Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Here: Gluten-free Toddler With Dairy And Nut Allergy


tigerlily

Recommended Posts

tigerlily Newbie

Hi, I'm new here.

My 2-year-old daughter EDEN has recently started on a gluten-free diet ( 3 weeks ago) after she had suffered from constant diarrhea for 6 weeks (lost 5 lbs.) and was very miserable. Within 2 days, she was a different child altogether!!! She's much happier and so active now, unbelievable.

The blood test came back negative but she will have a biopsy in the near future.

My challenge with her diet is that she also has a dairy and nut allergy...and am I reading labels here or what! I think I know most of them by heart already....

Nice to meet you all!

Vanessa.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dlp252 Apprentice

Hi Vanessa, welcome!

Kasey'sMom Enthusiast

Welcome to the forum!! My dd is gluten-free/gluten-free/NF as well.

Glad to have you here. :)

RiceGuy Collaborator

Does the nut allergy include peanuts (they aren't actually nuts)? If so, there is a peanut butter substitute you might like to try. I can eat peanuts so I have not tried it, but others here say it's good: Open Original Shared Link

What about casein, lactose, and whey? These are found in lots of gluten-free stuff. I'm guessing you've already been watching for that though. There are a lot of dairy/lactose/casein free favorites mentioned on the board, so search around or ask. I'm sure you'll get plenty of suggestions.

Glad to know your daughter is feeling better :)

elfkin Contributor

Hi! Wow, I can relate!

My toddler is celiac, we also carry an epipen for a peanut allergy, and he is lactose intolerant. It is a shame that so many gluten-free products also have nuts or are processed on shared equipement with peanuts. He is also not supposed to have tree nuts and fish. They will test him soon (at our next visit), but the doc didn't want him to try those at home! Hang in there! I just had to let you know that you aren't alone. :rolleyes:

tigerlily Newbie
Hi! Wow, I can relate!

My toddler is celiac, we also carry an epipen for a peanut allergy, and he is lactose intolerant. It is a shame that so many gluten-free products also have nuts or are processed on shared equipement with peanuts. He is also not supposed to have tree nuts and fish. They will test him soon (at our next visit), but the doc didn't want him to try those at home! Hang in there! I just had to let you know that you aren't alone. :rolleyes:

Thanks!!! Glad I'm not alone.

Vanessa.

Does the nut allergy include peanuts (they aren't actually nuts)? If so, there is a peanut butter substitute you might like to try. I can eat peanuts so I have not tried it, but others here say it's good: Open Original Shared Link

What about casein, lactose, and whey? These are found in lots of gluten-free stuff. I'm guessing you've already been watching for that though. There are a lot of dairy/lactose/casein free favorites mentioned on the board, so search around or ask. I'm sure you'll get plenty of suggestions.

Glad to know your daughter is feeling better :)

-----------------------------------------------------------------------------------------------------------------------------

No casein, lactose or whey - nope!!! She'll be sick straight away if she has any of those. She's okay with peanuts (they're legumes aren't they?) but I'm not giving her any, just in case! But a peanut butter substitute might be an idea, just to add some new flavors to her diet. THANKS.

Vanessa.

Eeyorific Rookie

Hi Vanessa,

Welcome! So Happy to hear that the diet is helping your daughter! My son would have 20-30 diarrheas daily prior to going gluten-free. I can't tell you how many hospital stays we had to endure! It's such a blessing to be able to see your child growing and healthy after going gluten-free.. especially if the tests work against you. At that point, you simply do what's best for your child inspite of the test results.

Which reminds me.. you mentioned she will have a biopsy in the near future. There is a chance that her being gluten-free prior to the biopsy, it could skew the results. I wouldn't wait too long.

Dealing with other food allergies and intolerances can be most frustrating. In addition to being Celiac, Matthew is also intolerant to all dairy and corn. Also refined sugar is a no-no for him. We find the corn very difficult. Not only is it in most things that are gluten-free, but it's also in most every medication, exc...

As you said.. all you can do is read, read, read!

God Bless!

Kristie

Hi, I'm new here.

My 2-year-old daughter EDEN has recently started on a gluten-free diet ( 3 weeks ago) after she had suffered from constant diarrhea for 6 weeks (lost 5 lbs.) and was very miserable. Within 2 days, she was a different child altogether!!! She's much happier and so active now, unbelievable.

The blood test came back negative but she will have a biopsy in the near future.

My challenge with her diet is that she also has a dairy and nut allergy...and am I reading labels here or what! I think I know most of them by heart already....

Nice to meet you all!

Vanessa.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



redheadheather Explorer

My son also is allergic to nuts [not peanuts] and was allergic to milk and soy as a baby. Just always looking for new and exciting meal ideas with those "restrictions" if you will... what are some things your child eats? DS is 6 1/2 now. [school lunches are the biggest deal right now]

Thanks!!

tigerlily Newbie

Corn! Oh no!!!! I can see that that would be a major challenge!!! Do you give him things that are mainly rice-based then?

With us its the nuts: most things that are dairy- and gluten-free are guaranteed to contain nuts!!!

Eden won't eat any (gluten-free) cereals nor drink any rice milk. Sometimes she will sip some soy milk.I have put her on a Calcium supplement. But she likes soy desserts.

She likes savory stuff and cookies as well as all fruit.

I think we will have to put her back on GLUTEN in order to get any results from the biopsy.

Is there anybody on here who has had a biopsy or whose child has had one? I would like to find out more about it BEFORE she has it.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,168
    • Most Online (within 30 mins)
      7,748

    watsonjennifer12
    Newest Member
    watsonjennifer12
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...