Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Positive Deaminated IGG in 4 yo


turquoiseocean

Recommended Posts

turquoiseocean Newbie

My then 4 yo son was diagnosed celiac by naturopath due to 38 on Deamidated IGG test. He was neg for Deamidated IGA, TTG IGA and TTG IGG. He had a in range for Immunoglobin A. As a follow up, I took him to a Pediactric GI who scoffed at the testing that was done by the ND and said he did not have celiac after he retested with TTG A and G and it came up negative. He said he wouldn't so an endoscopy on a child with the test result and the symptoms he had at the time (which are now worse). A year and a half later and my son is having multiple symptoms, including dark circles under eyes, and chronic stomach aches and head aches to name a few. Are there any opinions that these deamidated tests are "junk"? Should I relax about Celiac or pursue this again?

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Welcome to the board. No the test your Naturopath did is not junk. Get a second opinion. You may want to get a copy of the positive test that was done and bring it to the appointment. If possible do not tell the second doctor it was ordered by a Naturopath. You should request a full celiac panel along with vitamin and mineral testing. I am assuming that your son is not gluten free. That is a good thing if that is the case because tests will be negative if he is gluten free. There is a high rate of false negatives in children his age so that he showed a positive on a test that is specific to celiac and quite reliable is significant. Undiagnosed celiac in children can impact growth, mood and even learning. I hope a doctor who is more celiac savvy can help you. If you have a Celiac Support group in your area they may be able to assist in finding a competent ped or ped GI.

cyclinglady Grand Master

I am so sorry to hear about your son.  Your best bet is to use the search box.  Type in “DGP IgG”  and see various posts about this topic.  Here is a great example (and one that supports that you can just have a positive DGP IgG and still have celiac disease).    Be sure to read the entire thread:

Me?  I test positive to ONLY the DGP IgA and I have had the entire celiac panel run several times.  I am biopsy-confirmed and on a repeat biopsy (after five years of being gluten free) revealed complete healing.  

Do not rule out celiac disease.  Make sure your son is on a full gluten diet 8 to 12 weeks prior to testing (blood).  Much less for the endoscopy.  (Maybe that was an issue when the last GI tested?) Find a celiac-savvy Ped GI and research as much as possible.  

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,170
    • Most Online (within 30 mins)
      7,748

    piloc39217
    Newest Member
    piloc39217
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • ValerieC
      Does anybody know of a guide that ranks reevaluates universities and colleges in terms of their accommodation of celiac disease or food allergies?   Thanks in advance for any leads! Valerie 
    • thejayland10
      thank you, i have been doing that the last few weeks and will continue to do so. I had not had my ttg iga checked since I was diagnosed 14 yrs ago so I am not sure if they ever dropped below the 15-20 range.    all my other labs are completely normal but I am concerned that this may be signs of refractor celiac or something else since I'm so careful with gluten-free diet 
    • Scott Adams
      Around 9% of celiacs cannot tolerate any oats, even gluten-free oats. It might be worth eliminating them for a few months, then get re-tested.
    • thejayland10
      I only eat certifed gluten-free products but a lot of which are processed. Could there be trace gluten in those or is that very unlikely? 
    • Scott Adams
      For people with celiac disease hidden gluten in their diets is the main cause of elevated Tissue Transglutaminase IgA Antibodies (tTG-IgA), but there are other conditions, including cow's milk/casein intolerance, that can also cause this, and here is an article about the other possible causes (you may want to avoid oats):    
×
×
  • Create New...