Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Concerned


Danijela

Recommended Posts

Danijela Contributor

Hey there!!!

I have a question re BM'S....

Or a lack of....

My stomach completly just doesn't work....

I can't even say i'm constipated....

I just don't need to go!!!

I usually just wait 3 or 4 days as long as I can and then just take something to get rid of it... cause I eat meals regularly and its not right that it just sit in there.... I feel terrible and exausted all the time and this lack of digestion is probably why... I also have this build up of air in my stomach and when ever I take a deep breath I can feel it shooting out.... its begining to bother me and my breathing.....

I read on the net that this sort of thing caused blood sugar problems which would explain the hypoglycemic attacks I have all the time.....

I have an appointment on the 11th with an allergist and hopefully he can help

however does anyone have any advice for me

thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

if it's bothering your breathing, please call the doctor back and try to bump up the emergency. not going for three or four days isn't necessarily a problem, particularly if you're eating very low-residue foods (no fiber, mostly meat, etc.), but if it's causing additional problems, you're starting to get into the "should seek immediate attention" area. I wouldn't say emergency room yet - but if you start feeling very sick, experience almost any sudden, significant major change, or the like, it might then be time for that. please try to get that appointment moved up, or see your regular doctor before then.

Danijela Contributor
if it's bothering your breathing, please call the doctor back and try to bump up the emergency. not going for three or four days isn't necessarily a problem, particularly if you're eating very low-residue foods (no fiber, mostly meat, etc.), but if it's causing additional problems, you're starting to get into the "should seek immediate attention" area. I wouldn't say emergency room yet - but if you start feeling very sick, experience almost any sudden, significant major change, or the like, it might then be time for that. please try to get that appointment moved up, or see your regular doctor before then.

Hey,

If I don't take somthing I never go....

I can only ususally wait 3 or 4 days before I feel really crappy and give in and take something...

the problem with my breathing is the build up of air pushing....

They wont move my appt up thats the date that the guy comes to town...

The doctors are convinced that its still anxiety....

They don't even listen to me anymore....

I'm really hoping that this guy is going to help I know him actually I use to work in the office that he comes to....

so I think he's my best bet.....

jenvan Collaborator

Wow girl...sounds like you are really getting 'backed up'...not to be gross! I think that is a big problem. I was similar before going gluten-free...and I am a firm believer that not going daily for most people is an issue--sign of poor health or a problem going on. I did not feel well when I was in that state--and I didn't really even notice it till I did begin going on a regular basis. For me there are several factors that cause constipation--not being gluten-free completely, consuming dairy and lack of fiber. So, being gluten-free/cf, consuming fiber like beans, brown rice etc, plenty of water and psyllium on occasion keep me moving along. Not going regularly, and having your intestines packed full all of the time is not good. Also, being on a cycle of laxatives, natural or synthetic, is very unhealthy too--eventually, it can lead to a dependence on them and only exacerbate the problem. What do you take for relief, as you mentioned? Ever tried psyllium?

Danijela Contributor

Hi Jen

i've never heard of that I usually just take a correctal.....

It was the allergists wife that said an intolerance and allergy were the same thing....

When I see him I hope he says different becasue I didn't think they were the same thing....

for the last week i've cut out all gluten again.....

I hope this doesn't create a problem for any testing he wants to do....

my appt is in 2 weeks

nathela Rookie
Wow girl...sounds like you are really getting 'backed up'...not to be gross! I think that is a big problem. I was similar before going gluten-free...and I am a firm believer that not going daily for most people is an issue--sign of poor health or a problem going on. I did not feel well when I was in that state--and I didn't really even notice it till I did begin going on a regular basis. For me there are several factors that cause constipation--not being gluten-free completely, consuming dairy and lack of fiber. So, being gluten-free/cf, consuming fiber like beans, brown rice etc, plenty of water and psyllium on occasion keep me moving along. Not going regularly, and having your intestines packed full all of the time is not good. Also, being on a cycle of laxatives, natural or synthetic, is very unhealthy too--eventually, it can lead to a dependence on them and only exacerbate the problem. What do you take for relief, as you mentioned? Ever tried psyllium?

:) Psyllium changed my life! Please try it ASAP! No more pain, bowel movements do happen!!

jenvan Collaborator

Dani--

I strongly encourage you to stay away from the correctol. As I mentioned, taking laxatives that frequently will only mess you up more. Psyllium is natural fiber...not synthetic and it doesn't create dependency or side effects like a drug/laxative would. Psyllium bulks up stools and carries them out. I would start taking it immediately, and stick with 100% gluten-free. What exactly are you hoping to learn from the allergist? If it is food intolerances, I would probably do a great plains or york labs. Great Plains I know will do both IgG an IgE testing. I want you to get better girl!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,899
    • Most Online (within 30 mins)
      7,748

    dcarter1682
    Newest Member
    dcarter1682
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.