TTg-iga test for a 2 year old

[20somethingmama]

My 2 year old has been having digestion issues for about a year and was referred to a pediatric GI. The GI ordered the ttg-iga blood test and the genetic testing. I thought the ttg wasn't accurate in kids under 3, but this doctor said it would be fine. My son is almost 2.5. I am just so concerned about it not being accurate. 

[ravenwoodglass]

Welcome to the board. If the test does come back negative demand the doctor run the full panel. Also the gene testing is not a for sure thing as they usually only test for the 2 most common genes. There are diagnosed celiacs with other celiac associated genes. Do make sure your little one keeps eating gluten and be aware that testing on real young children can be a false negative. I hope you can get some clear answers soon.

[CeliacMommaX2]

It's a tough disease because to be diagnosed, they need enough damage to their gut.  So if you want a diagnosis in a really young child, you have to make them sick enough to get a positive result.  My son was 3 when we tested him (older sister had just been diagnosed).  He didn't have any symptoms, but TTG and EMA were elevated, so we scoped him and he did not have enough damage to be officially diagnosed.  After talking to other GI doctors and a specialist, we have had him diagnosed "officially".  We questioned what would happen if we kept him on a gluten diet and were basically told that he would likely "develop celiac"... 

Good luck!

[pschwab]

My son was 2.5 when tested and his ttg came back just fine showing he was positive for celiac. He was only sick for about 4 months when we tested him (throwing up, diarrhea, constant stomach aches). His genetic test came back positive and we avoided scoping him at all. He got his positive celiac diagnosis and here we are 3 years later. I think every kid and situation is different. I would proceed with the doctor’s recommendation and see what happens. You can always do further testing depending on the results.