Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tapioca Flour

jerseyangel

By jerseyangel
in Coping with Celiac Disease

Recommended Posts

jerseyangel Proficient
jerseyangel
Posted

I've been sick for 3 weeks now. I've been over everything I've eaten and used. I do not feel like I've been glutened. No D (the big tip off), but upper abdominal stuff like lots of gas, pressure, belching, nausea, and a burning in my mouth and dry throat. I've been going 2 times a day--it had been once for quite a while now. I almost feel like I've been poisoned--not to be dramatic, but for the purpose of description. The only common thing I come up with is that I've been baking with a homemade flour mix containing tapioca flour. Before this, I'd been doing so well. Also, back when I used to eat dairy, if I ate tapioca pudding, my mouth would always get dry. Am I nuts?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


key Contributor
key
Posted

Patti,

I made some sugar cookies the other night. THey had tapioca flour, rice flour and corn starch flour. I was so happy they turned out, but then I was SO sick that night. Not gluttening symptoms either. It just felt like a ball in my stomach for hours, belching, my food just wouldn't digest and I had some abdominal pain(ended up sitting up until 2am watching tv and took pepto bismol). I know it wasn't gluten, because my son's ate the same cookies and were fine (one has celiac and had no symptoms). THey have been eating them and I won't touch them again. I had been gluttened the day or so before, so I thought maybe it was just that. I have had some stomach aches though when I eat some of the gluten-free breads. The gluten free pantry one has bothered me. I can eat Kinnikinnick's english muffins and pizza crusts. I can eat corn tortilla's etc. I wonder if it is the tapioca flour. I am not sure what is in all those breads, but something in some of them doesn't agree with me either. Didn't have any D from that episode though. Sometimes I believe I should just quit eating. I don't ever know sometimes.

Hope we both figure out the problem.

Monica

jerseyangel Proficient
jerseyangel
Posted
  • Author

Monica--Thanks for responding so fast! I also was excited that my cookies came out well, and proceded to eat some of each kind. All were made with the mix with the tapioca flour in it. I didn't feel well the next morning and I blamed the Hershey's Dark Chocolate Kisses in the Peanut Blossoms! So, what did I do--I made choc. chip cookies with the flour mix, thinking it must have been the kisses or the sprinkles on the sugar cookies. I felt better this past weekend, but yesterday I made banana bread with "the mix" and I feel awful today. I'm getting so tired of trying to figure out what is causing what! I wish someone could tell me--ok, this is what you should eat. I was really doing well before all of this--I hope the flour is the culprit as I can do very well without it. Like you said--lets hope we figure this thing out! :(

key Contributor
key
Posted

Patti,

Yup, I was doing great gluten-free for like 4-5 months and then bam! I can't stand it when I don't know what I have eaten that has made me not feel well, but for now I don't want to feel the way I felt the other night. I am scared to try anything baked anymore. I think I should just eat natural foods or something. Just thinking about such a large quantity of tapioca flour and corn starch in my bread kind of grosses me out actually. Even when I make it. It grossed me out before I was sick. I think I will just eat Potatoes for the next month! HA!

MOnica

kabowman Explorer
kabowman
Posted

What else is in the mix besides tapioca flour? Corn starch? Soy flour? Potato starch? Could it be something else or do those in other mixes do fine for you.

Just a guess since some of those tend to be more problematic for celiac disease people rather than the tapioca...it took me quite a while to figure out the yeast on mine.

Also, something we add for baking is actually a mild laxitive - I just can't remember the name right now. One of those weeks.

jerseyangel Proficient
jerseyangel
Posted
  • Author

Monica--Before this Christmas baking fiasco, I always just used rice flour and some potato starch to soften it up a bit. Never a problem. I shouldn't have tried to fix something that wasn't broken! Whole, natural foods sound like a great idea right about now. :D

key Contributor
key
Posted

Just thought I would let you know that I checked my ingredients on the Kinnikinnick products and they have tapioca, yeast, corn or rice flour for me. THose products don't bother me. I did use xanthum gum, which I noticed wasn't in the other one's. I don't know, maybe it was just something else entirely. Something definitely bothered me that night. I don't think I was sick at all with any virus. It just made my stomach hurt and didn't digest right.

Guess the search continues.

Monica

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


2Boys4Me Enthusiast
2Boys4Me
Posted
Also, something we add for baking is actually a mild laxitive - I just can't remember the name right now. One of those weeks.

I believe guar gum is used as a laxative.

I wish I could help you all with figuring it out, but my son (the Celiac) never had any "classic" symptoms to gluten of any kind, nor does he have any symptoms now...I have no idea if he's ingesting any accidentally or not.

I guess my only suggestion is to avoid anything made with tapioca for a couple of weeks and then try it again to see what happens. Sort of a trial by elimination...I see a lot of people here trying elimination diets.

jerseyangel Proficient
jerseyangel
Posted
  • Author

Yea-I'll just stop using it and see if that helps. The other 2 ingred. were rice flour and potato starch--those I know are ok for me. I also used xanthan gum but only in the cookies, not the banana bread. Thanks for all the input :)

  • 2 weeks later...
sillyac Newbie
sillyac
Posted

Hi,

i read somewhere that soy allergic people usualy are also allergic to wheat .. so it seemed to happen with me. watch out how your body reacts to soy and derivates..

And milk can be a problem to an advance celiac isnit?

Also, eating cereals before going to bed as never been a good sleeping tactic to me, not only cos i can't (start and) sleep well as i don't seem to diggest properly, waking heavy next morning and ending up on coffee to sort-it-out!

mmm..

What do you celiacs eat before go to bed? Not bread for sure!

I try to stick to apples and pears but its difficult to stay out other more filling alternatives..

Thanks :)

jerseyangel Proficient
jerseyangel
Posted
  • Author

Well, I'm about to go to bed and I just had an apple, sliced with natural peanut butter.

Becky6 Enthusiast
Becky6
Posted

After being gluten-free for a month now I know there is something else that is bothering me! Not sure what yet! Possible dairy is my theory for now. My daughter is off dairy (has been since may and off gluten for 6 weeeks) so our dinner was gluten-free and df last night and I felt just fine! Yesterday I ate some gluten-free cand with milk in it and got that aching nasty stomach. So right now I think it is dairy. I hope you figure out what it is! IT is so discouraging when you finally realize how good you feel w/o gluten! Then wham something else gets you! Good luck!

Diosa Apprentice
Diosa
Posted

Another thought... did you use baking powder? Some baking powders have gluten in them. You might check to see if yours does. I have been extra careful to get only gluten-free baking powder.

I'm sorry they made you so sick. :( Hope you feel better.

I *just* started baking again, using a mix of corn starch, tapioca flour, garfava and sorghum. I can't tolerate rice at all, so I have to be a bit more creative with flour blends. :)

jerseyangel Proficient
jerseyangel
Posted
  • Author

Hi Beth--Thanks for the suggestion. I use Clabber Girl baking powder and it actually says gluten free on the label! I feel much better, thanks and I really do think it was the tapioca. I may be wrong, but I didn't eat any more of the stuff made w/the flour mix and the wierd symptoms went away within a day or so. I find it interesting that you can't tolerate rice--I have tried eliminating rice and have found that my excema has cleared up. Does make it harder, when you don't use the rice <_< . Have you read Dangerous Grains? Yesterday, I think, I posted a paragraph from it on rice and why some gluten intolerant people can't use it.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748
    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.