Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hemp intolerance


trents

Recommended Posts

trents Grand Master

Our systems are all so different. Corn (and rice) are easiest on me whereas I know corn and corn products give lots of others issues.

Good suggestion, notme! about varying the diet to avoid histamine buildup. I've thought about that. I tend to get in ruts with my menus.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



notme Experienced

i noticed that I would eat something one day and it would digest well, no issues.  so, safe, right?  ate it the next day and my guts were like:  nope.  I already had histamine buildup on my 'oh, I might hafta watch out for that' radar.  so, for sh*ts n giggles, I started to experiment.  if I skip two days before I eat the same thing again, it is ideal.  I can get away with every other day, but not for long, lolz.  I freeze stuff just to make sure I have different foods to eat in between.  my husband is on the road half the week, so it's just me feeding me.  he is used to me cooking a full meal when he is home for him to eat and i eat something different I've been craving for 2 days, lolz

ie:  last night we made venison street tacos with sweet hoison onions, raw green peppers, feta, greek yogurt & mashed avocado w/lime on lil' corn tortillas.  I had bruschetta with fresh mozz and potato salad <both of those things leftover from Monday's picnic I had been dying to eat them before they were too old :D  - today I had the street tacos and they were super awesome.  no repercussions.  tomorrow i'm making cream of asparagus soup and shrimp toasts.  leftover cheeseburger went in the freezer for a grab n go when we go to friends' - wrapped in parchment paper first, then tinfoil & packaged in a ziplok so it is cooler friendly.  I can throw it on a grill, in an oven, or unwrap the tinfoil and nuke it if I need to.  

it's a little more planning ahead, but *ahem* regular bathroom breaks and very few 'mystery miseries' if ya get me ;) went on a looooooooong boat ride on Monday to the Land of No Restrooms and was perfectly fine.  

your agreeable foods may and probably are very different than mine, so just do whatever foods work for you.  I can not eat chocolate more than once per week but evidently, wine is fine, anytime (?) so, as you said, we are all different.  

hope this helps!!!   

I used the my fitness pal app to keep track of my food intake until I got used to remembering what I ate yesterday hahahahaa  ??

trents Grand Master

I suspect the same thing, notme! There are times when I can eat something and it doesn't bother me and other times it makes me quite ill. I think there are a lot of variables here. One of them is how things are processed. There are several seed foods that give me no problem if they are washed and/or cooked. But they reliably make me ill if I consume them in raw, unwashed form.

I did one of those hemacult stool sample tests recently, or whatever they call them these days. It came back positive so I have a consult scheduled for that next week. A lot of things can produce blood in the stool. Everything from cancer to hemorrhoids to peptic ulcers to a burst diverticuli. But I wonder if there could be a connection between my recent episodes of nausea/diarrhea and the blood in the stool. Must be a very small amount, not enough to discolor the stool.

Posterboy Mentor

trents and notme!,

I have been in the hay field and haven't had time to keep up ..in between rain showers ...it creates twice the work but I saw your comment about histamine build up.

So I will try and be brief...leftovers can trigger/cause a histamine cascade triggered by the tyramine content of the foods..

here is a nice overview of the tyramine/histamine connection on SFgate.

https://healthyeating.sfgate.com/foods-histamines-tyramines-1208.html

also here is an exhaustive list of foods that might overlap with your (histamine buildup) triggered by the tryamine content of foods to see if there is a possible connection.

https://fdnow.org/wp-content/uploads/2016/09/Tyraminelistpdf0916.pdf

Here is nice thread about this topic if you want to do more research on it.

or just search for tyramine on celiac.com

I hope this helpful but it is not medical advice.

Posterboy,

Posterboy Mentor
On 5/30/2019 at 4:22 PM, trents said:

I suspect the same thing, notme! There are times when I can eat something and it doesn't bother me and other times it makes me quite ill. I think there are a lot of variables here. One of them is how things are processed. There are several seed foods that give me no problem if they are washed and/or cooked. But they reliably make me ill if I consume them in raw, unwashed form.

I did one of those hemacult stool sample tests recently, or whatever they call them these days. It came back positive so I have a consult scheduled for that next week. A lot of things can produce blood in the stool. Everything from cancer to hemorrhoids to peptic ulcers to a burst diverticuli. But I wonder if there could be a connection between my recent episodes of nausea/diarrhea and the blood in the stool. Must be a very small amount, not enough to discolor the stool.

Trents,

are you taking aspirin???it might be  causing stomach bleeding...and why I stay away from it.

I feel your concern...I had the same thing happen a few years ago...and my stool was only clay colored. ..if it (stool) is black ...definitely follow up quickly with your doctor.

my bleeding went away as mysteriously as it appeared ...

good luck and I hope it is a harmless cause ...but it sounds like you have done your research ...I was most concerned when I saw spots in my undies...I am assuming it was a bleeding  polyp because they did not find the cause but I stopped taking a daily aspirin (for my heart) at that time and haven't taken it since afraid the bleeding might come back. ...and as I said it went away as mysteriously as it appeared.

who knows' if the aspirin was causing it or not ...but it seemed to be associated in my case.

I hope this is helpful but it is not medical advice.

Posterboy,

trents Grand Master

No, I do not use aspirin but do use other NSAIDs occasionally. I am on warfarin for a genetic blood clotting disorder and that, together with the damage to SB already caused by Celiac Disease, I am very careful to not use NSAIDs frequently. I do use them occasionally for ortho-related pain because they work so well and are non-narcotic. Acetaminaphen doesn't do much for me. 

notme Experienced
On 5/31/2019 at 6:06 PM, Posterboy said:

I have been in the hay field and haven't had time to keep up ..in between rain showers ...it creates twice the work but I saw your comment about histamine build up.

HAY posterboy!  <see what I did there??  :D  

I knew it!  you're outstanding in your field!!  :) 

that being said:  show of hands - who doesn't have google?  anybody?  anybody?  no?

o, and I just guessed about the histamines, I didn't do any research.  so, thank goodness.  


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Posterboy Mentor

Notme!,

It is true I have been working on my farmers tan... a little in between showers.

I have had hunches before (intuition) ....but they are only that anecdotally unsubstantiated reports.

I have told my personal story many times...but because of other moderators advised me I needed to substantiate my experience (story) etc. ...like Knitty Kitty I began siting sources so that others could also confirm/read the same research for themselves.

Many people don't know where (Or  have the time) to look to confirm what they are feeling ..only that they are not feeling well....

And now with me being in the hay field and a minor car accident I was involved in the last few weeks ....I am now in that position myself...I am still dealing with lingering whiplash symptom's ....and will investigate further if they (symptom's) don't clear up soon!

As for  you hunch here is the research on Histamines (Histadelia)...

orthomolecular.org/library/jom/2002/pdf/2002-v17n01-p017.pdf

This is not medical advice but it confirms a hunch I had a few years ago that most research is out there to be found. ..if people have time to look. ....

Which I don't have enough of right now ...to commit to the forum, farm and family...so you will get me in bunches (two or three post) between showers.

Doesn't the weather know it is not April ...right April showers' mean may flowers!

I hope it helps  you are someone else.

Posterboy of the hay field,

Posterboy Mentor
On 5/31/2019 at 6:06 PM, trents said:

No, I do not use aspirin but do use other NSAIDs occasionally. I am on warfarin for a genetic blood clotting disorder and that, together with the damage to SB already caused by Celiac Disease, I am very careful to not use NSAIDs frequently. I do use them occasionally for ortho-related pain because they work so well and are non-narcotic. Acetaminaphen doesn't do much for me.  

Trents,

If you are having Arithritis pain ...I highly recommend Vitamin D and Magnesium Glycinate/Citrate.

I had creaking bones in my late 20s and early 30's and taking Magnesium really helped my achy bones.

Also research (google) as Notme! established we all have it these days!

William Kaufman and Arthritis ...it will take 3 to 4 months to notice a difference but it can help.

I hope this is helpful but it is not medical advise.

Posterboy,

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?

    2. - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?

    3. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

    4. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

    5. - marion wheaton posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,408
    • Most Online (within 30 mins)
      7,748

    Angela VT
    Newest Member
    Angela VT
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.