Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Whats Going On?!?

Moongirl

Recommended Posts

Moongirl Community Regular
Moongirl
Posted

I stated to feel great about a month into my gluten-free diet, but 2 weeks ago i started getting there awful pains right between my ribcage down to my belly button, the pain will sometimes radiate to the sides of my ribs....I went to see my Dr and even touching that area between my ribs made it hurt. The pain comes and goes now, but still hanging around. He put my on prilosec, but i dont think thats what it is....

They did a full CAT scan of my abs/pelvic area, upper GI series Xrays, and blood tests for my liver functions...everything so far checks out ok....On top of this i lost another few pounds which i cant afford to lose. The only good thing i noticed is that my fingernails grew fast and long and they are not chipping like before, which means something is absorbing. But whats the deal with all this other stuff?!?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rusla Enthusiast
Rusla
Posted

I have gotten the same type of pains. However, I have in these two months been accidentally glutened. It could be an accidental glutening or it could be the body continuing to cleanse itself. With many years of gluten in our bodies it could take a fair bit of times to cleanse the body.

julie5914 Contributor
julie5914
Posted

I have heard of a lot of people getting better and then worse. I had to cut out dairy - after I ate it, esp. with acidic stuff (anything with both tomatoes and cheese was killer) I would have double over pain. Your description dounds more like an ulcer, but they would have found that in your tests. Did they test for small intestine bacterial overgrowth (h pylori)? Could be that or a problem with a food other than gluten, such as dairy, soy, corn, nightshades, or a number of other suspects.

loraleena Contributor
loraleena
Posted

First if it is heartburn do not take prilosec. Bad stuff. Try deglycerized licorice tablets by Enzamatic therapies. It helped me. Also a teaspoon of applecider vinegar before meals is supposed to help. Usually there is not enough acid rather than too much. Prilosec will only make it worse in the long run. I agree with the above post about ulcer. Gluten intolerance or celiac can set you up for bacterial problems, candida overgrowth and parasites. Good luck.

Moongirl Community Regular
Moongirl
Posted
  • Author
First if it is heartburn do not take prilosec. Bad stuff. Try deglycerized licorice tablets by Enzamatic therapies. It helped me. Also a teaspoon of applecider vinegar before meals is supposed to help. Usually there is not enough acid rather than too much. Prilosec will only make it worse in the long run. I agree with the above post about ulcer. Gluten intolerance or celiac can set you up for bacterial problems, candida overgrowth and parasites. Good luck.

Well they ruled out the ulcer, nothing in any of my test suggests that i have one...My doc suggested that i stay on prilosec....i personally dont want to, im going to see my GI today too see what he thinks....but all my blood work and tests were ok...so im not sure....??

julie5914 Contributor
julie5914
Posted

My doctor told me a good way to test if you have too much or too little acid is to take a tablespoon or two of lemo juice after you get your symptoms. If they get worse, you have too much acid. Better then too little acid. I had too much acid, despite what I have read about some celiacs having too little. The lemon juice gave me a lot more pain and indigestion that what I had before I took it. Now I take a Pepcid AC before acidic meals. Haven't tried Prilosec. I was on Protonix for a while, but insurance gave me trouble, so I gave up.

eeyor-fan Contributor
eeyor-fan
Posted
I stated to feel great about a month into my gluten-free diet, but 2 weeks ago i started getting there awful pains right between my ribcage down to my belly button, the pain will sometimes radiate to the sides of my ribs....I went to see my Dr and even touching that area between my ribs made it hurt. The pain comes and goes now, but still hanging around. He put my on prilosec, but i dont think thats what it is....

They did a full CAT scan of my abs/pelvic area, upper GI series Xrays, and blood tests for my liver functions...everything so far checks out ok....On top of this i lost another few pounds which i cant afford to lose. The only good thing i noticed is that my fingernails grew fast and long and they are not chipping like before, which means something is absorbing. But whats the deal with all this other stuff?!?

Any one who knows me, knows the hell I've been through since the beginning of Dec....Started with a bad cold, then horrable acid reflux (still fighting that), and then what they thought was a rectal prolapse...I was sent to a surgeon but the surgeon doesn't think it was a rectal prolapse but instead some sort of disfunction with the muscles in the intestines. I too have the same pain your describing and been sent for more tests/ rushed to hospital in the last 8 weeks more times than I care to account. I've come to the conclusion that doctors have no clue about anything. I think it has a lot to do with the body going into "shock" because after so many years of eating gluten and then BANG this whole food group is gone ! Anyway, I'm just biding my time because the surgeon is refering me to a colonic specialist for even more tests!

Hugs

Bridget

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Moongirl Community Regular
Moongirl
Posted
  • Author
Any one who knows me, knows the hell I've been through since the beginning of Dec....Started with a bad cold, then horrable acid reflux (still fighting that), and then what they thought was a rectal prolapse...I was sent to a surgeon but the surgeon doesn't think it was a rectal prolapse but instead some sort of disfunction with the muscles in the intestines. I too have the same pain your describing and been sent for more tests/ rushed to hospital in the last 8 weeks more times than I care to account. I've come to the conclusion that doctors have no clue about anything. I think it has a lot to do with the body going into "shock" because after so many years of eating gluten and then BANG this whole food group is gone ! Anyway, I'm just biding my time because the surgeon is refering me to a colonic specialist for even more tests!

Hugs

Bridget

OMG that sounds awful...well the lastest thing with me is the GI that dx with celiac disease, i went to him and he thinks b/c of all the inflamtion i had due to the damage and the irritation, that i could be having spasms. He said usually belly button pain is connecting with ur small intestines....and the stomach pain (which comes and goes, kind of a gnawing thing) could also be due to the same reason. he saw no ulcers/reflux in the CTscan or GI xrays....so he gave me this med called levsin...took it once, seemed to help, but the side effects were god awful for me, i would rather deal with the stomach spasms....

AND im putting 2 and 2 together here, this all started right after i ate McD's french fries, and we all know whats going on with that mess right now. OVer time though it is getting a little better, still hasnt gone away...

julie5914 Contributor
julie5914
Posted

Have you had your gall bladder checked? Sometimes they can't see it in regular scans - it is kinda hidden.

Moongirl Community Regular
Moongirl
Posted
  • Author
Have you had your gall bladder checked? Sometimes they can't see it in regular scans - it is kinda hidden.

Actually i dont have one! lol :D

had it removed 4 yrs ago

julie5914 Contributor
julie5914
Posted
:lol: That's funny. Well at least you can rule out one thing!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      21

      Headaches / Migraines and Hypoglycaemia

      @Sarah Grace, Thank you for the update! It's so good to hear from you! I'm glad Thiamine, B Complex and magnesium have helped you. Yes, it's important to take all three together. I had to quit eating cheese and nuts a long time ago because they triggered migraines in me, too. They are high in tyrosine, an amino acid, found also in fermented...
    2. Jmartes71
      - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Related issues

      Its been a complete nightmare dealing with all these health issues one thing after another and being told many different things.I am looking for a new primary care physician considering when I told my past doctor of 25 years I was diagnosed before any foods eliminated from my diet and now this year at age 54 no longer able to push considering Im always exhausted...
    3. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      21

      Headaches / Migraines and Hypoglycaemia

      My migraines generally have their onset during the early morning hours as well. Presently, I am under siege with them, having headaches all but two days so far this month. I have looked at all the things reported to be common triggers (foods, sleep patterns, weather patterns, stress, etc.). Every time I think I start to see a pattern it proves not to pan...
    4. Scott Adams
      - Scott Adams replied to jessicafreya's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Tamale ingredients

      These are labeled gluten-free: https://www.amazon.com/Corn-Husks-Tamales-Authentic-Flavorful/dp/B01MDSHUTM/
    5. Wheatwacked
      - Wheatwacked replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      GI DX celiac despite neg serology and no biopsy

      Just a gluten free diet is not enough. Now you have to identify and replenish your malnutrition. Celiac disease is co-morbid with malabsorption syndrome. Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely. It takes...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,145
    • Most Online (within 30 mins)
      7,748
    Kundrey
    Newest Member
    Kundrey
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      Headaches / Migraines and Hypoglycaemia

      By knitty kitty · Posted

      @Sarah Grace,  Thank you for the update!  It's so good to hear from you!  I'm glad Thiamine, B Complex and magnesium have helped you.  Yes, it's important to take all three together.    I had to quit eating cheese and nuts a long time ago because they triggered migraines in me, too.  They are high in tyrosine, an amino acid, found also in fermented foods like sauerkraut and red wine.   I found taking Tryptophan very helpful with migraines.  Tryptophan is a precursor of serotonin and people with migraines are often low in serotonin.  (Don't take tryptophan if you're taking an SSRI.)     This recent study shows tryptophan really helps. The association between dietary tryptophan intake and migraine https://pubmed.ncbi.nlm.nih.gov/31254181/   For immediate respite from a migraine, try smiling REALLY BIG, mouth closed, tongue pressed against roof of mouth, and crinkle up your eyes like you just heard or saw the funniest thing...  This causes an endorphin release in the brain.  Usually it's the funny event, then the endorphin release and then the smile.  Smiling first makes the endorphin center think it missed something and it catches up quickly by releasing endorphins after the big crinkle eyed smile.  Must make crinkly eyes with smile or it won't work.  If you do this too frequently within a short time frame (several hours), you can deplete your endorphins, but you'll make more in a couple of hours, so no worries. Get your thyroid checked, too.  Migraines are also seen in low thyroid function (Hashimoto's or hypothyroidism).  Celiac and thyroid problems go hand in hand.   Vitamin D helps, too.  Low Vitamin D is found in migraine.   I'm so glad you're doing better.  
    • Jmartes71
      Related issues

      By Jmartes71 · Posted

      Its been a complete nightmare dealing with all these health issues one thing after another and being told many different things.I am looking for a new primary care physician considering when I told my past doctor of 25 years I was diagnosed before any foods eliminated from my diet and now this year at age 54 no longer able to push considering Im always exhausted, leg pain , stomach,skin and eye issues,high blood pressure to name a few all worsen because I was a  school bus driver and few years until my immune system went to hell and was fired because of it.Im still struggling now, Im sibo positive and been told im not celiac and that I am.I have a hernia and dealing with menopause. Its exhausting and is causing depression because of non medical help. Today I saw another gastrointestinalist and he said everything im feeling doesn't add up to celiac disease since my ITg levels are normal so celiac disease is under control and it's something else. I for got I had Barrett's esophagus diagnosed in 2007 because recent doctors down played it just like my celiac disease. Im currently looking for a pcp in my area because it is affecting me personally and professionally. Im told since celiac looks under control it's IBS and I need to see a therapist to control it. Gastrointestinalist around here think only food consumption and if ITG looks normal its bit celiac disease it's something else. Is this right? This is what im being told. I want medical help but told its IBS.Im feel lost by " medical team "
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      My migraines generally have their onset during the early morning hours as well. Presently, I am under siege with them, having headaches all but two days so far this month. I have looked at all the things reported to be common triggers (foods, sleep patterns, weather patterns, stress, etc.). Every time I think I start to see a pattern it proves not to pan out in the long run. I'm not sure it's any one thing but may, instead, be a combination of things that coalesce at certain times. It's very frustrating. The medication (sumatriptan or "Imatrix") is effective and is the only thing that will quell the pain. NSAIDs, Tylenol, even hydrocodone doesn't touch it. But they only give you 9 does of sumatriptan a month. And it doesn't help that medical science doesn't really know what causes migraines. They know some things about it but the root cause is still a mystery.
    • Scott Adams
      Tamale ingredients

      By Scott Adams · Posted

      These are labeled gluten-free: https://www.amazon.com/Corn-Husks-Tamales-Authentic-Flavorful/dp/B01MDSHUTM/
    • Wheatwacked
      GI DX celiac despite neg serology and no biopsy

      By Wheatwacked · Posted

      Just a gluten free diet is not enough.  Now you have to identify and replenish your malnutrition.  Celiac disease is co-morbid with malabsorption syndrome.  Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely.  It takes time to heal and you need to focus on vitamins and minerals.  Gluten free foods are not fortified like regular processed foods.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.