Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Negative blood test and positive biopsy?

BeachBabe22
 Share

Recommended Posts

BeachBabe22 Newbie
BeachBabe22
Posted

Hello,

I'm 32 years old and I've have chronic diarrhea since I was around ten years old.  I've also had migraines for eight years and scalp plaque for five years.  Within the past few months I also have joint pain where my feet and ankles hurt every morning and tingling in my feet.   I've had a major stomach flare up the past four weeks where I've had diarrhea all day.  Several times I could barely make it a few miles down the road without having to stop and find a bathroom.  I have three little kids so it's extremely difficult for me to be this sick and have to run to the bathroom so many times a day. 

I've had awful doctors in the past who just want to give me a different prescription for each symptom instead of finding out what the cause is.  I finally have a doctor who is working with me and she's been wonderful.  I had a bunch of lab work done and besides my white blood cell count and red blood cell counts coming back low everything else is within normal range.  

DGP IGA:2 

TTG IGA: <2

IGA, QN: 182 

They were checking for celiac disease, ulcerative colitis, and crohns.  I met with a gastroenterologist and I am now scheduled for a colonoscopy and an endoscopy.  They are going to biopsy my intestines and she said that could possibly show celiac disease even though the blood tests came back normal.   I was certain that the diagnosis would be celiac based on all of my symptoms.  Has anyone had negative blood work for celiac but the intestinal biopsy showed celiac?  I am just really hoping for some kind of diagnosis so I can live a normal life and not have to plan my day and my kids lives around how close we are to a bathroom.  

Any advice or feedback is much appreciated!  Thank You! 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

Welcome! 

For starters, you have not had the complete celiac blood panel.  Did you know that some celiacs are seronegative?  

Your doctor seems to be on the right path.  Getting both scopes is a good idea as you may have several issues going on.  

I wish you well!  

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,636
    • Most Online (within 30 mins)
      7,748
    yellowstone
    Newest Member
    yellowstone
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      What foods can trigger a response in people with gluten sensitivity?

      By trents · Posted

      Welcome to the forum, @yellowstone! The most common ones seem to be dairy (casein), oats, eggs, soy and corn. "Formed" meat products (because of the "meat glue" used to hold their shape) is a problem for some. But it can be almost anything on an individual basis as your sensitivity to rice proves, since rice is uncommonly a "cross reactor" for celiacs. Some celiacs seem to not do well with any cereal grains.
    • yellowstone
      What foods can trigger a response in people with gluten sensitivity?

      By yellowstone · Posted

      What foods can trigger a response in people with gluten sensitivity? I've read that there are foods that, although they don't contain gluten, can cause problems for people with gluten sensitivity because they contain proteins similar to gluten that trigger a response in the body. I've seen that other cereals are included: corn, rice... also chicken, casein. I would like to know what other foods can cause this reaction, and if you have more information on the subject, I would like to know about it. Right now, I react very badly to rice and corn. Thank you.
    • Jmartes71
      Shingles - Could It Be Related to Gluten/ Celiac

      By Jmartes71 · Posted

      Shingles is dormant and related to chicken pox when one has had in the past.Shingles comes out when stress is heightened.I had my 3rd Shingles in 2023.
    • knitty kitty
      Shingles - Could It Be Related to Gluten/ Celiac

      By knitty kitty · Posted

      Here's one more that shows Lysine also helps alleviate pain! Exploring the Analgesic Potential of L-Lysine: Molecular Mechanisms, Preclinical Evidence, and Implications for Pharmaceutical Pain Therapy https://pmc.ncbi.nlm.nih.gov/articles/PMC12114920/
    • Flash1970
      Shingles - Could It Be Related to Gluten/ Celiac

      By Flash1970 · Posted

      Thank you for the links to the articles.  Interesting reading. I'll be telling my brother in law because he has a lot of pain
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.