Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can U Get Dh After Dx?

Moongirl

By Moongirl
in Dermatitis Herpetiformis

Recommended Posts

Moongirl Community Regular
Moongirl
Posted

i was just dx with celiac disease, i was wondering if its possible to develop dh after going gluten-free?

thanks

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


traveljunkie Rookie
traveljunkie
Posted

Do you mean if you accidentally get glutened?

Charlene

Guest CD_Surviver
Guest CD_Surviver
Posted

i do not believe so

Lauren

Moongirl Community Regular
Moongirl
Posted
  • Author
Do you mean if you accidentally get glutened?

Charlene

No, just in general, is it something that can develop?

Drew Newbie
Drew
Posted
i was just dx with celiac disease, i was wondering if its possible to develop dh after going gluten-free?

thanks

Well, even if you had full blown DH to begin with, it would dissapear after you went gluten free. So no, if you are truly gluten-free then DH should not be a problem. There is a mechanism in the body that causes gluten intolerance to actually increase for 7 days after eliminating it. Perhaps you might get some extra symptoms upon accidental ingestion that you did not get before going gluten-free.

If you are getting itchy or painful red bumps on your skin that hang around for days and/or ooze and inflame... its probably a reaction from ingesting gluten. Think of it as a handy visual indicator :D Thats what I do to relieve the depression of seeing them appear.

Good luck being gluten-free

cornbread Explorer
cornbread
Posted

I never had DH, but having gone gluten-free, then casein-free and most recently (following positive antibody testing at Enterolab), soy and yeast free too, I got 'glutened' by yeast (yeasted?!) last week, and developed, for the first time ever, symmetrical, dry, very itchy marks. Both sides of my chest, stomach and inner arms. It looked a lot like some of the photos of DH I've seen. As soon as I tracked down the errant yeast source and cut it out, the marks faded and stopped itching.

Carriefaith Enthusiast
Carriefaith
Posted

Whenever I am glutened now, I usually get chicken pox like spots on my skin, which I never had before going on the diet. I'm not sure if it is dh because I have only had gluten in accidents or cross contamination since going gluten free. I also have a wheat allergy, so the spots could be related to that.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 4 weeks later...
4getgluten Rookie
4getgluten
Posted

Carrie - the same thing happened to me this week after being accidentally glutened. I got these chicken-pox-like spots on my back and chest that started to really itch after a few days. I'm guessing it as to do with the gluten. I have had them before, but I never associated them to gluten until now.

teebs in WV Apprentice
teebs in WV
Posted

I read somewhere (not sure where) that there are some people who always have DH symptoms - even after going gluten free. But, I think this is rare.

Carriefaith Enthusiast
Carriefaith
Posted
Carrie - the same thing happened to me this week after being accidentally glutened. I got these chicken-pox-like spots on my back and chest that started to really itch after a few days. I'm guessing it as to do with the gluten. I have had them before, but I never associated them to gluten until now.
So you never noticed them before going gluten free? I noticed them for the first time about 10 months after going gluten free. Mine can also itch and I usually get them on my legs.
Rusla Enthusiast
Rusla
Posted

I truly don't consider them a pleasant reminder because, mine comes out on my face under my nose, corners of my mouth and below my bottom lip. It makes a mess out of my face. I feel like a leper, but certainly know when the smallest grain of wheat.

teebs in WV Apprentice
teebs in WV
Posted

This was how I was diagnosed with celiac - by the DH. I had it on my arms, legs, stomach and lower back....fortunately never on my face. On one hand, it is a terrible thing to endure, but on the other, it keeps me from cheating.

4getgluten Rookie
4getgluten
Posted
So you never noticed them before going gluten free? I noticed them for the first time about 10 months after going gluten free. Mine can also itch and I usually get them on my legs.

I noticed them for the first time 2 weeks ago when I was glutened. I've been gluten-free for about 10 months now... strange. The last time I was glutened was in August, and I don't remember having this reaction. The weird thing is, I remember having this type of rash years ago before I was gluten-free. So, it may be something else. I guess I'll know for sure next time I accidentally eat gluten.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,537
    • Most Online (within 30 mins)
      7,748
    Debbie Nelson
    Newest Member
    Debbie Nelson
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • WVGirl
      nuts.com -- no longer Celiac safe?

      By WVGirl · Posted

      Thank you!
    • RMJ
      What should tTG IgA be if Gluten Free?

      By RMJ · Posted

      It took me 5 years to get one of my celiac antibodies down into the normal range.  A few years later it went up to a low positive. I had started baking with a certain gluten free flour. When I switched to a certified gluten free flour the antibody level went back down to normal. Has anything changed in your diet, supplements, kitchen, etc. that might correlate with the increase?
    • KimMS
      considering iViG treament (normal anti ttg iga but high gliadin antibody iga)

      By KimMS · Posted

      Quick follow up: with strict "home-only" eating, how does this apply to drinks (soda/tea at a restaurant or coffee at Starbucks)? Would you avoid these as well? At times when I know I can't eat something when I'm out with friends, I will just order a drink, but is that okay (for this time period while I'm being strict)?
    • KimMS
      Helping child go strict gluten-free and concerns about growth/height

      By KimMS · Posted

      Hello, My daughter (almost 13) was diagnosed with celiac 1.5 years ago. I also have celiac and gluten ataxia so we are on this journey together. In another post, I mentioned how my AGA IgA has not really gone down even though my ttg IgA is down in normal range, and a biopsy one year ago showed my villi were healed/basically normal. My daughter's GI is concerned that her antibody levels are not going down fast enough (they dropped drastically the first year and she grew three inches, but they have slowed the past 6-9 months and her growth has plateaued). Doctor is concerned that she will not grow to her full height if she doesn't get her levels down as low as possible before her growth plates set). It seems the main culprit for both of us is eating out. We are very careful, but I did begin to eat out more when she was diagnosed b/c I didn't want to unnecessarily restrict her (esp. socially), and the celiac nutritionist agreed. But now we are facing the reality that we need to redouble our efforts and only eat at home and possible dedicated gluten-free establishments. This is sad, but her health and growth are worth it (btw, she has been symptom free this whole time, so we thought we were okay, but the bloodwork tells a different story). My questions are: 1) What are ppl's experience with children hitting a growth spurt after going gluten-free? Is this likely that she will grow more if we get her levels down? 2) After her window of growth closes (growth plates set), is it possible for her to eat out again (still being extremely careful) and monitor with bw and possibly repeat biospsy if needed? Her growth is crucial right now, so that is our focus, but I'm wondering if she will be able to expand her eating options at some point when she is older or if she will have to stay this strict for life. 3) What recommendations do you have to navigate this time with an almost teenager (both navigating social things, parties and making sure she has adequate nutrition as she can be picky). I know she can bring her own food to events we anticipate (lots of prepping ahead which makes me tired ::sigh::). But the hardest thing is the spontaneous times where we can't prep ahead. I am concerned about her getting enough variety in her diet and the nutrients she needs (she loves rice and gluten-free pasta - basically rice - but these have little/no nutritional value).
    • RMJ
      nuts.com -- no longer Celiac safe?

      By RMJ · Posted

      I’ve had both but without salt. The Tierra Farm had a little more flavor, although the almonds were a bit smaller and maybe a tiny bit tougher.
×
×
  • Create New...