Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Food Jealousy...


princessfuzzball

Recommended Posts

princessfuzzball Rookie

I have been gluten free for almost a year... I'm doing a LOT better than before I was diagnosed, and I'm very happy about that.

However-

If people around me are eating, I do indeed still miss that food.

I have tried to tell myself time and time again that I'm better off without it, but that isn't helping.

I have tried to tell myself that I don't want what I'm craving, that dosen't work very well either.

What do you do when you are surronded by all this?

I can't run away, and I'm sick of lying to myself, I can't seem to get over gluten.

Apparently my wishing for easy convience foods annoy people around me, and my inner struggle is annoying me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rusla Enthusiast

I remind my self of the pain and suffering I suffered with wheat and gluten and I don't miss it anymore. If it is pizza I am missing I make myself a gluten-free one the way I like, with pesto sauce.

ianm Apprentice

I was just too sick and don't ever want to be that way again. I have too many good things happening in my life to blow it by eating a donut.

tarnalberry Community Regular
What do you do when you are surronded by all this?

I can't run away, and I'm sick of lying to myself, I can't seem to get over gluten.

Apparently my wishing for easy convience foods annoy people around me, and my inner struggle is annoying me.

I just remind myself that I want it, but I can't have it. Doesn't mean I want it any less, just means I don't have it. That's really about it. To borrow an analogy (a bit racy though it may be), it's kinda like sex. You can have the drive/desire/urge to have sex with your significant other, but if they're not in the mood, you don't do it. You may find some other alternative (like you do with your gluten-free food), but you don't get what you want. It doesn't mean you don't want it, just that you can't have it.

hez Enthusiast

I have similar issues. I have started to demonize the gluten. Not just in my head but out loud. My friends think I am nuts (this is nothing new, they thought that before my dx). I also know how sick it will make me. I really do think this is the hardest part, the emotional.

Hez

Nancym Enthusiast

I really think it is very like a drug. You're out of the initial detox phase, but it still calls to you. All I can say is I think it will call less and less as time goes by. I had given up all carby refined foods about 3-4 years ago, but I started back on them again (occassionally) before I figured out the gluten intolerance thing. Most of these 3-4 years I've been free of it all (I don't even eat gluten free substitutes) and I really don't miss it. As long as I have food I find tasty and wonderful smelling I'm fine eating anything.

I am doing ok. Going dairy free hurt for a few weeks, but I quickly adjusted to that new reality too. My only complaint is I'd like to have something that could replace yogurt for me (I don't eat soy either).

I think in the end we're actually the lucky ones. We've been identified and we're not further damaging our health. 97% of the celiacs out there haven't been diagnosed. And who knows how many gluten sensitives are out there suffering with IBS or whatever and possibly doomed to shorter, sicker lives because they'll never be diagnosed, or they can't give up their poison.

I guess I like to focus on the positives. I know I'm eating the healthiest diet I've ever eaten in my entire life. It took a lot of years of suffering to get to this point, but here I am.

fisharefriendsnotfood Apprentice

I think I'm just so used to it that it doesn't bother me. I know, I haven't tried gluten since I was two, but let's take fries as an example. I know what fries taste like but I can't have the ones at my cafeteria. When my friends buy them it doesn't bother me. Don't know why. I'm lucky. Yay!

-Jackie :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gabby Enthusiast

Have a pity party. Seriously. When you are feeling left out and angry and depressed about this (which will happen from time to time) throw yourself a pity party. The key is to give it a time limit. I give myself 2 solid hours. I make sure I can have those two hours to myself and I'm allowed to be as dismal and miserable as I want. Play those old sad songs. Put on a pot of coffee. Look at pictures of yourself before the diagnosis. Punch a pillow. Write angry hurtful letters in a diary...but don't send them. Cry. Wallow. Yell out..why me?

And then, when the two hours is up, pack up your kleenex. Put away the old photos. Put on a really upbeat song (like Funkytown, or Ace of Base...I know they're corny but they're fun). Dance around in your livingroom and then outloud, list 10 things in your life that you are happy about and are grateful for and you wouldn't change for the world.

Note: the wallowing can go for 2 hours...but I find it never lasts longer than 20 minutes personally.

let us know how this works out for you!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Iam replied to Larzipan's topic in Related Issues & Disorders
      33

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    2. - trents replied to Scatterbrain's topic in Sports and Fitness
      6

      Feel like I’m starting over

    3. - bobadigilatis replied to Larzipan's topic in Related Issues & Disorders
      33

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    4. - cristiana replied to Scatterbrain's topic in Sports and Fitness
      6

      Feel like I’m starting over


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,300
    • Most Online (within 30 mins)
      7,748

    Philbin
    Newest Member
    Philbin
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Iam
      Yes.  I have had the tmj condition for 40 years. My only help was strictly following celiac and also eliminating soy.  Numerous dental visits and several professionally made bite plates  did very little to help with symptoms
    • trents
      Cristiana makes a good point and it's something I've pointed out at different times on the forum. Not all of our ailments as those with celiac disease are necessarily tied to it. Sometimes we need to look outside the celiac box and remember we are mortal humans just like those without celiac disease.
    • bobadigilatis
      Also suffer badly with gluten and TMJD, cutting out gluten has been a game changer, seems to be micro amounts, much less than 20ppm.  Anyone else have issues with other food stuffs? Soy (tofu) and/or milk maybe causing TMJD flare-ups, any suggestions or ideas? --- I'm beginning to think it maybe crops that are grown or cured with glyphosphate. Oats, wheat, barley, soy, lentils, peas, chickpeas, rice, and buckwheat, almonds, apples, cherries, apricots, grapes, avocados, spinach, and pistachios.   
    • cristiana
      Hi @Scatterbrain Thank you for your reply.   Some of these things could be weaknesses, also triggered by stress, which perhaps have come about as the result of long-term deficiencies which can take a long time to correct.   Some could be completely unrelated. If it is of help, I'll tell you some of the things that started in the first year or two, following my diagnosis - I pinned everything on coeliac disease, but it turns out I wasn't always right!  Dizziness, lightheaded - I was eventually diagnosed with cervical dizziness (worth googling, could be your issue too, also if you have neck pain?)  A few months after diagnosis I put my neck out slightly carrying my seven-year-old above my head, and never assigned any relevance to it as the pain at the time was severe but so short-lived that I'd forgotten the connection. Jaw pain - stress. Tinnitus - I think stress, but perhaps exacerbated by iron/vitamin deficiencies. Painful ribs and sacroiliac joints - no idea, bloating made the pain worse. It got really bad but then got better. Irregular heart rate - could be a coincidence but my sister (not a coeliac) and I both developed this temporarily after our second Astra Zeneca covid jabs.   Subsequent Pfizer jabs didn't affect us. Brain fog - a big thing for people with certain autoimmune issues but in my case I think possibly worse when my iron or B12 are low, but I have no proof of this. Insomnia - stress, menopause. So basically, it isn't always gluten.  It might be worth having your vitamins and mineral levels checked, and if you have deficiencies speak to your Dr about how better to address them?    
    • knitty kitty
      @NanceK, I do have Hypersensitivity Type Four reaction to Sulfa drugs, a sulfa allergy.  Benfotiamine and other forms of Thiamine do not bother me at all.  There's sulfur in all kinds of Thiamine, yet our bodies must have it as an essential nutrient to make life sustaining enzymes.  The sulfur in thiamine is in a ring which does not trigger sulfa allergy like sulfites in a chain found in pharmaceuticals.  Doctors are not given sufficient education in nutrition (nor chemistry in this case).  I studied Nutrition before earning a degree in Microbiology.  I wanted to know what vitamins were doing inside the body.   Thiamine is safe and nontoxic even in high doses.   Not feeling well after starting Benfotiamine is normal.  It's called the "thiamine paradox" and is equivalent to an engine backfiring if it's not been cranked up for a while.  Mine went away in about three days.  I took a B Complex, magnesium and added molybdenum for a few weeks. It's important to add a B Complex with all eight essential B vitamins. Supplementing just one B vitamin can cause lows in some of the others and result in feeling worse, too.  Celiac Disease causes malabsorption of all the B vitamins, not just thiamine.  You need all eight.  Thiamine forms including Benfotiamine interact with each of the other B vitamins in some way.  It's important to add a magnesium glycinate or chelate supplement as well.  Forms of Thiamine including Benfotiamine need magnesium to make those life sustaining enzymes.  (Don't use magnesium oxide.  It's not absorbed well.  It pulls water into the intestines and is used to relieve constipation.)   Molybdenum is a trace mineral that helps the body utilize forms of Thiamine.   Molybdenum supplements are available over the counter.  It's not unusual to be low in molybdenum if low in thiamine.   I do hope you will add the necessary supplements and try Benfotiamine again. Science-y Explanation of Thiamine Paradox: https://hormonesmatter.com/paradoxical-reactions-with-ttfd-the-glutathione-connection/#google_vignette
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.