Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Another Question

4tomorrow

Recommended Posts

4tomorrow Apprentice
4tomorrow
Posted

I'm sorry to be asking so much. I'm having trouble with my doctors as far as getting in.

Before you went gluten free did you feel sick all of the time or just when you ate gluten? I never know what is going to bother me. It is to the point where my stomach hurts all of the time. I'm just really depressed right now I would just love to know what is wrong with me.

I'm holding of on the enterolab I think until the 9th when I go to my GI. I want to know what she has to say before I spend the money. If she isn't difinitive I'll probably order the kit.

Just a little info. I had my gallbladder out in 97. I've tried Questran. Bentyl , Nulev, finally found relief with Librax. I had a normal colonoscopy. I've had diarrhea and pain about two inches above my navel for 6 months. It goes from mild to doubling me over to the point where I've had to take Tylenol #3. All of my blood work came back normal. So who knows?

Thanks

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

Hi--feel free to ask all the questions you want :) . It is common to feel sick all or most of the time before a Dx or going gluten-free. Although some Celiacs get no GI symptoms, I do, and before gluten-free, I never knew when I was going to get sick, and I didn't associate it with any particular foods at the time. (I had no idea about gluten--had never heard of Celiac until shortly before my Dx, although I had been sick for many years). Good luck at the dr. and keep us posted!

VydorScope Proficient
VydorScope
Posted
Hi--feel free to ask all the questions you want :) . It is common to feel sick all or most of the time before a Dx or going gluten-free. Although some Celiacs get no GI symptoms, I do, and before gluten-free, I never knew when I was going to get sick, and I didn't associate it with any particular foods at the time. (I had no idea about gluten--had never heard of Celiac until shortly before my Dx, although I had been sick for many years). Good luck at the dr. and keep us posted!

I agree, and you should note that the AVERAGE time to diagnose from onset of symptons, in the US is TEN YEARS. (source Celiac.com). Most ppl feel sick most of that time. Sucks :(

Guest cassidy
Guest cassidy
Posted

I used to feel sick all the time. I was reading this site wondering what it was like to "get glutened' because I never felt good and didn't realize that things could be any different. Now when I get glutened I say "I feel like I used to feel all the time." My stomach/intestines still hurt when I ate safe food in the beginning, but not as bad as when I ate gluten. I'm guessing that everything is so irritated that it takes a while to heal and start to feel much better.

Jen H Contributor
Jen H
Posted

I always felt sick before my diagnosis. I had constant stomach pain and other GI symptoms for about a year before I was diagnosed. It probably took a good 3-4 months before I began feeling better. Each day got a little better and a little easier on the gluten-free diet.

I hope that your doctor's appointment goes well and that you discover the root of your pain soon. This board helped me a lot and most of what I have learned about celiac disease comes from what different members have shared about their experiences. Good luck.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,563
    • Most Online (within 30 mins)
      7,748
    Bob Madden
    Newest Member
    Bob Madden
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Flash1970
      Shingles - Could It Be Related to Gluten/ Celiac

      By Flash1970 · Posted

      Thank you for the links to the articles.  Interesting reading. I'll be telling my brother in law because he has a lot of pain
    • Scott Adams
      gluten-free Oatmeal

      By Scott Adams · Posted

      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      Well said, @Mari!
    • knitty kitty
      Shingles - Could It Be Related to Gluten/ Celiac

      By knitty kitty · Posted

      Hi, @Ginger38, I've had shingles in the past.  I understand how miserable you're feeling.   Not only do i have the chickenpox virus lurking about, I also have the cold sore virus that occasionally flares with a huge cold sore on my lip when stressed or exposed to gluten.  The virus lives dormant in the nerves on the left side of my face.  It causes Bell's Palsy (resulting in drooling).  The cold sore virus is also in my eye.  My eye swells up and my vision is diminished permanently whenever I have a flare, so it's of the utmost importance to keep flares away and treat them immediately if they do happen so I don't lose any more vision.   I take the amino acid supplement L-Lysine.  Lysine messes with the replication of viruses, which helps the body fight them off.   I haven't had an outbreak for several years until this year when exceptionally stressed and contaminated, it flared up again. Lysine has been shown to be beneficial in suppression of viruses like the cold sore virus (a herpetic virus), the chickenpox virus (also a herpetic virus), as well as the HIV virus, and even the Covid virus.   I also take additional Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) because Thiamine has antiviral properties as well.   For pain, a combination of Thiamine (like TTFD or Benfotiamine or Thiamine Hydrochloride), with B12 Cobalamine, and Pyridoxine B6 have been shown to have analgesic properties which relieve pain and neuropathy.    The combination of Thiamine B1, Pyridoxine B6 and Cobalamine B12 really does work to relieve pain.  I take it for back pain from crushed vertebrae in my back.  This combination also works on other pain and neuropathy.   I usually buy a supplement that combines all three and also Riboflavin B2 called EXPLUS online.  However, it's made in Japan and the price with the tariffs added makes it really expensive now.  But the combination of Thiamine B1, Pyridoxine B6 and B12 Cobalamine (and Riboflavin B2) still work even if taken separately.   I can't take Tylenol or ibuprofen because of stomach upsets.  But I can take the vitamin combination without side effects.  However, you can take the three vitamins at the same time as other pain relievers for added benefit.  The vitamins help other pain relievers work better. I hope you will try it.  Hopeful you'll feel better quickly. Interesting Reading: Thiamine, cobalamin, locally injected alone or combination for herpetic itching: a single-center randomized controlled trial https://pubmed.ncbi.nlm.nih.gov/23887347/ Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/ Analgesic and analgesia-potentiating action of B vitamins https://pubmed.ncbi.nlm.nih.gov/12799982/ A Narrative Review of Alternative Symptomatic Treatments for Herpes Simplex Virus https://pmc.ncbi.nlm.nih.gov/articles/PMC10301284/
    • Mari
      My only proof

      By Mari · Posted

      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.