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Hemp intolerance

trents
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trents Grand Master
trents
Posted
  • Author

Our systems are all so different. Corn (and rice) are easiest on me whereas I know corn and corn products give lots of others issues.

Good suggestion, notme! about varying the diet to avoid histamine buildup. I've thought about that. I tend to get in ruts with my menus.

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notme Experienced
notme
Posted

i noticed that I would eat something one day and it would digest well, no issues.  so, safe, right?  ate it the next day and my guts were like:  nope.  I already had histamine buildup on my 'oh, I might hafta watch out for that' radar.  so, for sh*ts n giggles, I started to experiment.  if I skip two days before I eat the same thing again, it is ideal.  I can get away with every other day, but not for long, lolz.  I freeze stuff just to make sure I have different foods to eat in between.  my husband is on the road half the week, so it's just me feeding me.  he is used to me cooking a full meal when he is home for him to eat and i eat something different I've been craving for 2 days, lolz

ie:  last night we made venison street tacos with sweet hoison onions, raw green peppers, feta, greek yogurt & mashed avocado w/lime on lil' corn tortillas.  I had bruschetta with fresh mozz and potato salad <both of those things leftover from Monday's picnic I had been dying to eat them before they were too old :D  - today I had the street tacos and they were super awesome.  no repercussions.  tomorrow i'm making cream of asparagus soup and shrimp toasts.  leftover cheeseburger went in the freezer for a grab n go when we go to friends' - wrapped in parchment paper first, then tinfoil & packaged in a ziplok so it is cooler friendly.  I can throw it on a grill, in an oven, or unwrap the tinfoil and nuke it if I need to.  

it's a little more planning ahead, but *ahem* regular bathroom breaks and very few 'mystery miseries' if ya get me ;) went on a looooooooong boat ride on Monday to the Land of No Restrooms and was perfectly fine.  

your agreeable foods may and probably are very different than mine, so just do whatever foods work for you.  I can not eat chocolate more than once per week but evidently, wine is fine, anytime (?) so, as you said, we are all different.  

hope this helps!!!   

I used the my fitness pal app to keep track of my food intake until I got used to remembering what I ate yesterday hahahahaa  ??

trents Grand Master
trents
Posted
  • Author

I suspect the same thing, notme! There are times when I can eat something and it doesn't bother me and other times it makes me quite ill. I think there are a lot of variables here. One of them is how things are processed. There are several seed foods that give me no problem if they are washed and/or cooked. But they reliably make me ill if I consume them in raw, unwashed form.

I did one of those hemacult stool sample tests recently, or whatever they call them these days. It came back positive so I have a consult scheduled for that next week. A lot of things can produce blood in the stool. Everything from cancer to hemorrhoids to peptic ulcers to a burst diverticuli. But I wonder if there could be a connection between my recent episodes of nausea/diarrhea and the blood in the stool. Must be a very small amount, not enough to discolor the stool.

Posterboy Mentor
Posterboy
Posted

trents and notme!,

I have been in the hay field and haven't had time to keep up ..in between rain showers ...it creates twice the work but I saw your comment about histamine build up.

So I will try and be brief...leftovers can trigger/cause a histamine cascade triggered by the tyramine content of the foods..

here is a nice overview of the tyramine/histamine connection on SFgate.

https://healthyeating.sfgate.com/foods-histamines-tyramines-1208.html

also here is an exhaustive list of foods that might overlap with your (histamine buildup) triggered by the tryamine content of foods to see if there is a possible connection.

https://fdnow.org/wp-content/uploads/2016/09/Tyraminelistpdf0916.pdf

Here is nice thread about this topic if you want to do more research on it.

or just search for tyramine on celiac.com

I hope this helpful but it is not medical advice.

Posterboy,

Posterboy Mentor
Posterboy
Posted
On 5/30/2019 at 4:22 PM, trents said:

I suspect the same thing, notme! There are times when I can eat something and it doesn't bother me and other times it makes me quite ill. I think there are a lot of variables here. One of them is how things are processed. There are several seed foods that give me no problem if they are washed and/or cooked. But they reliably make me ill if I consume them in raw, unwashed form.

I did one of those hemacult stool sample tests recently, or whatever they call them these days. It came back positive so I have a consult scheduled for that next week. A lot of things can produce blood in the stool. Everything from cancer to hemorrhoids to peptic ulcers to a burst diverticuli. But I wonder if there could be a connection between my recent episodes of nausea/diarrhea and the blood in the stool. Must be a very small amount, not enough to discolor the stool.

Trents,

are you taking aspirin???it might be  causing stomach bleeding...and why I stay away from it.

I feel your concern...I had the same thing happen a few years ago...and my stool was only clay colored. ..if it (stool) is black ...definitely follow up quickly with your doctor.

my bleeding went away as mysteriously as it appeared ...

good luck and I hope it is a harmless cause ...but it sounds like you have done your research ...I was most concerned when I saw spots in my undies...I am assuming it was a bleeding  polyp because they did not find the cause but I stopped taking a daily aspirin (for my heart) at that time and haven't taken it since afraid the bleeding might come back. ...and as I said it went away as mysteriously as it appeared.

who knows' if the aspirin was causing it or not ...but it seemed to be associated in my case.

I hope this is helpful but it is not medical advice.

Posterboy,

trents Grand Master
trents
Posted
  • Author

No, I do not use aspirin but do use other NSAIDs occasionally. I am on warfarin for a genetic blood clotting disorder and that, together with the damage to SB already caused by Celiac Disease, I am very careful to not use NSAIDs frequently. I do use them occasionally for ortho-related pain because they work so well and are non-narcotic. Acetaminaphen doesn't do much for me. 

notme Experienced
notme
Posted
On 5/31/2019 at 6:06 PM, Posterboy said:

I have been in the hay field and haven't had time to keep up ..in between rain showers ...it creates twice the work but I saw your comment about histamine build up.

HAY posterboy!  <see what I did there??  :D  

I knew it!  you're outstanding in your field!!  :) 

that being said:  show of hands - who doesn't have google?  anybody?  anybody?  no?

o, and I just guessed about the histamines, I didn't do any research.  so, thank goodness.  

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Posterboy Mentor
Posterboy
Posted

Notme!,

It is true I have been working on my farmers tan... a little in between showers.

I have had hunches before (intuition) ....but they are only that anecdotally unsubstantiated reports.

I have told my personal story many times...but because of other moderators advised me I needed to substantiate my experience (story) etc. ...like Knitty Kitty I began siting sources so that others could also confirm/read the same research for themselves.

Many people don't know where (Or  have the time) to look to confirm what they are feeling ..only that they are not feeling well....

And now with me being in the hay field and a minor car accident I was involved in the last few weeks ....I am now in that position myself...I am still dealing with lingering whiplash symptom's ....and will investigate further if they (symptom's) don't clear up soon!

As for  you hunch here is the research on Histamines (Histadelia)...

orthomolecular.org/library/jom/2002/pdf/2002-v17n01-p017.pdf

This is not medical advice but it confirms a hunch I had a few years ago that most research is out there to be found. ..if people have time to look. ....

Which I don't have enough of right now ...to commit to the forum, farm and family...so you will get me in bunches (two or three post) between showers.

Doesn't the weather know it is not April ...right April showers' mean may flowers!

I hope it helps  you are someone else.

Posterboy of the hay field,

Posterboy Mentor
Posterboy
Posted
On 5/31/2019 at 6:06 PM, trents said:

No, I do not use aspirin but do use other NSAIDs occasionally. I am on warfarin for a genetic blood clotting disorder and that, together with the damage to SB already caused by Celiac Disease, I am very careful to not use NSAIDs frequently. I do use them occasionally for ortho-related pain because they work so well and are non-narcotic. Acetaminaphen doesn't do much for me.  

Trents,

If you are having Arithritis pain ...I highly recommend Vitamin D and Magnesium Glycinate/Citrate.

I had creaking bones in my late 20s and early 30's and taking Magnesium really helped my achy bones.

Also research (google) as Notme! established we all have it these days!

William Kaufman and Arthritis ...it will take 3 to 4 months to notice a difference but it can help.

I hope this is helpful but it is not medical advise.

Posterboy,

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      Welcome to the celiac.com community @pothosqueen!   Can you be more specific about which IGA test was run that resulted in 114 score and said to be "normal" and could you please include the reference range for what would be normal? By the size of that number it looks like it may have been what we call "total IGA" but that test is not usually run without also running a TTG-IGA. Total IGA tests for IGA deficiency. If someone is IGA deficient, then the celiac-specific IGA tests like the TTG-IGA will be inaccurate. Was this the only IGA test that was run? To answer, your question, yes, a positive biopsy is normally definitive for celiac disease but there are some other medical conditions, some medications and even some food proteins in rare cases that can cause positive biopsies. But it is pretty unlikely that it is due to anything other than celiac disease.
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      Upper endoscopy last week resulted in positive biopsy for celiac disease. The IgA they ran was normal (114). Does positive biopsy automatically mean definitive diagnosis?
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