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Chest Pain


Karina

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Karina Explorer

Hey all!

I have been having chest pains for about 7 mos. now. In fact, they started about the same time the GI symptoms from my celiac disease started. At first, I assumed indigestion, but then I thought it should be checked. I mentioned it to my PCP and he said he thought it was costochodritis (inflammation of the rib cage area). I mentioned it to my GI guy and he said he didn't know, but when he did my endoscopy he didn't say anything later about reflux, so I'm wondering if that is ruled out now. It has gotten worse lately, and I have a new PCP so I asked her about it and she ordered some blood work and I will have an echocariogram in June. My EKG was perfectly normal. I am only 30, with no big family history for cardiac problems, but I read somewhere that celiac disease can be involved with cardiac problems, so now I am a little nervous. I do get short of breath when I do certain activities, but not others (like I get SOB when I climb the stairs). However, I have read about others here having heart palpitations and shortness of breath as well, and I wonder if it just from an underlying nutritional deficiencies. Also, if it is costochondritis, I wonder is this typical in celiac disease, since a lot of other aches and pains are typical of celiac disease. Today is my first day to be gluten free (no obvious gluten), in a couple weeks I will move to phase two where I really search for any hidden gluten contamination (toaster, etc.). I hope this diet makes me feel better and healthier. I am so looking forward to not having constant health issues--I hope that can happen for me. Anyway, if anyone has experienced similar chest pain I would love to hear about it, and what you did.


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Rick1254 Newbie

Have you had a stress test? Is your pain similar to angina?

Rick

travelthomas Apprentice

Hi Karina,

I too was having chest pains all the time this winter down in the Yucatan. So when I got back to the States I cut eggs, and other heart problem foods out of my diet. Being I

Karina Explorer

Rick,

I have not had a stress test, and even though I am a nurse I cannot tell you if my pain is like angina, b/c I have never felt it before, and many of my patients have had atypical angina--so I guess it could be, although I do not get chest pain from exertion, but I do get short of breath on exertion.

Thomas,

Since I am a newly diagnosed celiac, I do think it could be related to malnutrition. I have only been gluten-free for two days and today I ate a pretzel out of habit :o . I suspect and hope that much of the crazy stuff that goes on in my body will reverse on a gluten-free diet. My hope is that it is not too late in terms of irreparable damage to my heart or any other organ for that matter. :unsure:

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    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
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      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
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      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
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