Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Diagnostic Parameters?


tuckersmommas

Recommended Posts

tuckersmommas Newbie

Lots of questions... I got my labs back and it was kind of hard to hear the nurse because my son was jibber jabbering. So, she said my labs were negative. But I have a general distrust of dr's and I had a strange gluten reaction, so I was trying to look up the "normal" ranges and I must be googling the wrong terms or something. Anyway, here are my numbers:

tGg 3.7

Anti-Gliadin IgA 9.4

Anti-Gliadin IgG 21.6

(I was tested 2 weeks before going gluten free, though I had cut back)

On to my gluten reaction... my son and I are gluten free and have been since mid-October (he has sensory integration disorder and I believe he is on the autism spectrum so we're trying dietary approaches). When I went off gluten, that first week I got a really strange symptom... I would get these head rushes or head "rattles" where it felt like I was sort of underwater for a second (or kind of like when you yawn). They only last a few seconds, were sporadic and after about a week of eating gluten free, they went away. This is the same thing that happened to me when I withdrew from Zoloft 3 years ago - the exact same withdrawal symptom (only then it went on for months after I'd taken my last dose). Okay, so over Thanksgiving weekend, I threw caution to the wind and had gluten (pot stickers to be exact - yum). I didn't have any gastro symptoms, but the next day, I got the brain "rattles" again which started the next day and went on for that whole day and then I felt kind of foggy for a few days (after that meal, I didn't eat anymore gluten and haven't since).

Another thing that encouraged me to test was that my paternal grandmother died at 49 from what my father terms "a very rare kind of colon cancer" which the doctors described to them as looking like "hamburger wrapped in tissue paper". He also said she was sickly for her whole life so I'm leaning towards the possiblity that she may have had celiac disease, but it will be nearly impossible for me to find out for sure (family history is sketchy, not a very close knit side of the family).

Anyway, the ranges would be helpful, but I know they are not a be all end all. I'll get answers I think when I do another food trail, but I haven't done it yet (I'm kind of scared).

Thanks in advance,

~ danielle


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

You need to find out the standard ranges from the lab who did your blood work. Different labs have somewhat different methodology, and hence have different reference ranges.

tuckersmommas Newbie

Good to know, I'll request a copy of the labs tomorrow. Thanks :-)

~ danielle

You need to find out the standard ranges from the lab who did your blood work. Different labs have somewhat different methodology, and hence have different reference ranges.
tuckersmommas Newbie

Okay... so I got the lab reports... this is their parameters which are the same for all three tests:

negative is <20, weak positive is 20-30, positive is >30

Anti-TTG AbIgA 3.7

Anti-Gliadin AbIgG 21.6 (High)

Anit Gliadin AB IgA 9.4

The dr said the high was fine, something about them balancing each other out. But high is high, even if it's weak I would think that's in indicator of something. I'm not interesting in having celiac disease, but if it's something I should pay attention to, I don't want to ignore it either.

Any advice would be great...

~ danielle

tarnalberry Community Regular

did they do a total IgA?

the tests that are low are IgA ones, and a fair (though not large) number of celiacs are IgA deficient, so you can't really tell anything about the IgA tests without knowing if you produce a normal amount of IgA otherwise.

tuckersmommas Newbie

would that still be valid now that I've been gluten-free for 3 months (with one infraction midway through)?

what about the (weak) positive IgG? does that mean anything?

~ danielle

Rachel--24 Collaborator
would that still be valid now that I've been gluten-free for 3 months (with one infraction midway through)?

You can still have the total IgA test....it wouldnt be affected by the diet.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    2. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    3. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    4. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    5. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,156
    • Most Online (within 30 mins)
      7,748

    Shrub
    Newest Member
    Shrub
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.