Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

TTG

okanagansummer
 Share

Recommended Posts

okanagansummer Newbie
okanagansummer
Posted
(edited)

Hello 

I’m wondering if someone might be able to relate ... we just received test results back that our daughters ttg antibody level was 37, and her iron is low.  Our dr said we could look at further testing (scope and biopsy) or continue on as gluten free...I’m just wondering if that is what most people do? 
He didn’t say definitively she was celiac, a biopsy would have to performed for that. Has anyone had a biopsy and then it turned out the be negative? What does that ttg level mean?

Edited by okanagansummer
Add
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Scott Adams Grand Master
Scott Adams
Posted

If your daughter has been gluten-free the biopsy and future blood test will likely be false negative now. You should follow the doctor’s recommendation, but read this and perhaps share it with the doc: 

 

cyclinglady Grand Master
cyclinglady
Posted

I am assuming the TTG result was still above the normal range despite your daughter being on a gluten free diet.  How long has she been gluten free?  It can take up to a year or longer for TTG levels to normalize.  Why?  Many reasons, but the main one is mastering the gluten free diet.  Expect to make mistakes.  It takes time to really get the diet down.  

Anemia (many different types) can resolve once healed and she is absorbing nutrients.  It took me about four months for my anemia to resolve but I had the advantage of really knowing the diet because my hubby had been gluten free 12 years before my diagnosis.  

Scott is right.  Your doctor may think it is necessary to confirm with a biopsy, but with COVID-19, I would think standards would be changed (that and some of the newer evidence he shared).  

My own kid has tested negative a few times.  She came home from university because of this pandemic.  She is not feeling well.  We suspect celiac disease may have been triggered, so she is gluten free and is feeling much better in just two weeks.  Is it celiac disease?  Who knows? But feeling good while she is continuing  her studies at home is important.  We will worry about a formal diagnosis later.  But that is our family.  You need to figure out what is best for your daughter.  

If your daughter remains gluten free, stick with real gluten-free food.  Avoid processed junk food (as much as you can with a kid).  At least until you see some improvement.  

I hope this helps.  

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,938
    • Most Online (within 30 mins)
      7,748
    Moni74sl
    Newest Member
    Moni74sl
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Having the will to be healthy but not the willpower

      By Wheatwacked · Posted

      This is not a weakness.  It is a serious threat to your health.  I once read an interview with a representitive of a large company.  He proudly stated that his wheat based product is more addictive than potato chips.  The other issue is cultural.   Perhaps this book will help Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together.  It is published here on Celiac.com free to read.  Chapter 1 starts here Gluten-Centric Culture: The Commensality Conundrum - Chapter 1 - Are You Kidding? At first I ate anything, regardless of nutritional value. Fritos, M&M Peanuts, potato chips, fruit, steak; anything else. Like most habits, it takes about thirty days create the gluten free habit. Pretend you've...
    • cristiana
      Having the will to be healthy but not the willpower

      By cristiana · Posted

      Great advice from @trents.  A couple of other tips. Firstly, always try to have a good stock of gluten-free alternatives in the house so you aren't tempted to give in when there is nothing else available. Secondly,  as you will have noticed, gluten-free bread does taste quite different from regular bread.  But I think it was my GP who said making toast with it makes it taste much more like the usual stuff - and I would agree there. If you haven't already I suggest you give it a try. But remember, you will either need to toast it under a clean grill, or your Mom will need to buy you your own dedicated gluten-free toaster.
    • trents
      Having the will to be healthy but not the willpower

      By trents · Posted

      Welcome to the forum, @Crossaint! Are you living in the same home with your mother? Your experience with the cravings is very common in the celiac community, especially among the recently diagnosed. It might surprise you to hear this but gluten has addictive qualities much like opiates. It plugs into the same pleasure sensors as gluten in the brain and so for some people, there can be a significant withdrawal experience. It usually begins to subside in a matter of weeks but is perpetuated with inconsistency.  I think three major things need to happen for your to get on top of this: 1. You need to understand that more is at stake here than the number of bathroom trips you make if you...
    • Crossaint
      Having the will to be healthy but not the willpower

      By Crossaint · Posted

      Was recently diagnosed with Celiac after almost 16 years of suffering. The first week gluten free was amazing, my brain was working, i wasnt as bloated, i even started to not have to use the toilet 12 times in an hour. Excellent! But i keep having uncontrollable cravings for gluten. My mom is an amazing baker, woth no sympathy for my weakness and live for food, so of cohrse i ended up eating a bunch of gluten today. i dont know how to stop, i know its poison but at the end of the day i just feel like i need it. Will be re attempting gluten free tomorrow, but im scared that i wont be able to stop myself from eating the deliciously poisonous devil that gluten is. 😞
    • Awol cast iron stomach
      Diagnosed w Celiacs, but reacting to gluten-free Digiorno Pizza AND Kraft Zesty Italian Dressing

      By Awol cast iron stomach · Posted

      I wanted to say hello, and add that  early in eating gluten free I had  to avoid processed foods due to too many ingredients. I also had additional intolerances that needed time to subside. My team suggested I limit gluten free processed foods, as I was having issues with items with too many ingredients. I see Trents explained some of the culprits when he responded.  I found it helpful to go whole foods  diet. When I need inspiration I found Paleo and AIP (Autoimmune Protocol) recipes helpful to offer variety to my palate.  Often our bodies in the early stages prefer we go whole foods/ minimal processed foods. In turn, I realized I prefer freshly made salad dressing which I still make to...
×
×
  • Create New...