Okay, Guys, Need Your Input On Something.....

[ravenwoodglass]

Thanks Guys!

The liquid iron was the first we tried. I am eating liver till it is coming out of my batuzzis!!! She also wrote on the note to the specialist:

"despite p.o. elemental iron, is ti time for systemic iron?"

I also have been chronically anemic since I was a child. I can remember making weekly visits to a doctor when I was little and getting my finger pricked all the time (I guess that's how they tested it for kids??)

Hugs.

Karen

How are your B12 levels? At my worst my iron and B12 were low but the B12 was lower. After sublingual B12 supplements it was easier to get my iron back where it should be. Don't know if it would apply for others but it helped my brain fog and fatigue quicker than I thought it would.

[Canadian Karen]

I just heard from the specialist's office:

He wants me to continue with the oral iron supplements for the time being.....

I swear, sometimes you feel like you are just banging your head against a wall....

Karen

[jenvan]

Karen... A suggestion I always take things into my own hands or insist when need be. Perhaps your doc is stubborn...I'm not sure. When my doc said to continue the pills after a long time on them with no results, I insisted on seeing a hematologist to get the infusion. Once I got to the hema., she totally agreed. Anywho, I can't remember how long you have been this way...but if you are refractory, you can probably take pills till you are blue in the face w/o results. No villi, no iron. Just a thought

[Canadian Karen]

I shouldn't have much of a problem getting a referral to a hematologist since I was supposed to go to one anyway for another test, and I have been procrastinating on that one.

Both my brother and my father have something called "lacking Factor 5", whatever that is, and all members of the family are supposed to get tested for it. Dad's condition is actually so severe that the medication he takes for it is rat poison (Warfarin, something like that.....). Anyway, I was supposed to go to brothers hematologist for the blood test. I will work on getting in to see him.....

Karen

[mommida]

I think Jen has given you the best advice here. Most people on iron supplements get the big "C". You can't be absorbing any of it.

L.

[jenvan]

I have a friend with that disease Karen. Glad you're going to try the hema. Let me know how it goes!