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Celiacs without Gut Pain


Blvr

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Blvr Rookie

I'd like to hear from those who don't feel bad when they eat gluten.  I have had a positive biopsy and blood test for Celiac Sprue.  My only symptom was anemia for which I now take iron.  I find it very difficult to follow a gluten free diet.  I am a senior citizen and think about the quality of life that I have left.


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pikakegirl Enthusiast

I am 50 and was diagnosed 11 years ago as Silent Celiac. Fisrt i watched my undiagnosed father suffer from all the multisystem diseases that happen when eating gluten with Celiac. He passed of cardiac arrest at 62. I must say that it was hard to change my eating i  our culture. That said my health is better than i can recall. I did not have bad GI effects but it manifested in malnutrition with obesity, high cholesterol, high CRP, sclerosis of my aorta, skin issues, sinus infections, fibromyalgia like muscle pain, gallbladder failure, adrenal fatigue, thyroid damage and kidney stones. Things were never tied together before my diagnosis. I do not suffer any of those things now that i eat organic, non processed food. I am not a good cook and i have found quick easy one ingredient recipies. I keep food frozen and in my frig at all times so there is always something to grab. Also always carry freeze dried fruit and gluten-free nuts with me. Its about how i age and how imcan stay off all the meds my dad was in and out of the hospital tha drives me. I wish you well with this life changing challenge.

cyclinglady Grand Master

I was diagnosed five years ago.  I did not have GI issues, but had anemia which resolved on a gluten free diet.  

Is the diet worth it?  Yes, I actually feel much better.  Things I attributed to age have resolved.  If I had been diagnosed earlier, I might have prevented my other autoimmune disorders from developing.  I might have prevented my vertebrae fractures from osteoporosis at the age of 50.  Please ask your doctor for a bone scan!  

The diet just takes time to learn and adjust.  You can do it!  

Celiac disease damages you systemically and that is a fact.  I think you will be surprised how much better you can feel on a gluten free diet.  I know I want to retire and enjoy myself!  

tessa25 Rising Star

What foods do you need gluten free equivalents for?

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    • Fayeb23
      Thank you that’s really helpful, hopeful won’t have to have a biopsy.
    • RMJ
      That means the normal range (i.e. not celiac disease) would be a result less than 14.99.  Your result is WAY above that. Some gastroenterologists would diagnose that as celiac disease even without a confirming biopsy because it is more than ten times the top of the normal range.
    • Redanafs
      Hi everyone. Back in 2022 I had blood work drawn for iga ext gliadin. Since then I’ve developed worse stomach issues and all other health issues. My doctor just said cut out gluten. He did no further testing. Please see my test results attached. I just need some direction cause I feel so ill and the stomach pain is becoming worse. Can this test show indications for other gastrointestinal diseases?
    • Fayeb23
      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
    • Scott Adams
      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
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