Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Doctor In Los Angeles

Edgar

By Edgar
in Doctors

Recommended Posts

Edgar Newbie
Edgar
Posted

I've been experiencing symptoms of Glueten intolerance for the past 5years. It began after a bout of extremely strong anti-biotics for a sinus infection. It first showed up as dizziness and brain fog, then built progressively over the past 5 years to include a range of symptoms from depression, anxiety and lack of sleep to brain fog, dizziness and severe gastro problems.

It was an allergist who first suggested wheat allergies. I followed up with not one but two GI doctors in Los Angeles and Burbank. One suggested celiacs, another refused to even consider it. Niether did testing and the one who thought I was celiacs seems to have been reitred under odd circumstances (You could say I've seen three GI guys. One of this doctors partners their practice saw me when I did a return visit and insisted the diagnosis of celiacs was a mistake).

I've been kind of floundering on my own since. I'd love a recommendation for a good GI doctor in Los Angeles who has experience with celiac disease.

I've been seeing a nutritionist for help. Aside from being a great accupuncurist, I haven't really gotten much help from her. She keeps prescribing enzymes and things designed to increase acid production. These only seem to make things worse. I know I feel better when I've been able to avoid glueten for even a few days but the symptoms are getting worse so I've resolved to get aggressive about diet and treatment with the new year. Suggestions for doctors in town are sincerely appreciated.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


uclangel422 Apprentice
uclangel422
Posted

I live in Sherman Oaks and I see Dr. Michael Hirt, he is a general internal medicine guy and he diagnosed me.

I also work in Burbank at a hospital and for G.I. guys, Dr. Kerry Weiner is supposed to be the best.

Edgar Newbie
Edgar
Posted
  • Author

I'm a little dubious about Dr. Weiner. It was a partner in his practice that refused to test me and insisted there was no such thing as a food allergy.

Edgar Newbie
Edgar
Posted
  • Author

I spoke with Dr. Pietzak at Children's Hospital. She referred me to Dr. Zipser in San Dimas. I set an appointment to see him in January. Thanks for the referrals.

nathela Rookie
nathela
Posted
I spoke with Dr. Pietzak at Children's Hospital. She referred me to Dr. Zipser in San Dimas. I set an appointment to see him in January. Thanks for the referrals.

I live in Los Feliz, in Los Angeles. I am also looking for a good celiac GI specialist in the area. So, if you like the new doctor, can you let me know? Thank you. I am going to research on naturepath.com... I heard it might be helpful. :)

uclangel422 Apprentice
uclangel422
Posted

I am so sorry that that happened to you with someone affiliated with my hospital. Thanks for telling me about that too, i will stay away from them if i ever need any GI work done.

  • 3 years later...
rpinette Newbie
rpinette
Posted
I spoke with Dr. Pietzak at Children's Hospital. She referred me to Dr. Zipser in San Dimas. I set an appointment to see him in January. Thanks for the referrals.

Edgar, where you happy with Dr. Pietzak? I too am looking for an LA based doctor. Thanks.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nasalady Contributor
nasalady
Posted
Edgar, where you happy with Dr. Pietzak? I too am looking for an LA based doctor. Thanks.

Pietzak is exclusively a pediatric doctor, as far as I know. She wouldn't even see my little girl and had her seen by a younger GI doctor (Collins) at CHLA. We do like Dr. Collins, but even though Emma's DNA test revealed HLA DQ2, she wouldn't order a biopsy because Emma's bloodwork was negative. The celiac panel is notoriously inaccurate in young children. I put Emma on the gluten free diet and her eczema disappeared and she started to gain weight.

I saw Dr. Peter Rosenberg in Pasadena. He took me seriously and is a good listener. I think he's the best GI doctor that I've seen.

The only negative I have to report is that when my husband saw him recently (my husband has DH, which I've understood from this board to be an automatic diagnosis of celiac disease), he said that he wasn't convinced that Paul had celiac and wants him to have the celiac panel run even though he's been gluten free since JANUARY. I was surprised by this, because Rosenberg seemed to be up on the latest celiac research.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    2. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    3. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
    4. David Blake
      - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

      My question I have proposed to the FDA through their website is why Prescription and OTC drug manufacturers are not required to list what binding ingredients were used to bine the drug? They list this on Capsules which are made of cellulose but not on pills? As it stands I or my pharmacist must contact the manufacturer to find out and my list is long from...
    5. nanny marley
      - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748
    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      Supplements for those Diagnosed with Celiac Disease

      By trents · Posted

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.