Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Join Our eNewsletter:
    Support Our Content
    eNewsletter
    Donate

Glutened 12 days ago and still feel awful

Jhona
 Share

Recommended Posts

Jhona Rookie
Jhona
Posted

HI... I was glutened about 12 days ago.. and still feel awful. My question is.. do any of you have pain in upper right of stomach .. kinda under ribcage??? Ive had celiac several years and not been this bad since first diagnosed. What can I do to get relief... Im BLOATED have the right side pain ... back ache... so tired ... Any suggestions would be appreciated.

Thank you

Jhona

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Neesyd Newbie
Neesyd
Posted
46 minutes ago, Jhona said:

HI... I was glutened about 12 days ago.. and still feel awful. My question is.. do any of you have pain in upper right of stomach .. kinda under ribcage??? Ive had celiac several years and not been this bad since first diagnosed. What can I do to get relief... Im BLOATED have the right side pain ... back ache... so tired ... Any suggestions would be appreciated.

Thank you

Jhona

Jhona, Yes I have the same reaction to gluten and also to nightshade veggies (ie: potatoes, tapioca).  Pain is a burning in right flank, side under rib cage and above hip.  I'm investigating symptoms of fibromyalgia as well.

Jhona Rookie
Jhona
Posted
  • Author
11 minutes ago, Neesyd said:

Jhona, Yes I have the same reaction to gluten and also to nightshade veggies (ie: potatoes, tapioca).  Pain is a burning in right flank, side under rib cage and above hip.  I'm investigating symptoms of fibromyalgia as well.

Thank you for our response.

cyclinglady Grand Master
cyclinglady
Posted
(edited)

I am sorry you had a gluten exposure and your celiac disease is flaring.  My coping tips are drinking water and consuming mushy, easy-to-digest foods because anything hurts  to digest.  It can take me a month or longer to recover. The last time I had a gluten exposure, I developed chronic autoimmune hives and had gastric issues that would not resolve. I even went on the Fasano diet (super strict gluten-free).  Finally, my GI convinced me to get an endoscopy again.  Found a healed small intestine, but was diagnosed with Chronic Autoimmune Gastritis.  I learned that not everything is due to celiac disease.  You might even get your gallbladder checked if you do not recover soon.  

Edited by cyclinglady
NNowak Collaborator
NNowak
Posted
4 hours ago, Jhona said:

HI... I was glutened about 12 days ago.. and still feel awful. My question is.. do any of you have pain in upper right of stomach .. kinda under ribcage??? Ive had celiac several years and not been this bad since first diagnosed. What can I do to get relief... Im BLOATED have the right side pain ... back ache... so tired ... Any suggestions would be appreciated.

Thank you

Jhona

YES!!  That’s where my pain is, although much less frequent than ever before. A recent EDG showed peptic duodenitis, hiatal hernia and esophagitis - for no apparent reason. I started intense bone broth and collagen consumption the first week of September 2019. This has allowed significant healing of my GI, I regained some weight and reduced pain I’ve had for decades. I was diagnosed 25 years ago and never had resolution of watery stool or that RUQ stomach pain. SIBO can also cause that type of pain, especially after eating. 
 

I highly recommend that you research the health benefits of bone broth and collagen to see if it fits your needs. My celiac sister and my father with Crohns also utilize bone broth and collagen for healthier GI. We use kettle and fire, and I satisfy my sweet tooth with Dr. Axe chocolate mixes. 
 

I hope you feel better soon. 

Laura P63 Rookie
Laura P63
Posted

I'm also coping with getting glutened and find depression/exhaustion u happy companions! My worst pain is in the lower left abdomen, but it started in upper R back... Dr Axe bone broth helps and I drink vitamin water (Beyond Tangy) + need a prescribed bowel relaxer. Are you consuming  a decent amount of salt? It helps. Heating pad and couch relieve pain, but not going to work is not an option. Have you tried CBD or medical cannabis? It's also soooo hard to explain, isn't it?

Buck12 Newbie
Buck12
Posted
(edited)

I have precisely those exact same symptoms. Sometimes it feels like the pain is coming from my rib bones in that very quadrant. The pain/discomfort comes and goes. 

I cannot remember a specific dosing incident. I have many other ailments in addition to celiac-gluten sensitivity. 

Buck12

Edited by Buck12
clarification
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Fenrir Community Regular
Fenrir
Posted

Yes, the upper right just under the rib is where I get it too when I get glutened. 

One thing that seems to help me recover is to avoid processed foods and do intermittent fasting  for a couple weeks. Processed foods can cause inflammation in the gut, intermittent fasting helps reduce stress on the GI tract by giving it a rest for 16hrs a day.

Laura P63 Rookie
Laura P63
Posted
4 hours ago, Buck12 said:

I have precisely those exact same symptoms. Sometimes it feels like the pain is coming from my rib bones in that very quadrant. The pain/discomfort comes and goes. 

I cannot remember a specific dosing incident. I have many other ailments in addition to celiac-gluten sensitivity. 

Buck12

The deep radiating internal pain is crazy hard to describe! I'm increasing magnesium today and it's definitely helping. I've got to give up figuring out how I was glutened (grrr) and focus on eating extremely simple food. I hope the new gut-healing powder drink I ordered won't be a waste of $$$ - it has colostrum from an organic no grain farm! 

cyclinglady Grand Master
cyclinglady
Posted

Hey guys!  I just want to repeat that if you have had a celiac disease diagnosis or have been gluten free for a few years, your symptoms may not just be due to gluten exposures.  You can develop additional illnesses.  You should follow-up with your doctor like NNowak did.  

I had GERD-like symptoms after a gluten exposure made worse by a tooth infection, the flu and a cold within weeks of each other.  A repeat endoscopy found Chronic Autoimmune Gastritis and a polyp that were not there when I was diagnosed with celiac disease six years ago.   My small intestine had completely healed.   I drove myself crazy thinking that gluten was lurking everywhere.  Now, I can relax!  

And not to scare you, but a much beloved forum member died a few years ago.  She had lymphoma.   ?

Please get checked!  If you are newly diagnosed (less than a year), then keep moving forward.  The gluten-free diet has a steep learning curve and healing takes time.  

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to yellowstone's topic in Coping with Celiac Disease
      3

      Has someone experienced discrimination because of their illness?

      Regarding the discrimination you asked about, it is a lot more easy now to discriminate when you're supposed to answer whether or not you have celiac disease on job applications, and from what I've seen, MANY companies now include this question on their applications:
    2. Scott Adams
      - Scott Adams commented on Scott Adams's article in Spring 2026 Issue
      2

      When Home Isn't Safe: Celiac Disease, Cross-Contamination, and the Right to a Gluten-Free Space

      It's too bad relationships end because of this disease, but I suppose that being healthy may be more important than being married or living with someone who isn't on board with the gluten-free diet.
    3. Flash1970
      - Flash1970 commented on Scott Adams's article in Spring 2026 Issue
      2

      When Home Isn't Safe: Celiac Disease, Cross-Contamination, and the Right to a Gluten-Free Space

      This is a huge topic. My ex husband didn't care. Even though I had my own area where his food wasn't allowed, I'd find crumbs. I was always constantly cleaning. I threw a lot of food away because I wouldn't be sure if he had contaminated it. It really showed what a narcissistic person he was and is. Now I'm in my own home. Much better. I do have dogs...
    4. Russ H
      - Russ H posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Fiber-Metabolizing Bacteria Could Boost Gut Health in Celiac Disease

      People with coeliac disease have an altered gut biome compared with those who do not, which may be associated with gut inflammation. Although the gut biome recovers on a gluten-free diet, there are still significant differences at 2 years. In a mouse model of coeliac disease, supplementation with the soluble dietary fibre, inulin, increased the number...
    5. suek54
      - suek54 replied to Ginger38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      46

      Shaking/Tremors and Off Balance

      Hi Ginger38 Well done you for pushing through the pain barrier of eating gluten, when you know each mouthful is making you poorly. I went through the same thing not long ago, my biopsy was for dermatitis herpetiformis. Result positive, so 95% certain I have gut coeliacs too. But my bloods were negative, so very pleased I went for the gluten challenge...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,943
    • Most Online (within 30 mins)
      10,442
    Rosaria
    Newest Member
    Rosaria
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      Has someone experienced discrimination because of their illness?

      By Scott Adams · Posted

      Regarding the discrimination you asked about, it is a lot more easy now to discriminate when you're supposed to answer whether or not you have celiac disease on job applications, and from what I've seen, MANY companies now include this question on their applications:  
    • Russ H
      Fiber-Metabolizing Bacteria Could Boost Gut Health in Celiac Disease

      By Russ H · Posted

      People with coeliac disease have an altered gut biome compared with those who do not, which may be associated with gut inflammation. Although the gut biome recovers on a gluten-free diet, there are still significant differences at 2 years. In a mouse model of coeliac disease, supplementation with the soluble dietary fibre, inulin, increased the number of beneficial microbes and reduced gut inflammation. Inulin is used by some plants as carbohydrate store, it is a complex polymer of fructose in the same way that starch is a complex polymer of glucose. Inulin cannot be digested by humans but serves as food source for some gut bacteria. Inulin is present in many vegetables but the richest sources are (g/100g): chicory root 41.6 Jerusalem artichoke 18.0 dandelion greens 13.5 garlic 12.5 leeks 6.5 onions 4.3 The Scientist: Fiber-Metabolizing Bacteria Could Boost Gut Health in Celiac Disease    
    • suek54
      Shaking/Tremors and Off Balance

      By suek54 · Posted

      Hi Ginger38 Well done you for pushing through the pain barrier of eating gluten, when you know each mouthful is making you poorly.  I went through the same thing not long ago, my biopsy was for dermatitis herpetiformis. Result positive, so 95% certain I have gut coeliacs too. But my bloods were negative, so very pleased I went for the gluten challenge and biopsy.  Hang on in there. Sue
    • Scott Adams
      Has someone experienced discrimination because of their illness?

      By Scott Adams · Posted

      When symptoms like fatigue, brain fog, or low energy change how we interact, others sometimes misinterpret that as disinterest, rudeness, or negativity—especially if they don’t understand the underlying condition. That doesn’t make their behavior okay, though. You don’t deserve to be treated poorly for something outside your control. Often, it reflects a lack of awareness or empathy on their part, not a fault in you. It can help to explain your condition to people you trust, but it’s also completely valid to set boundaries and distance yourself from those who respond with hostility. Your experience—and your reaction to it—makes sense. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
    • Scott Adams
      HLA-DQ2 POSITIVE it's nothing

      By Scott Adams · Posted

      Being HLA-DQ2 positive doesn’t diagnose celiac disease by itself, but it does mean he has the genetic potential for it, so it absolutely deserves careful follow-up if symptoms or concerns are present. You’re right that celiac is often downplayed, but it’s a serious autoimmune condition—not an allergy—and it can affect the brain, nervous system, and overall health if untreated. Given everything your son has been through, you’re doing the right thing by advocating and asking questions. I would strongly recommend getting a full copy of his records, and if possible, consulting a gastroenterologist who understands celiac disease well so you can get clear answers and, if needed, proper testing and monitoring.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.