Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Member Poll - Who Abstains From Other Foods Besides Gluten?


Jeepster

Recommended Posts

CMCM Rising Star
Patti, I use (and may have to modify that) a mix of buckwheat flour, tapioca flour, arrowroot flour and ground hazelnuts (you can use ground almonds, but they are high in salicylates and out for me). I find that makes a nice flour. I don't know if you can bake cake with that. But I use it to make crumbs (with lard and maple syrup) to make a nice apple crisp. It also works well for cookies, and pancakes if you add liquid (almond milk is nice, if you can tolerate almonds).

Potatoes are high in lectins AND salicylates, and I can't tolerate them at all, so can't use potato flour.

I confirmed the salicylate intolerance, by taking aspirin and eating foods high in them yesterday, and I am quite ill today as a result. Oh well, at least now I know.

Deb, your husband might be intolerant to salicylates (all the things he can't tolerate are high in salicylates, except for the cheese). Check out the link in my signature and see what you think.

Ursula

Ursula...I'm curious what kind of reactions you get from potatoes. I have trouble with them myself....the worst are mashed although I can't imagine why that would make a big difference. But mashed definitely upsets me more than a baked potato. And tomatoes can bother me....a small amount of raw tomato isn't a problem, but the cooked tomatoes do...like spaghetti really can give me a bad reaction. And the aspirin connection is interesting....I haven't taken aspriin for years because it would always upset my stomach. I never realized all these connections.

Carole


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 66
  • Created
  • Last Reply
sillyyak Enthusiast

I cannot eat potatoes or eggs. I get really bad pains and they just "feel heavy" in my stomach. I am also just about done with eating bananas. I can eat rice, which is good and rice pasta. I like quinoa because of its lightness. I am tending to eat lots of veggies, fresh and frozen and fresh fruit.

I like Kozy Shak pudding a lot They come in small manageable eatable portions and are a great evening snack. I am also now putting myself on a strict timed diet. I no longer eat anything past 9:00 p.m. I find that I wake up feeling much better and lighter.

Ursa Major Collaborator

Carole, potatoes will cause (within 24 hours usually) bowel cramps, bloating, gas and diarrhea (actually, they will cause a reaction similar to being glutened in me). Tomatoes cause awful migraines.

I haven't eaten potatoes in four years (well, with the occasional exception, knowing what to expect :blink: ). And of course, they used to be my favourite food (along with rye bread)!

I don't know why mashed potatoes are worse, but I've read somewhere else that they are. So, you don't appear the only one who has that problem. Maybe it is something you add?

Krispin (the owner of the site my Lectin link leads to) calls the nightshade family the 'deadly nightshades', because they are supposed to be especially toxic. And from everything I've read over the years, they aren't good for anybody.

Did you know that your body will convert cooked potatoes into sugar faster than white bread after eating them? I bet they're one of the biggest causes of type 2 diabetes. But since they're a 'staple' food, it's not politically correct to say that (well, I've never been politically correct, and I am blunt, due to Aspergers I can't help that).

CMCM Rising Star
Carole, potatoes will cause (within 24 hours usually) bowel cramps, bloating, gas and diarrhea (actually, they will cause a reaction similar to being glutened in me). Tomatoes cause awful migraines.

I haven't eaten potatoes in four years (well, with the occasional exception, knowing what to expect :blink: ). And of course, they used to be my favourite food (along with rye bread)!

I don't know why mashed potatoes are worse, but I've read somewhere else that they are. So, you don't appear the only one who has that problem. Maybe it is something you add?

Krispin (the owner of the site my Lectin link leads to) calls the nightshade family the 'deadly nightshades', because they are supposed to be especially toxic. And from everything I've read over the years, they aren't good for anybody.

Did you know that your body will convert cooked potatoes into sugar faster than white bread after eating them? I bet they're one of the biggest causes of type 2 diabetes. But since they're a 'staple' food, it's not politically correct to say that (well, I've never been politically correct, and I am blunt, due to Aspergers I can't help that).

That's interesting about potatoes....that's exactly the reaction I get. Not as bad with a baked potato, but as I said, mashed are killer for me. I haven't noticed tomatoes causing migraines for me, but it happenen enough when I would eat spaghetti with meat/tomato sauce....horrible stomach pain, burning. Of course, it could have been the pasta.....but I had eaten pasta in other ways without tomatoes and didn't get that. As much as I loved my spaghetti recipe, I just couldn't face eating it any more. I've also noticed that some foods affect me more in combination. As I mentioned, corn chowder...which is potatoes/corn, and I guess that would be a mega hit of starch converting quickly to sugar.

What are all the nightshades again?

Ursa Major Collaborator

The nightshades are potatoes, tomatoes, peppers (all kinds, including chili peppers and paprika) and eggplant.

And the reaction was not likely the pasta (unless it wasn't gluten-free), but the tomato sauce. Or you might be intolerant to the combination of meat and tomato, like one of my daughters (she is also intolerant to the combination of meat and potato, as well as sugar and wheat, she won't believe me that it might be more than just wheat).

When you are intolerant to combinations you can usually eat those foods three hours apart from each other. Mind you, in the meantime I believe that you really are intolerant to one of those (or both), but get a really bad reaction to the combination.

My combination was grain and fruit. Now I know that I can't tolerate any grains, and the same goes for most fruits. Alone I didn't clue in to the reaction (especially because I was on codeine 24 hours a day for 'fibromyalgia' pain, which has pretty much gone away after going off salicylates). But the combination would be a killer, and cause obvious symptoms like huge hives all over, and being terribly itchy for a couple of days.

Guest BERNESES

I avoid gluten (of course), not much dairy (I will occasionally have mozarella, parmesan or cheddar cheese and sometimes I bite the bullet and have ice cream- the reaction differs every time- if I've gotten gluten in my system, bad news!).

I'm not a big soy fan- makes me queasy.

Nightshades definitely aggravate my arthritis so i eat them in small amounts (and usually pay but God- I LOVE Mexican food). Not lots of red meat although this might change as I'm low in iron and very fatiguede right now.

No vinegar except apple cider. I may as well have eaten a slice of 7 grain bread.

No alcohol except white wine and even that lately has left me feeling wrecked after a glass or two. I miss vodka but right now it's just not worth it!

Peanut butter and chocolate- my two favorite things in the world- are currently not agreeing with me :angry: Boo-hoo!

drewsant Rookie

I'm allergic to wheat, soy, fish of all kinds, tree nuts, and chicken. I'm pretty much gluten free. It's the soy I'm having a hard time with. Soy eliminates chocolate which is one of my favorite things, as well as anything that has been fried, even tortilla chips, and things I never would have thought of. I've been on what I call my "allergen-free diet" for about 2 weeks. Really not much change yet, but I got a stomach virus that caused a lot of problems for about 3 or 4 days, so I'm still waiting to see if it helps.

The fish and nuts and wheat and soy cause stomach cramps and diarrhea. Not sure about the chicken. I love chicken, but haven't eaten it since I was told about the allergy. I might have to eat some and see what happens.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest Zmom

my son: gluten-free and no dairy,soy,pork,poultry,rice,citrus(including tomatoes),peas,nuts,navy beans, bananas,grapes...

Me:gluten-free. I can only eat corn pasta (new) colman beef,land o'lakes eggs, chebe bread mixes (dairy free,gluten-free) some hormone-free chichen, occationally amy's marinara sauce, and spectrum canola mayo.

The brand of eggs makes a difference with my son.I guess its what they feed the chickens.

Went gluten free march 2005 but it was not until I gave up all rice products that my fibromyalgia improved 80%.-all the rice products had been certified gluten-free.

traveljunkie Rookie

I love these polls! :)

Myself: gluten, dairy, melons, citrus fruits, juice, beef, chicken, pork and processed foods

My son: gluten, dairy, all meat and seafood

My son and I are the gluten intolerants in the house, but my hubby and younger son, pretty much eat what I cook them and that's my diet! :P

  • 1 month later...
danikali Enthusiast
Hi- Hope you don't mind that this is a question that is off the topic but I was curious as to your diagnosis which is just so recent.

Did you ever have blood work done for celiac that came back negative. What did enterolab do? Dr. Green did genetic test? I am curious ad your info caught my eye and I am thinking about my two sons who both have symptoms but had blood tests that show negative. I'm trying to decide which test to do next.

regards mj

Okay, I know this is an old old post, but I was just reading through it and didn't realize that you were asking me a question! I'm so sorry..

So, first, I did enterolab, which showed gluten sensitivity. Then I had blood drawn with a different GI and it came back negative. She also did the biopsy which she said was negative until Dr. Green looked at it and said that it was positive. He also tested the gene and I have DQ8 (a main Celiac gene). So that is what has been established now. I go back to see Dr. Green in March or April and I am going to a nutritionist on Tuesday to help me figure out my other intolerances.

You said that your son's tests came back negative. Well, that could totally mean nothing, as mine showed nothing. Maybe you should try enterolab first before getting them a biopsy though because depending on how young they are, it's not really a pleasent experience.

Hope my reply isn't too too late. Probably is, and I'm sorry.

corinne Apprentice

I tried just gluten free for a while, but symptoms kept getting worse so I finally started with just carrots and lamb and have been slowly adding foods back in. So far all grains including wheat, oats, corn, rice and quinoa, potatoes, beans, soy, fish, shrimp, dairy including cheese and caffeine and raw fruits or vegetables give me diarrhea etc. Right now, I'm eating canned peaches, diluted grape juice, any meat, well cooked carrots, zucchini and beets. Hopefully, things will settle down with time and I can expand my diet.

pixiegirl Enthusiast

On top of gluten being out, I can't have tomatoes, peppers, green beans, squash or peanuts, I'm quite allergic to all of them. I have mild reactions to: lettuce, apple banana, beef, chicken, corn, egg, orange, potato, soy, tuna yeast, these I can eat infrequently and I will have a mild reaction.

Susan

Carriefaith Enthusiast

I am allergic to milk so I also avoid dairy products. I read ingredients labels for dairy products just like I do for gluten.

wolfie Enthusiast

For me along with the gluten, I can't tolerate onions (whole or spice), garlic (whole or spice), peppers, seeds, dairy (although I will eat cheese and take a Lactaid) and now soy (that seems to be in large amounts though..like a glass of soy milk). Some fruits have given me issues since going gluten free too...bananas, pears, apples. I am eating a very bland diet right now.

Kim

slpinsd Contributor

I avoid lactose since before my diagnosis, since the reactions were obvious. Now that I have had other IgG intolerances tested, I avoid:

Bananas

Pineapple

Sesame

Egg whites and yolks

Sugar

Asparagus

Casein

Yogurt

Milk

Cottage Cheese

Blueberries

Cranberries

Lemon

Orange

Coffee (even decaf)

By experience, I also avoid High Fructose Corn Syrup and spicy foods.

CMCM Rising Star

Besides gluten and dairy, I pretty much avoid soy even though I didn't test postive to it. I also get sick from potatoes (which I love) and cooked tomatoes bother me sometimes, although I don't think raw ones do. I also avoid fried things.

covsooze Enthusiast

I'm awaiting my York test results, and am just wondering, have those of you who've done IGg testing and eliminated the foods you were positive to found a real difference? My son'd paediatrician, who specialises in allergies and food intolerances, says that he has been unable to find any scientific research that definitely links IGg with food intolerance - he was very open to doing so, so I'd be interested to know if there's any 'proof' out there.

At the moment, apart from being gluten-free, I'm also DF, and don't eat tomatoes. Trying to avoid rice also. Anything fatty or spicey gives me problems. I'm allergic to blue cheese. I have my doubts about a few other things as well, but am waiting for my test results in the hope that will make things a bit easier...Sadly, I am too much of a foodie to bear starting with one food and adding others in gradually, although it may yet come to that.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      My Journey Continues some notes

    2. - Cecile replied to Cecile's topic in Related Issues & Disorders
      3

      Symptoms

    3. - Jmartes71 posted a topic in Introduce Yourself / Share Stuff
      0

      Not validated

    4. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      4

      New issue

    5. - Jmartes71 replied to chrish42's topic in Doctors
      3

      Doctors and Celiac.com

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,194
    • Most Online (within 30 mins)
      7,748

    TBH
    Newest Member
    TBH
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I have increased my vitamin intake Vitamin B Complex plus 2 Thiamax, NeuroMag, Benfotiamine with breakfast. I continue reading and watching gluten free items that I eat. Breakfast is Bobs Redmill gluten-free oatmeal with Chobani zero sugar yogurt a banana and blueberries. Lunch since im at a deli gluten-free is hard to come by so I stick with turkey with gluten-free Promise bread. Dinner varies like gluten-free pasta, tacos, chicken, sausage, meat etc. rice or take out from gluten-free places. I have decided to stay away from gluten-free pizza as I feel I felt weird with it unless its store bought frozen. I am going to try to make my own gluten-free bread, Bagels. I have been good with baking gluten-free treats like cookies, muffins. Snacks if its not fruit, veggies I grab a protein bar or chocolate guilty pleasure reeses, hersheys, York PP. I am going to start to use my fitness pal app to track what I eat and note when I feel off to see if I can pinpoint if a trend of a certain gluten-free food is a culprit. I noticed once in a while I feel a little bloated, gassy that I think is from the pizza so I am going to avoid it and continue narrowing it down. I have been doing very well and I have learned even if you think you are doing everything 100% gluten-free eating it can sneak in without you knowing. This year is more traveling which im afraid of but have already looked into gluten-free places in Nashville which they have and back to Aruba I went last year and have the gluten-free places already selected. Most restaurants I have been to have been very helpful with what to stay away from to avoid CC. If a place states they don't have any gluten-free the I stick with a salad or when I took my kids to breakfast as much as I miss the breakfast this place serves I played it safe with yogurt and a fruit bowl so at least my kids were happy to go there again. Local farmers market has great gluten-free items that I treat myself to like different types of breads, baked goods. My journey continues...
    • Cecile
      Thank you Scott for your wonderful info. I will pry my Doctor for more extensive blood testing. I appreciate your time. 
    • Jmartes71
      After waisted time of new care team, yet again EXHAUSTED saw new gi today in Modesto, though all my ailments im not getting any kind of concern of me being celiac and sentive to just about everything since menopause. Dr daid why don't I go see you guys because my blood shows zero for celiac. I told him im glutenfree since 1994 by colonoscopy with biopsy positive celiac sprue by GI.Its RIDICULOUS when im bringing in material from this site of knowledge as well as the autoimmune institute,and  there's zero interest on their part.Medical IS causing me depression.Im view as a disability chaser, IM STILL RECOVERING from being a bus driver that im still healing and having more issues, now I may have multiple sclerosis or meningioma. Ive reached out, wrote letters, NOT feeling well. This is inhumane. 
    • Jmartes71
      I was taking medicine for sibo but it was not agreeing with my stomach at all.Was on gabapentin but it amps me up.I was taking in morning because it wasn't allowing me to sleep.This has always been an issue with medicine and me.Even going to dentist, the good shot that numbs you once, I can't take because it makes my heart beat fast and I  get the shakes.I have to take the crappy stuff and get injected always more than 4 times always.Its infuriating 
    • Jmartes71
      I showed one doctor I went to once because completely clueless of celiac disease and yes that one was connected to a well known hospital and she said oh thats just a bunch of people that think they are celiac coming together. I said um no they have doctors and knowledge behind what is being written. So bay area is Downplaying this site! SADLY 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.