Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mcd Fries 2: The Phone Calls :)


ryebaby0

Recommended Posts

Rachel--24 Collaborator

I think people should just trust what their body is telling them. If they've had problems with the fries...stay away from them. If you have never experienced symptoms from eating the fries and you *know* how your body responds to gluten..then I'd guess its safe to eat the fries. I'm sure plenty of people who've been eating the fries with no problems have also had follow-up biopsies or bloodwork showing that they've healed. If you are not getting sick from the fries but are still in doubt....why not get some bloodwork done after eating the fries for a few months.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Canadian Karen Community Regular
I think people should just trust what their body is telling them. If they've had problems with the fries...stay away from them. If you have never experienced symptoms from eating the fries and you *know* how your body responds to gluten..then I'd guess its safe to eat the fries. I'm sure plenty of people who've been eating the fries with no problems have also had follow-up biopsies or bloodwork showing that they've healed. If you are not getting sick from the fries but are still in doubt....why not get some bloodwork done after eating the fries for a few months.

There are plenty of people who are totally asymptomatic yet the damage is still being done. I think the fact of whether or not you have a reaction to them cannot be used to determine whether or not damage is being done. But I agree, anyone who has had follow-up biopsies or bloodwork after stuffing their face with McD's fries for three months, I would like to hear from you!

Karen

casnco Enthusiast
I think people should just trust what their body is telling them. If they've had problems with the fries...stay away from them. If you have never experienced symptoms from eating the fries and you *know* how your body responds to gluten..then I'd guess its safe to eat the fries. I'm sure plenty of people who've been eating the fries with no problems have also had follow-up biopsies or bloodwork showing that they've healed. If you are not getting sick from the fries but are still in doubt....why not get some bloodwork done after eating the fries for a few months.

Great suggestion

VydorScope Proficient
If you are not getting sick from the fries but are still in doubt....why not get some bloodwork done after eating the fries for a few months.

I can not imagine the vast quantiy of fries you would have to eat to get enough gluten to be detected in the blood test, meanwhile your eating posion. Heck even if hteres not gltuen in them, that much fires would be very unhealthy :blink::huh::blink:

No thanks! :o

casnco Enthusiast

I think the most important thing here for all of us to remember isn't if we can eat fries at McD's or not. The most important thing is make sure the information they give us is correct. I can live without fries. On the road I can stop at the convenience mart for chips. Or take fruit on trips. When I travel I can make other arrangements. I just want to know when I go into any resturant and tell them I need gluten free or I research their web site before patronizing them I learn what is correct.

Lets just start an email/letter writing campaign stateing our needs.

Becky6 Enthusiast

This is frustrating! But every time dh would take my daughter there she would have issues the next day. I think that was the problem! The other problem is that they said years ago that the beef was removed because vegetarians had a issue with that. Now it is back! Terrible!

VydorScope Proficient

I have been thinking about this, and trying to come up with a postion that supportes eating the fires... lest look at this..

POSTION ONE "I trust McDondals"

PROBLEM - Thier Website says fries contain GLUTEN, not only wheat, but gluten specficly. It says it is in the "Natural Flavoring" . Fries are also no longer on thier gluten-free menu. If you choose to trust McDonalds then you cant eat thier fries. Some ppl have been told otherwise when they called in, but I suspect that has more to do with the newness of this information then anything else.

POSTION TWO "I do not trust McDonalds"

Umm then why you eating there to begin with?

And well here I gets stuck cause every other postion falls back on these two.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator
There are plenty of people who are totally asymptomatic yet the damage is still being done. I think the fact of whether or not you have a reaction to them cannot be used to determine whether or not damage is being done.

Yes, this is why I said if you *know* what your reaction to gluten is and you dont react to the fries they may be completely safe for you. If you are asymptomatic then obviously you have no idea what the fries may or may not be doing to you so in that case you'd have to make a personal decision about whether or not you're willing to risk your health over the fries.

I think it all boils down to one thing in the end....personal choice. Some people will continue to eat the fries...others wont. Without undeniable proof of gluten in the fries we really dont know enough to say with 100% certainty that the fries are going to cause damage to Celiacs. We also dont know with 100% certainty that its safe for Celiacs to eat the fries. Until we know more about it its really going to be a personal choice we'll have to make.

psawyer Proficient

Thanks, Rachel. I do react to gluten in small amounts. I have gas and explosive diarreah. I have never had a reaction after eating McDonalds hash browns or fries. That does not prove that they are gluten-free. Scientifically you can not prove a negative. But, to me, it does mean that my body does not react, so if there is any gluten it is it an extremely low level. I think that I take a greater risk of bodily harm, or death, each time I drive my car. FWIW. P.

Rachel--24 Collaborator

Thanks Peter,

This was my point exactly.

Just because you don't react to the fries doesnt prove them to be 100% gluten-free. On the other hand just because someone else does react to the fries doesnt mean they are unsafe for all Celiacs. You just gotta do whats best for you. Also someone may react to the fries for a reason totally unrelated to gluten or because that particular batch got contaminated by a nugget in the fryer.

Merika Contributor

This splitting hairs over is-the-gluten-still-there-or-not with some cooking method reminds me of the laws in Europe which say (as I understand, not living there) that anything with less than .05 somethings of gluten in it can be labelled gluten free. Hence, European wheat starch is considered gluten free because it is a high quality starch that has had 99.9% of the wheat protein removed. It is believed there that a minute amount of gluten will not harm a celiac. YMMV (your mileage may vary).

To me, it sounds like the fries are made with gluten and always were, and they're just now labelling them as such. It's also possible the supplier sends the same flavor item to packaged food manufacturing places and so is sending blanket notifications to all their customers.

I think the medical jury is still out as to how pure something needs to be for a celiac to safely eat it. Personally, I'm not going anywhere near any gluten AT ALL :o I don't care if someone says it's safe.

Merika

VydorScope Proficient
Thanks Peter,

This was my point exactly.

Just because you don't react to the fries doesnt prove them to be 100% gluten-free. On the other hand just because someone else does react to the fries doesnt mean they are unsafe for all Celiacs. You just gotta do whats best for you. Also someone may react to the fries for a reason totally unrelated to gluten or because that particular batch got contaminated by a nugget in the fryer.

Oh I agree, if your comfrotable with Mcdonalds saying there is gluten in the fries, but believe it to be low enough not to bother you (ingoring CC), then go head and eat them. In the ned its YOUR body, and has to be your descion.

Personly, my son has never not reacted to them and I refuse to do that to him, myself... I never had them while being gluten-free so I can not say for sure I guess, so I probably need edit my post where I imply other wise. Since my son reacts and he seems to get everything like that from me, I am assuming that I will also react.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,107
    • Most Online (within 30 mins)
      7,748

    Joe Fish
    Newest Member
    Joe Fish
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wends
      Hi RMJ. I read your post. Sounds like you need a second opinion? Have you been advised by Dietitian or referred to one? There are protocols for treating patients that have ongoing celiac disease antibodies / histology. Particularly as you have nausea and pain. You probably already know about the gluten contamination elimination diet. It may be that you are super sensitive to even the allowed 20parts per million gluten in certified gluten free flours and products? An elimination of all grains for a time may be necessary? Especially oats if you currently include them? It’s worth noting that a minority of Celiacs have oat intolerance and T cell response similar to gluten (particularly carriers of high risk HLADQ2.5), and ongoing celiac damage to the gut can occur with oats. Even certified gluten free oats. If you are already super strict and careful about cross contamination, do you eat cheese or have any cow’s milk in your gluten free diet? It’s often overlooked, even by specialists and Celiac dietitians. But there are case study reports in children. There’s a study in adults showing mucosal reaction to casein in Celiacs, and quoted 50% of Celiacs react to casein similar to gliadin because of molecular mimicry. Then there was this letter to the editor following up a case that states, ”We conclude that given this novel information, pediatric, and possibly adult, celiac disease patients with suspected “refractory” celiac disease and no detectable gluten exposures, should be trialed on a combined CMP-GFD with close monitoring for disease activity resolution prior to consideration of more restrictive diets…” (Jericho H, Capone K, Verma R. Elimination of Cow’s Milk Protein and Gluten from the Diet Induces Gut Healing in “Refractory” Pediatric Celiac Patients. Ann Pediatr. 2021; 4(2): 1082.) CMP-GFD: cow’s milk protein-gluten free diet. Hope you figure it out.  
    • trents
      Welcome to the forum, @BlakeAlex! Is this the GI Reset product you are using?: https://inwellbio.com/wp-content/uploads/2023/08/GI-Reset_Info-Sheet.pdf There is a lot of weird stuff in that you could be reacting to. Personally, I would discontinue it as I doubt it's really doing you any good anyway. Getting to the point where you are truly eating gluten free consistently usually involves a significant learning curve as gluten is hidden in the food supply in many ways by manufacturers. For instance, would you ever expect to find it in soy sauce or Campbell's tomato soup? But it's there and a main ingredient. Getting rid of macro sources of gluten is relatively easy. Just cut out bread, cake and pasta. But avoiding the hidden sources and the cross contamination sources is much harder. I am including this article that might be of help to you as a new celiac in getting off to a good start:    Long-term undiagnosed celiac disease inevitable leads to nutritional deficiencies because of the damage done to the lining of the small bowel where almost all of the nutrition in our food normally is absorbed. We routinely recommend that newly diagnosed celiacs invest in some quality gluten-free vitamin and mineral supplements. And I'm talking about more than a multivitamin. We recommend a high potency B-complex, 5-10,000 IU of D3 daily, Magnesium glycinate, and zinc. I suspect your mouth and throat ulcers are nutritional deficiency related. Costco is a good place to get good quality gluten-free vitamin and mineral supplement products at a reasonable price. Are you on medications? May we ask your relative age?  
    • BlakeAlex
      Hello, I was recently diagnose with Celiac Disease and without realizing, I had every symptom on the list. Now I am moving as fast as I can to a total recovery. I thought I was doing well but I notice my ulcers on my tongue and throat and cough are starting to come back again.  Has anyone experience these symptoms? Also, I am incorporating GI Reset powder for a jump start to recovery.  Thanks in advance, Blake     
    • trents
      No. There is no damage done to the gut lining with NCGS.
    • MagsM
      Hi Trents, Thanks for the feedback. Yes, I do have concerns about NCGS. Would this show up if I did the endoscopy testing?
×
×
  • Create New...