalberry Community Regular

particularly for celiacs, magnesium is VITAL for bone formation, and most people don't get enough (healthy diet or not). most doctors overlook it as well. (there are studies - I use pubmed.com - that show that magnesium supplementation is more important, by far, than calcium supplementation in celiacs in order to increase bone density.) weight bearing exercise is also very important, as it provides the stimuli that tells the body to grow more bone than it takes down.

VydorScope Proficient

Wonder how likly it is that I have osteoprosis. I have had cronic back pain as far back as I can remember... I hope its not likly! Last thing I need is another label! :mellow:

Nevadan Contributor

I was dx'ed w/ osteoporosis 5 yrs ago (@55 yrs old, male). At the time I was referred to an Endocrinologist who prescribed Calcitonin plus a 600mg calcium supplement. It improved my density by about 5% in one yr. At the end of the yr he thought perhaps Fosamax would do better, so he changed me to it and I've been taking it ever since along with the calcium supplement. However, I've had no further increase in bone density. As other posters have said, Fosamax can have some bad effects; it's a new drug so complications are probably not fully recognized(Actonel is in the same category). Plus once you take it, it is incorporated into your bones and remains there essentially forever. I now wish I had never changed to it. I would definitely advise asking your dr about Calcitonin and trying to avoid Fasamax.

Also I agree with Tarnalberry about magnesium being equally as important as calcium. There is also some studies that show zinc is also a key to denser bones.

George

VydorScope Proficient

Well I got the bone scan today, should hear the results on Tuesday...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    2. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    3. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    5. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,079
    • Most Online (within 30 mins)
      7,748

    Terra33
    Newest Member
    Terra33
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.