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Celiac Specialists Recommendations?

mandigirl1

By mandigirl1
in Doctors

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mandigirl1 Enthusiast
mandigirl1
Posted

Can anyone recommend a good Celiac specialist, and/or a nutritionist?eating disorder therapist in the NYC area????

Im looking for someone I can speak to about my food issues. I obssess about food/diet/weight all the time.

Thank you!!!!!

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rma451 Newbie
rma451
Posted

hi,

your doctor who did the biopsy should be able to answer some of your questions. also look for the celiac support group for help on some of the food issues , nearest you.. I hear some of the groups are great and with this disease I think a good support group, being with others facing alot of the same issues ,helps. part of the issues I think is the isolation of celiac disease.

I think that with this disease where food is the cure we cant help but be obsessed about our diets and weight issues . I would think its pretty normal. unless you are bulimic or another disorder caused by other issues.

from the months of reading and talking to others with celiac disease it seems you can lose alot of weight in the beginning until you start to heal. I lost over 40 pounds and must admit after several months still get up every day wondering what I can eat , how to get enough so I maintain my present weight and not lose more, but still add some variety, due to diffrent reactions to diffrent foods .

good luck and I hope you start to feel better soon . after awhile it does get easier there just seems to be a LARGE learning curve because for each person it can be so diffrent . with the only constant being the damage being done to our insides.

rosie NY state

sillyyak Enthusiast
sillyyak
Posted

Try the celiac disease center of columbia university.

also there is a support group in the NYC area

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