Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can You Grow Out Of A Gluten Intolerance?


munchkinette

Recommended Posts

munchkinette Collaborator

Wow, so I was telling my mom just now that I tried the gluten-free diet for a few weeks and felt great! She knew I was having trouble with anemia and the diet was a total experiment. I just happened to come across a few things about celiac disease (which I'd never really heard of) when reading about my test results.

Then she said my grandmother developed a grain intolerance when she was around my age (27). She was pretty sure it was wheat, and maybe a few other things. I knew my gran ate bread all the time though. She always had toast for breakfast. My mother said that my gran grew out of her wheat problems. Is this even possible?

I'd never heard anything about a wheat problem in our family, but my gran was diabetic since she was pregnant with my uncle (age 34 or 35). I'm kinda confused though- isn't that Type 2 Diabetes? I read that Type 1 was related to wheat problems. My gran's mother also died of colon cancer, so I've suspected recently that there was something in our family, but I hadn't really even heard of celiac disease or gluten intolerance before last month.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



chrissy Collaborator

you can't outgrow celiac disease. you can outgrow a wheat allergy. i don't know if you can outgrow non-celiac gluten intolerance, though. my guess is that you probably cannot.

christine

Guest nini

there is no such thing as growing out of a gluten intolerance. If she had true undiagnosed celiac and stayed gluten free for a while, she may have healed significantly that she didn't NOTICE any symptoms.

it's hard to say any more than that since you don't know for sure if she did, but to answer the question "can someone grow out of a gluten intolerance?" the answer is no.

munchkinette Collaborator

I'm still really new to all this. I know there is a difference between celiac disease and a gluten intolerance. I guess I thought that a wheat allergy was the same as a gluten intolerance (but not celiac disease). Could somebody tell me where to find some of the newbie stuff? I'm still sort of piecing this all together.

It seems like every time I think I have a health problem and I mention it to my mother she tells me that she or my grandmother had the same problem. I wish I'd found this out last year before my gran died so I could have gotten more details.

Rachel--24 Collaborator
I'm still really new to all this. I know there is a difference between celiac disease and a gluten intolerance. I guess I thought that a wheat allergy was the same as a gluten intolerance (but not celiac disease). Could somebody tell me where to find some of the newbie stuff? I'm still sort of piecing this all together.

An allergy and an intolerance are two different things. You can learn alot from just reviewing some of the older threads on this forum. Just do a search and you should find plenty on the subject of gluten intolerance vs. allergy. Also I would highly recommend getting the book "Dangerous Grains" Its very informative.

munchkinette Collaborator

So what test would I get for a wheat allergy? I'm already scheduled to get a "celiac panel" blood test next week. This is what tests for the antibodies, right? I'd like to schedule other tests at the same time if I can figure out what they would be.

Rachel--24 Collaborator

You would need to see an allergist to get tested for a wheat allergy. They can test for it with a blood sample or a skin-prick test. An allergy would give you immediate symptoms...you would get a noticeable reaction everytime you ate wheat. An intolerance is different because the reaction is not always noticeable right after you eat something....the reaction can be delayed up to 3 days later. Also you may not notice a reaction at all. Intolerances are much harder to figure out.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



munchkinette Collaborator

OK, I was planning to see an allergist anyway. My brother got some of that stuff done. How related are wheat allergies and gluten intolerances though? In terms of running in the family are they totally different, or somewhat related?

TCA Contributor
OK, I was planning to see an allergist anyway. My brother got some of that stuff done. How related are wheat allergies and gluten intolerances though? In terms of running in the family are they totally different, or somewhat related?

We have both in our family, but I don't know the stats.

elisabet Contributor

I talked to one of my son`s teacher ,and told her that he can not have casein or gluten,she said that she had the same problem when she was 18 years old,she had eliminated all wheat,casein and meat from her diet for 4 years and then she reintoduced them and did not have any problem .

now that you mentioned it I have heared it too.

but there is a theory which says that immune system can forget .

elisabet

codetalker Contributor
Then she said my grandmother developed a grain intolerance when she was around my age (27). She was pretty sure it was wheat, and maybe a few other things. I knew my gran ate bread all the time though. She always had toast for breakfast. My mother said that my gran grew out of her wheat problems. Is this even possible?

It is notable that it was your grandmother that supposedly "grew out" of her grain intolerance. If she had celiac disease, this might provide an interesting historical perspective on our shared affliction.

I was born in 1951 and was DX'd with celiac disease in 1952 at Johns-Hopkins. At that time, doctors believed that a person could indeed "grow out" of the condition. We all know today that is incorrect. Nonetheless decades ago, doctors believed it.

In my case, I was put on a gluten-free diet in 1952 when I was about 1 YO and stayed on the diet until about age 4. The doctors believed then that I had "outgrown" the condition and could eat normally. I still had problems (gas, bloating, underweight, etc.). However, doctors considered me "cured".

I would strongly advise you not to go down this same road. Suffice it to say that, although I was DX'd as a baby, I still spent nearly 40 years eating gluten until I finally figured out what was going on myself. My insides are a wreck now. That's not something I would wish on anyone. My grandfather died of colon cancer. Given my history, I'm probably a good candidate for that as well, even though I've been gluten-free now for several years. You can turn back the hands of time only so much.

munchkinette Collaborator
I would strongly advise you not to go down this same road. Suffice it to say that, although I was DX'd as a baby, I still spent nearly 40 years eating gluten until I finally figured out what was going on myself. My insides are a wreck now. That's not something I would wish on anyone. My grandfather died of colon cancer. Given my history, I'm probably a good candidate for that as well, even though I've been gluten-free now for several years. You can turn back the hands of time only so much.

This is interesting. My gran's mother died of colon cancer. My gran actually died of liver failure even though a bad fall triggered the end. I'm wondering if she still had problems with wheat. She didn't drink a whole lot, so alcohol definitely wasn't the reason.

The thing is, she was diabetic so she might have been focusing her diet around that. She had to watch her carbs/sugars for that reason, so maybe she didn't eat that much wheat because of that. She ate a lot of red meat but I remember her carrying orange juice all the time. Other than the toast I don't remember her eating much bread... maybe the occasional sandwich. I'll have to talk to my mom about this.

This whole wheat thing is like a puzzle. It's kind of exciting to figure stuff out but I hate feeling really tired when I do something wrong. I'm eating wheat all this week for some blood tests. I had a bagel for breakfast yesterday and I fell asleep for an hour in the early afternoon... that's not right.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams commented on Scott Adams's article in Latest Research
      2
    2. - trents replied to Mmoc's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Blood tests low iGA 4 years later digestive issues

    3. - Mmoc posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Blood tests low iGA 4 years later digestive issues

    4. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,163
    • Most Online (within 30 mins)
      7,748

    Am77
    Newest Member
    Am77
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Mmoc! Please include the reference ranges for the IGA and the TTG tests in your next post if you have access to them. We cannot comment much otherwise as different labs use different reference ranges for these tests and also different units of measurement. There are no universal standards as of yet so the raw test numbers are not always helpful. Having said that, if your IGA (what we usually call "total IGA") is low, the TTG-IGA score will be skewed and cannot be trusted. Other kinds of tests for celiac disease would need to be run, particularly those in the IGG family of tests. Perhaps this will be helpful:  
    • Mmoc
      Hi there any advice welcomed. I have had 4 years of symptoms ranging from immune related anaphylactic symptom sudden onset food allergy to peppers/paprika/chilli/capsicum family derivatives. all these allergies fizzled out and following a food challenge test in hospital I reintroduced them a few months ago. Since then my digestive system is a mess. i have since noticed that 4 years ago when testing for iga allergies my iga level was .62 and my ttg was less than .1 (due to symptoms I was probably eating very plainly at that time). should I insist on being retested for celiac? I’ve since read two indicators for celiac include: sensitive to spicy foods when in flare up tooth enamel weakness and symmetrical discolouration patches on teeth which I have had since childhood on my two front teeth     thanks
    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.