Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Carotene

laryssabeth

Recommended Posts

laryssabeth Newbie
laryssabeth
Posted

Hi!

I'm new to the site.

I saw a gastroenterologist on Monday for my symptoms of chronic diarrhea, bloating, gas, apthus ulcers, angular chelitis.

I told him that my uncle was diagnosed with Celiac Disease recently. He flat out said "You do not have Sprue"and "Your uncle is not close enough to you to be concerned about". But to appease me he would perform a "Keratine" blood test, he said this would show if I had it or not.

From what I've read, there is no mention of Keratine blood testing in diagnosing celiac disease.

Has anyone heard of this???

I am scheduled for an EGD on Monday, maybe a biopsy well tell the tale.

Thanks

laryssabeth

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tarnalberry Community Regular
tarnalberry
Posted

hmm... uncle is a second degree relative... that gives you a 1 in 40 chance (statistically speaking) of having it as well (Open Original Shared Link). Sounds like he needs a bit more education...

(I also have never heard of that test...)

gf4life Enthusiast
gf4life
Posted

laryssabeth,

could the doctor have said "Ferritin" and not keratine. When checking for Celiac some doctors start with checking for anemia, since some Celiacs are anemic. This would not be able to tell if you have Celiac or not, since not ALL celiacs are anemic. I was checking around to see if I could find out what keratine blood test your doctor was talking about, and I came across the list of blood tests my doctor ran on me. All of a sudden I realised that your doctor might be checking you for anemia. You should check. Call the doctor office and ask them to look up what blood test was ordered for you. Then ask them what that is for. Your doctor is very ignorant about current testing for celiac disease. And genetics. If your parents sibling has it, then chances are pretty high that your parent was a carrier of the gene and passed it to you.

God bless,

Mariann

laryssabeth Newbie
laryssabeth
Posted
  • Author

Mariann,

Thanks for the reply, I will ask the doctor today as I have an appointment for an EGD this afternoon.

Thanks again,

Beth

laryssabeth Newbie
laryssabeth
Posted
  • Author

I saw my dr today and he said my CAROTENE (I spelled it wrong to begin with) was "borderline" so he was sure to get small bowel biopsies to be sure.

Apparantly if you have celiac, you don't absorb carotene (vit A??).

Thanks for all of your help.

Beth

laryssabeth Newbie
laryssabeth
Posted
  • Author

I previously posted a question about "keratine", but my spelling was wrong.

The blood test was for "carotene".

The DR said that it was "borderline" and I had a small bowel biopsy, which I have yet to receive the results from.

Does anyone know what the normal range for carotene might be???

By the way, when he told me that the carotene results were borderline, he no longer acted like I was stupid!

Thanks in advance for your help!!!

Beth

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,593
    • Most Online (within 30 mins)
      7,748
    Michele Roedder
    Newest Member
    Michele Roedder
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Potential celiac need advice

      By trents · Posted

      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      Potential celiac need advice

      By Ben98 · Posted

      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      Unusual bright yellow but odourless discharge

      By Wheatwacked · Posted

      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      How long does it take to gain weight?

      By cristiana · Posted

      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      How long does it take to gain weight?

      By petitojou · Posted

      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.