Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Recently diagnosed - Question about vitamins


rt-116

Recommended Posts

rt-116 Explorer

Just wondering what vitamins people were advised to take after diagnosis? I am anemic so think I need to improve my iron, presuming low on b12 and D but am yet to have full vitamin checks. Obviously will have these checked soon. 

Of course will vary for all, but just curious about the advice given to others prior to seeing my GP again. 

If you do take vitamins, when is the best time to take them for the best absoption benefits etc? 

Thank you for any help! 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Fenrir Community Regular

I would wait and see what you're deficient in. Many Celiacs are deficient in Vitamin D and B12 but each person is different. 

cyclinglady Grand Master

Do not just take a vitamin because you are anemic.  Your doctor should be able to tell you which kind of anemia you have (there are many types).  For example, I was very anemic. My doctors knew that I had a genetic anemia called Thalassemia which there is nothing to be done except for blood transfusions when medically necessary.  It masked my iron-deficiency anemia for years due to celiac disease.  You can have more than one type of anemia!  

Do not let doctors compartmentalism you!  “Oh, she has Thalassemia, that is why her hemoglobin is low.”  

Get tested.  Although I was low in iron (ferritin test), I was never low in B-12.  

If your gut is damaged, it is hard to absorb anything.  So, if you are severely b-12 deficient, you might need shots to by-pass your gut until you heal.  If you remain on a strict gluten-free diet, you might never need to consume vitamins ever unless you eat an unhealthy diet full of sugar and junk food which is most Americans.....?

Take this to your doctor:

https://celiacdiseasecenter.columbia.edu/celiac-disease/follow-up/

https://celiac.org/about-celiac-disease/treatment-and-follow-up/

Fenrir Community Regular

@cyclinglady  is correct. The term "anemia" is just a general medical term meaning there something wrong with your red blood cells. It could be from a nutrient deficiency, could be genetic, could be from bleeding, cancer, or exposure to toxins. So if you don't know why you're anemic be sure the Dr. figures it out. 

Some celiacs are anemic from poor absorption of nutrients. 

rt-116 Explorer
12 hours ago, cyclinglady said:

Do not just take a vitamin because you are anemic.  Your doctor should be able to tell you which kind of anemia you have (there are many types).  For example, I was very anemic. My doctors knew that I had a genetic anemia called Thalassemia which there is nothing to be done except for blood transfusions when medically necessary.  It masked my iron-deficiency anemia for years due to celiac disease.  You can have more than one type of anemia!  

Do not let doctors compartmentalism you!  “Oh, she has Thalassemia, that is why her hemoglobin is low.”  

Get tested.  Although I was low in iron (ferritin test), I was never low in B-12.  

If your gut is damaged, it is hard to absorb anything.  So, if you are severely b-12 deficient, you might need shots to by-pass your gut until you heal.  If you remain on a strict gluten-free diet, you might never need to consume vitamins ever unless you eat an unhealthy diet full of sugar and junk food which is most Americans.....?

Take this to your doctor:

https://celiacdiseasecenter.columbia.edu/celiac-disease/follow-up/

https://celiac.org/about-celiac-disease/treatment-and-follow-up/

Thank you so much for your thoughts. Its been such an overwhelming couple of days and this has been very helpful! 

18 hours ago, Fenrir said:

I would wait and see what you're deficient in. Many Celiacs are deficient in Vitamin D and B12 but each person is different. 

Thanks! 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

    2. - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

    3. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

    4. - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,019
    • Most Online (within 30 mins)
      7,748

    Nancy Adams
    Newest Member
    Nancy Adams
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.