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debmay

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debmay Newbie
debmay
Posted

To all Celiacs: Is anyone aware of a treatment and/or research re: the treatment of ADD/memory impairment in celiacs with ADD medications? I need some help with this. Thanks! Deb

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neff-terence Newbie
neff-terence
Posted

Deb,

I have heard there is a link between ADD and the celiac disease. I think at has something to do w/ gluten penetrating the brain barrier??? I'm not a doctor. I got on Adderall a few months ago and have noticed a dramatic difference in my overall sharpness, memory and focus. Also, adderall is gluten free.

Have a good one,

Terence

  • 5 years later...
klslynn Newbie
klslynn
Posted
Deb,

I have heard there is a link between ADD and the celiac disease. I think at has something to do w/ gluten penetrating the brain barrier??? I'm not a doctor. I got on Adderall a few months ago and have noticed a dramatic difference in my overall sharpness, memory and focus. Also, adderall is gluten free.

Have a good one,

Terence

hi terence,

I myself have add as well as celiacs. I used to be on add meds and they did help but havent been on them for a while and I am thinking of looking into them again. I am allergic to adderall, do you know of any other meds that are gluten free?

Wolicki Enthusiast
Wolicki
Posted
hi terence,

I myself have add as well as celiacs. I used to be on add meds and they did help but havent been on them for a while and I am thinking of looking into them again. I am allergic to adderall, do you know of any other meds that are gluten free?

Please verify, but I believe Straterra, Ritalin and Vyvanse are all gluten-free. My DS takes adderall and straterra and he is super sensitive.

summerteeth Enthusiast
summerteeth
Posted

I was diagnosed with ADD when I was 5 - and I took Concerta until I was 18. In the three years between ending Concerta and going gluten free, my memory was absolutely horrid! I would literally run around in circles when given a list of tasks because I could not for the life of me remember a few simple chores.

Since going gluten-free, my memory is much better, but no where near it was on Concerta! I just make sure to write things down and be super organized. But I definitely believe, for me at least, it was gluten related.

Does anyone have any documentation on a correlation between ADD and celiac? I find that the neurological and psychological problems associated with celiac disease quite interesting.

  • 4 weeks later...
HyperGirl Newbie
HyperGirl
Posted

I have ADHD and I'm on Concerta. It's gluten free as far as I know.

Not that it's helped one bit! :angry: I'm pretty much on the highest dose but no luck! The first 2 days I started it - WOW. But then it just stopped working and higher doses have had no effect.

However, I'm beginning to wonder if having celiac (but not being gluten-free) could affect medications? I know celiac can have affects on mental health and there is *some* evidence that a gluten free, casein free diet can benefit people on the autistic spectrum/ADHD, in terms of symptoms/behaviour. I'm not diagnosed as celiac yet but have had health issues that started almost a year ago and are getting worse, and many point towards celiac. I'm hopefully in the process of getting tested for it :)

The past month or so has been when more of the celiac symptoms appeared...and it was 2 months ago my dosage of Concerta increased.

So I'm thinking, "Maybe the higher dose works, but the gluten is affecting my mental health, so both are clashing, meaning I don't feel better (but don't feel worse either)?"

I dunno, maybe I'm being over-the-top. :unsure:

mushroom Proficient
mushroom
Posted

I have ADHD and I'm on Concerta. It's gluten free as far as I know.

Not that it's helped one bit! :angry: I'm pretty much on the highest dose but no luck! The first 2 days I started it - WOW. But then it just stopped working and higher doses have had no effect.

However, I'm beginning to wonder if having celiac (but not being gluten-free) could affect medications? I know celiac can have affects on mental health and there is *some* evidence that a gluten free, casein free diet can benefit people on the autistic spectrum/ADHD, in terms of symptoms/behaviour. I'm not diagnosed as celiac yet but have had health issues that started almost a year ago and are getting worse, and many point towards celiac. I'm hopefully in the process of getting tested for it :)

The past month or so has been when more of the celiac symptoms appeared...and it was 2 months ago my dosage of Concerta increased.

So I'm thinking, "Maybe the higher dose works, but the gluten is affecting my mental health, so both are clashing, meaning I don't feel better (but don't feel worse either)?"

I dunno, maybe I'm being over-the-top. :unsure:

I don't think so. Add that to your list for your doc. She probably doesn't know how all these symptoms are linked but if she did a quick google of symptoms of celiac diseae she would come across a lot of them. If she gives you any guff, you might suggest she do that??? Or is that just me being my usual Aries bossy self?? I don't know, but I think that's what I would do knowing what I know now, which I didn't know back then, by the way. You are doing it right, informing yourself before you go to the doc. There's nothing like a well-armed patient :lol:

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