Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Rast Or Blood Test Question


kimber

Recommended Posts

kimber Enthusiast

Hi

Since everyone here is so knowledgeable..i thought i would ask for your opinions regarding the RAST or blood test for allergies

My now 26 mnths old displays SOME signs of celiac disease...but not all...

The Gi ran blood work, don't know the exact info..but all came back fine

When I explained to our ped how ds was behaving she said sounded like it 'could' be celiac but he didn't have a weigh issue so she brushed it off

He has always been small..once he was around the 8th percentile for height and weight, but by trying to feed him ALL day and eliminating gluten..he's climbed to the 25th for height and weight

The ped gave us a slip to have DS allergy tested for wheat, dairy, soy and eggs...I hate ot put him through this if the results will be misleading or inconclusive...

Did your child have a blood test/RAST before being diagnosed with celiac and what were the results?

Thanks!

he is now on a soy/dairy/gluten free diet and doing well..but I have to avoid all of these foods if we don't have to because it really limits his diet

Thanks for any feedback, kim


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Kasey'sMom Enthusiast

Hi Kim,

My dd is soy, dairy, egg & gluten free.....amoung other foods. :) She had both the RAST and scratch testing done. We also had the YORK Food Scan for Igg, delayed allergies. She had allergy testing done because we thought she was allergic to wheat. She's not had any growth problems either. After the test came back negative for wheat we had the Celiac Blood work done and her anti-gliadin antibodies were very high. The scratch testing didn't show any food allergies but it did show inhalent reactions. The RAST testing showed an allergy to egg, which we've now eliminated. The accuracy of allergy testing depends on the schooling and preference of the doctor. Our allergist doesn't think that RAST testing is as accurate but our ped. doesn't think skin testing is accurate as the RAST for food allergies.....you get the jist!! :huh: Later we did the YORK test because my dd continued to have skin issues.

I'm really glad we did the RAST test. At first I didn't know how I would handle cooking with so many restrictions. (She had tons of Igg food reactions.) However, we've gotten really creative and now it isn't overwhelming. I do have hope that as her gut heals and the immune system strengthens, she'll be able to add some foods back into her diet. :)

kimber Enthusiast

Thanks so much for your response....

I've never heard of the YORK scan, I'll have to ask my ped/GI about this...??

I'm still undecided wether or not I should take him for the RAST blood test...

Like I mentioned he is doing well gluten/dairy and soy free...

The only thing I'm not really sure about it egg?

I also think our Gi did the b/w for celiac...but I'll need to ask and double check

Thanks again

Oh,,,,how old is your dd and can u give me an idea of some of her fav foods?

DS is very picky and will eat some fruit but NO veggies!

He lives on:

oatmeal

envirokidz cereal/safe cookies

turkey burger

hamburger

sausage

corn

rice pasta

apples

banana

Safe FF and tator totts

Thanks again, Kim

Hi

Me again :)

Just curious what symptoms your dd had that prompted the celiac blood work, if weight was not an issue

Thanks

Kim

zachary and ava's mom

chrissy Collaborator

kim, my daughter had blood testing done for food allergies. her type of test was called immunocap testing, it is supposed to be the most current and reliable testing at this time. she came back negative for food allergies. we ran the celiac screen because she had some suspicious rashes, and it came back positive. funny thing is, as the doctor debated whether or not to run a celiac screen on me, he decided that if i came back positive for allergies to some of the gluten grains, he would run a celiac screen----well, he must not totally understand celiac, because my daughter had no food allergies even though she does have celiac.

christine

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    2. - Scott Adams replied to Aretaeus Cappadocia's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

    3. - Scott Adams replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      nothing has changed

    4. - Scott Adams commented on knitty kitty's blog entry in Thiamine Thiamine Thiamine
      1

      About Celiac Remission

    5. - Scott Adams replied to TheDHhurts's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      need help understanding testing result for Naked Nutrition Creatine please

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,190
    • Most Online (within 30 mins)
      7,748

    Atl222
    Newest Member
    Atl222
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
    • Scott Adams
      Gluten testing is normally reported in ppm (parts per million), which is equivalent to mg/kg, not micrograms by itself. A result of <0.025 mcg only becomes meaningful if you know the sample size tested (for example, mcg per gram or per kg). If that value represents <0.025 mcg per gram, that would equal <25 ppm, which is above the gluten-free threshold; if it’s <0.025 mcg per kilogram, it would be extremely low and well within GF limits. Without the denominator, the result is incomplete. It’s reasonable to follow up with the company and ask them to confirm the result in ppm using a validated method (like ELISA R5)—that’s the standard used to assess gluten safety.
    • Scott Adams
      Medication sensitivity is very real for many people with celiac and other autoimmune conditions, and it’s frustrating when that’s brushed off. Even when a medication is technically gluten-free, fillers, dose changes, or how your nervous system reacts—especially with things like gabapentin—can cause paradoxical effects like feeling wired but exhausted. The fact that it helped bloating suggests it may be affecting gut–nerve signaling, which makes sense in the context of SIBO, but that doesn’t mean the side effects should be ignored. You’re carrying a heavy load right now with ongoing skin, eye, and neurological uncertainty, and living in that kind of limbo is exhausting on its own. It’s understandable to feel overwhelmed and discouraged when systems and providers don’t meet you where you are—your experience is valid, and continuing to advocate for yourself, even when it’s hard, really does matter. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.