Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hemp intolerance


trents

Recommended Posts

trents Grand Master

Our systems are all so different. Corn (and rice) are easiest on me whereas I know corn and corn products give lots of others issues.

Good suggestion, notme! about varying the diet to avoid histamine buildup. I've thought about that. I tend to get in ruts with my menus.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



notme Experienced

i noticed that I would eat something one day and it would digest well, no issues.  so, safe, right?  ate it the next day and my guts were like:  nope.  I already had histamine buildup on my 'oh, I might hafta watch out for that' radar.  so, for sh*ts n giggles, I started to experiment.  if I skip two days before I eat the same thing again, it is ideal.  I can get away with every other day, but not for long, lolz.  I freeze stuff just to make sure I have different foods to eat in between.  my husband is on the road half the week, so it's just me feeding me.  he is used to me cooking a full meal when he is home for him to eat and i eat something different I've been craving for 2 days, lolz

ie:  last night we made venison street tacos with sweet hoison onions, raw green peppers, feta, greek yogurt & mashed avocado w/lime on lil' corn tortillas.  I had bruschetta with fresh mozz and potato salad <both of those things leftover from Monday's picnic I had been dying to eat them before they were too old :D  - today I had the street tacos and they were super awesome.  no repercussions.  tomorrow i'm making cream of asparagus soup and shrimp toasts.  leftover cheeseburger went in the freezer for a grab n go when we go to friends' - wrapped in parchment paper first, then tinfoil & packaged in a ziplok so it is cooler friendly.  I can throw it on a grill, in an oven, or unwrap the tinfoil and nuke it if I need to.  

it's a little more planning ahead, but *ahem* regular bathroom breaks and very few 'mystery miseries' if ya get me ;) went on a looooooooong boat ride on Monday to the Land of No Restrooms and was perfectly fine.  

your agreeable foods may and probably are very different than mine, so just do whatever foods work for you.  I can not eat chocolate more than once per week but evidently, wine is fine, anytime (?) so, as you said, we are all different.  

hope this helps!!!   

I used the my fitness pal app to keep track of my food intake until I got used to remembering what I ate yesterday hahahahaa  ??

trents Grand Master

I suspect the same thing, notme! There are times when I can eat something and it doesn't bother me and other times it makes me quite ill. I think there are a lot of variables here. One of them is how things are processed. There are several seed foods that give me no problem if they are washed and/or cooked. But they reliably make me ill if I consume them in raw, unwashed form.

I did one of those hemacult stool sample tests recently, or whatever they call them these days. It came back positive so I have a consult scheduled for that next week. A lot of things can produce blood in the stool. Everything from cancer to hemorrhoids to peptic ulcers to a burst diverticuli. But I wonder if there could be a connection between my recent episodes of nausea/diarrhea and the blood in the stool. Must be a very small amount, not enough to discolor the stool.

Posterboy Mentor

trents and notme!,

I have been in the hay field and haven't had time to keep up ..in between rain showers ...it creates twice the work but I saw your comment about histamine build up.

So I will try and be brief...leftovers can trigger/cause a histamine cascade triggered by the tyramine content of the foods..

here is a nice overview of the tyramine/histamine connection on SFgate.

https://healthyeating.sfgate.com/foods-histamines-tyramines-1208.html

also here is an exhaustive list of foods that might overlap with your (histamine buildup) triggered by the tryamine content of foods to see if there is a possible connection.

https://fdnow.org/wp-content/uploads/2016/09/Tyraminelistpdf0916.pdf

Here is nice thread about this topic if you want to do more research on it.

or just search for tyramine on celiac.com

I hope this helpful but it is not medical advice.

Posterboy,

Posterboy Mentor
On 5/30/2019 at 4:22 PM, trents said:

I suspect the same thing, notme! There are times when I can eat something and it doesn't bother me and other times it makes me quite ill. I think there are a lot of variables here. One of them is how things are processed. There are several seed foods that give me no problem if they are washed and/or cooked. But they reliably make me ill if I consume them in raw, unwashed form.

I did one of those hemacult stool sample tests recently, or whatever they call them these days. It came back positive so I have a consult scheduled for that next week. A lot of things can produce blood in the stool. Everything from cancer to hemorrhoids to peptic ulcers to a burst diverticuli. But I wonder if there could be a connection between my recent episodes of nausea/diarrhea and the blood in the stool. Must be a very small amount, not enough to discolor the stool.

Trents,

are you taking aspirin???it might be  causing stomach bleeding...and why I stay away from it.

I feel your concern...I had the same thing happen a few years ago...and my stool was only clay colored. ..if it (stool) is black ...definitely follow up quickly with your doctor.

my bleeding went away as mysteriously as it appeared ...

good luck and I hope it is a harmless cause ...but it sounds like you have done your research ...I was most concerned when I saw spots in my undies...I am assuming it was a bleeding  polyp because they did not find the cause but I stopped taking a daily aspirin (for my heart) at that time and haven't taken it since afraid the bleeding might come back. ...and as I said it went away as mysteriously as it appeared.

who knows' if the aspirin was causing it or not ...but it seemed to be associated in my case.

I hope this is helpful but it is not medical advice.

Posterboy,

trents Grand Master

No, I do not use aspirin but do use other NSAIDs occasionally. I am on warfarin for a genetic blood clotting disorder and that, together with the damage to SB already caused by Celiac Disease, I am very careful to not use NSAIDs frequently. I do use them occasionally for ortho-related pain because they work so well and are non-narcotic. Acetaminaphen doesn't do much for me. 

notme Experienced
On 5/31/2019 at 6:06 PM, Posterboy said:

I have been in the hay field and haven't had time to keep up ..in between rain showers ...it creates twice the work but I saw your comment about histamine build up.

HAY posterboy!  <see what I did there??  :D  

I knew it!  you're outstanding in your field!!  :) 

that being said:  show of hands - who doesn't have google?  anybody?  anybody?  no?

o, and I just guessed about the histamines, I didn't do any research.  so, thank goodness.  


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Posterboy Mentor

Notme!,

It is true I have been working on my farmers tan... a little in between showers.

I have had hunches before (intuition) ....but they are only that anecdotally unsubstantiated reports.

I have told my personal story many times...but because of other moderators advised me I needed to substantiate my experience (story) etc. ...like Knitty Kitty I began siting sources so that others could also confirm/read the same research for themselves.

Many people don't know where (Or  have the time) to look to confirm what they are feeling ..only that they are not feeling well....

And now with me being in the hay field and a minor car accident I was involved in the last few weeks ....I am now in that position myself...I am still dealing with lingering whiplash symptom's ....and will investigate further if they (symptom's) don't clear up soon!

As for  you hunch here is the research on Histamines (Histadelia)...

orthomolecular.org/library/jom/2002/pdf/2002-v17n01-p017.pdf

This is not medical advice but it confirms a hunch I had a few years ago that most research is out there to be found. ..if people have time to look. ....

Which I don't have enough of right now ...to commit to the forum, farm and family...so you will get me in bunches (two or three post) between showers.

Doesn't the weather know it is not April ...right April showers' mean may flowers!

I hope it helps  you are someone else.

Posterboy of the hay field,

Posterboy Mentor
On 5/31/2019 at 6:06 PM, trents said:

No, I do not use aspirin but do use other NSAIDs occasionally. I am on warfarin for a genetic blood clotting disorder and that, together with the damage to SB already caused by Celiac Disease, I am very careful to not use NSAIDs frequently. I do use them occasionally for ortho-related pain because they work so well and are non-narcotic. Acetaminaphen doesn't do much for me.  

Trents,

If you are having Arithritis pain ...I highly recommend Vitamin D and Magnesium Glycinate/Citrate.

I had creaking bones in my late 20s and early 30's and taking Magnesium really helped my achy bones.

Also research (google) as Notme! established we all have it these days!

William Kaufman and Arthritis ...it will take 3 to 4 months to notice a difference but it can help.

I hope this is helpful but it is not medical advise.

Posterboy,

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      IBS-D vs Celiac

    2. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,336
    • Most Online (within 30 mins)
      7,748

    Jeffrey Yeres
    Newest Member
    Jeffrey Yeres
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.