Suggested Celiacs Disease

[AdriE]

I went and had a scope done at the first of this year and the results showed sever gastritis, two ulcers and they suggested celiacs disease. He said that they were not going to diagnose me with celiacs because it only suggested. What does that even mean?? I have been gaining weight ever since and still having stomach problems. My blood work shows malnutrition.. I know I should try a gluten free diet but it's hard to stick to when everyone says that I haven't even been diagnosed with it.  

[cyclinglady]

I am not a doctor but might mean the pathologist could not say for sure that it was celiac disease as many illnesses can cause small intestinal damage.  To help confirm, you just need a complete celiac disease blood panel.  Ask your doctor to run the panel before you even consider going gluten free.  All celiac testing requires you to be eating gluten or the tests will be negative.  

You should also know the cause of your Gastritis.  Most often it is due to H.Plylori.  You should get your records and maybe see a different GI.  

https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/

[GFinDC]

There are several antibody tests that they can do for celiac disease.  Ask you doctor for the full celiac disease test panel.  The antibodies are usually the first test done.  Then they do an endoscopy and take biopsy samples of the small intestine lining.  They check the biopsy samples with a microscope to see if there is celiac type damage.  Your doctor can tell you if they took biopsy samples for the small intestine or not.

[AdriE]

On 11/3/2019 at 4:35 AM, GFinDC said:

There are several antibody tests that they can do for celiac disease.  Ask you doctor for the full celiac disease test panel.  The antibodies are usually the first test done.  Then they do an endoscopy and take biopsy samples of the small intestine lining.  They check the biopsy samples with a microscope to see if there is celiac type damage.  Your doctor can tell you if they took biopsy samples for the small intestine or not.

When I did my scope they were not looking for celiac desease but they took some biopsys and there was some damage but just suggested celiac so they didn't diagnose it. I have went and seen a different doctor that knows much more about celiac and he will be preforming a scope next week. He said there are alot of blood tests that need to be preformed and most of the time they are not accurate so he would rather do a scope and biopsy to see if anything has changed. 

[GFinDC]

The usual process is to do both the blood antibodies tests and the endoscopy.  The antibodies can show the immune system is reacting to gluten.  The endoscopy can show that the antibodies are actually attacking the small intestine and causing damage.  The antibodies can also attack other parts of the body, like the skin, nerves, liver etc.  As long as you are still eating gluten it makes sense to go get the antibodies panel done.  If you have positive antibodies and you have small intestine damage then you have celiac.

Have you tried giving up dairy?  Celiac can make it hard to digest dairy.  So eating dairy can cause bloating, gas and diarrhea.  It won't affect your celiac tests if you stop dairy now.  After some months of healing some people can eat dairy again.

Celiac can also cause malaborption.  So that would explain your malnutrition.

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https://www.cureceliacdisease.org/faqs/

Q

 

What common nutrient deficiencies might an adult experience prior to diagnosis?

 

Iron and Vitamin D are the most common deficiencies, but some present with deficiencies in B12, copper, folate, magnesium, niacin, riboflavin, and/or zinc.Nutrient deficiencies associated with celiac disease are due to intestinal damage caused by protein in wheat, rye, and barley. In most cases, nutrient deficiencies that were caused by damage from celiac disease will naturally resolve as your intestine heals. Many gluten-free dieters choose foods that are not fortified with vitamins and minerals like their gluten-containing counterparts. Thus, we suggest a general multivitamin to prevent against nutritional deficiencies. May, 2017