Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Got Glutened


bluelotus

Recommended Posts

bluelotus Contributor

Hi all,

I was doing fairly well, but got glutened somewhere. It sucks, my tummy hurts and had all the normal celiac disease symptoms. I really hate this stupid disease. Sorry, just wanted to moan to someone.........oh....my tummy. :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Carriefaith Enthusiast

I'm sorry that you're feeling sick :( Did your food get contaminated?

bluelotus Contributor

Thanks for the sympathy.... I would guess its CC, everything I ate was typical. I hate being glutened...feels like little needles in my tummy. Best wishes to all others that are sick out there tonight.

Carriefaith Enthusiast

I get sick from cross contamination very easily. I really have to limit a lot of "gluten free" mainstream foods and even a few "gluten free" foods because of cross contamination issues. Some products that make me sick are Humpty Dumpty chips, Butterball products, Maple Leaf all beef hot dogs, and Bob's Red Mill flaxseed.

bluelotus Contributor

Just in case - here's what I've had in the past day that might be risky b.c I have them less often (though don't recall getting sick) - Silk soymilk raspberry smoothie, Ian's gluten free fish sticks. Also have had 'homemade' gluten-free bread from a Gluten-free pantry mix to go with my homemade soup. I am not suggesting that any of these brands are the problem per se, I eat such a varied diet that it is hard to pin down an item as making me sick. But, if anyone has had problems with any of these, I'd be interested.

Oh....my tummy :(

Rachel--24 Collaborator

I dont know about any of the foods you ate....just wanted to say sorry you feel sick. :(

gabby Enthusiast

Sometimes gluten-free does not mean there's no gluten in it. I had to learn this the hard way. Eg. potatoes do not contain gluten, and a potato chip manufacturer can say that his potato chips are naturally gluten-free. But go back to the company and ask them if the chips are produced in a gluten-free facility....many times they are NOT!

the only way to know is to contact the company. If they don't get back to you with a very clear Yes or No, then do not eat the food.

I had this happen with some organic almond butter. The label said it contained only roasted almonds. But it kept giving me trouble. I finally contacted the company and they said they didn't add anything to the almonds. But when I pressed them further, I asked them if they roasted their own nuts...they said no, they bought them already roasted from another facility. Did this other facility process gluten-containing foods inthe same factory? Well, they weren't sure.

And there was my answer. I don't eat the almond butter anymore...and the problems went away. I've had similar experiences with all sorts of 'gluten-free' products.

Just call or e-mail the companies. They are pretty friendly and it is a really useful resource.

One more thing...I've been gluten free about two years, and just started being unable to handle soy and dairy just these last couple months. If everything you are eating is gluten-free, eliminate the soy and dairy, then add them back in and see if they are the culprits.

Hope this helps,

If you do figure it out, please post here so we can all learn from your experience!

thanks,

Gabby


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bluelotus Contributor

Thanks, Gabby and Rachel. Gabby, I haven't contacted Ian's, but Silk does list their smoothies as gluten-free on their website. Ian's gluten-free fish sticks label themselves as gluten-free on the package. Then again, I am very sensitive to CC, so maybe both or one of the two companies has CC problems. I've got tons going on this week, but maybe I can give them a call sooner or later.

Thanks again for your support. Feeling a little better today, but pretty run down. Oh, and Gabby, I can't tolerate dairy either (found out its casein by testing myself - I miss cheese :( ) I hope soy's not next!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,003
    • Most Online (within 30 mins)
      7,748

    JoEllen Ball
    Newest Member
    JoEllen Ball
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Wheatwacked
      Welcome @JoJo0611. That is a valid question.  Unfortunately the short answer is slim to none.  Be proactive, when the diagnosis process is completed, start GFD.  Remember also that the western diet is deficient in many nutrients that governments require fortification.  Read the side of a breakfast cereal box. Anti-tTG antibodies has superseded older serological tests It has a strong sensitivity (99%) and specificity (>90%) for identifying celiac disease. A list of symptoms linked to Celiac is below.  No one seems to be tracking it, but I suspect that those with elevated ttg, but not diagnosed with Celiac Disease, are diagnosed with celiac disease many years later or just die, misdiagnosed.  Wheat has a very significant role in our economy and society.  And it is addictive.  Anti-tTG antibodies can be elevated without gluten intake in cases of other autoimmune diseases, certain infections, and inflammatory conditions like inflammatory bowel disease. Transient increases have been observed during infections such as Epstein-Barr virus.Some autoimmune disorders including hepatitis and biliary cirrhosis, gall bladder disease. Then, at 65 they are told you have Ciliac Disease. Milk protein has been connected to elevated levels.   Except for Ireland and New Zealand where almost all dairy cows are grass fed, commercial diaries feed cows TMR Total Mixed Rations which include hay, silage, grains and concentrate, protein supplements, vitamins and minerals, byproducts and feed additives. Up to 80% of their diet is food that cannot be eaten by humans. Byproducts of cotton seeds, citrus pulp, brewer’s grains (wheat and barley, rye, malt, candy waste, bakery waste. The wheat, barley and rye become molecules in the milk protein and can trigger tTg Iga in persons suseptible to Celiac. I can drink Grass fed milk, it tastes better, like the milk the milkman delivered in the 50's.  If I drink commercial or Organic milk at bedtime I wake with indigestion.    
    • captaincrab55
      Can you please share your research about MMA acrylic containing gluten?   I comin up blank about it containing gluten.  Thanks in Advance,  Tom
    • Aretaeus Cappadocia
      I strongly recommend 2 dedicated gluten free (gluten-free) restaurants in my area (East Bay of San Francisco Bay Area) (2025) -- Life is Sweet Bakery and Café in Danville. I've been a few times with friends and tried multiple entrees and salads. All very good and worth having again. I've also tried a number of their bakery goods. All extremely good (not just "good for gluten-free"). https://lifeissweetbakeryandcafe.com/ -- Kitara Kitchen in Albany (they have additional locations). I've been once and had the "Buritto Bowl". Six individual items plus a sauce. Outstanding. Not just "for gluten-free", but outstanding in its own right. Vibrant flavors, great textures. I can't wait to go back. https://www.kitava.com/location/kitava-albany/  
    • Martha Mitchell
      I'm 67 and have been celiac for 17yrs. I had cataract surgery and they put a gluten lens in my eye. Through a lot of research, I found out about MMA acrylic...it contains gluten. It took 6 months for me to find a DR that would remove it and replace it with a gluten-free lens . I have lost some vision in that eye because of it . I also go to a prosthodontist instead of a regular dentist because they are specialized. He has made me a night guard and a few retainers with no issues... where my regular dentist didn't care. I have really bad reactions to gluten and I'm extremely sensitive, even to CC. I have done so much research on gluten-free issues because of these Drs that just don't care. Gluten is in almost everything shampoo, lotion, food, spices, acrylic, medication even communion wafers! All of my Drs know and believe me I remind them often.... welcome to my world!
    • trents
      If this applies geographically, in the U.K., physicians will often declare a diagnosis of celiac disease based on the TTG-IGA antibody blood test alone if the score is 10x normal or greater, which your score is. There is very little chance the endoscopy/biopsy will contradict the antibody blood test. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.