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Symptom I haven't seen anywhere.

Jrscott1970
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Jrscott1970 Rookie
Jrscott1970
Posted

I work on the road, and after talking to doc about symptoms, he ordered tests for Celiac to coincide with blood checkup on my Type 2 that were already scheduled for the 22nd. 

So I've been doing some research on Celiac and find that many of my symptoms match. I went on a gluten free diet for the last 2 weeks and some have gotten better, but there is a nagging symptom, and the most disturbing one, that won't go away. I can't find anyone talking about this one. I thought maybe someone here has experienced it as well.

This all started in January when I woke up, within 30 minutes I was vomiting, severe diarrhea, light/foggy headed, unsteady on feet, muscles twitching, lower legs and forearms went cold, and I passed out for 3-4 seconds. Friend rushed me to hospital, and it happened again there, where they thought it was a 3-4 second seizure. 

This continues to happen, albeit in a lessor capacity. I haven't had a pass out/seizure incident, but the signs that lead to it still happen. It comes on quick, and lasts for about 2-3 hours, and afterward I'm extremely fatigued. The only thing I think is helping stop it is, tons of water. It seems I'm dehydrating very fast, but this could just be me over analyzing. If anyone has a clue to this, or has experienced it, I would love to hear from you. 

Thanks 

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cyclinglady Grand Master
cyclinglady
Posted

Did you already have the celiac testing?  This is important because all celiac testing requires you to be on a regular full gluten diet.  In as little as two weeks, some people can reduce antibodies.  Then they get a negative on the celiac disease antibodies blood tests.  Diagnostic limboland! Please get back on gluten if you want an accurate result.  

Symptoms?  There are over 200 of them and the list is growing.  Problem is they can be same (overlap)  as illnesses like cancer or other autoimmune, for instance.  The only way to know is to get tested.  

Jrscott1970 Rookie
Jrscott1970
Posted
  • Author
1 hour ago, Jrscott1970 said:

I work on the road, and after talking to doc about symptoms, he ordered tests for Celiac to coincide with blood checkup on my Type 2 that were already scheduled for the 22nd. 

So I've been doing some research on Celiac and find that many of my symptoms match. I went on a gluten free diet for the last 2 weeks and some have gotten better, but there is a nagging symptom, and the most disturbing one, that won't go away. I can't find anyone talking about this one. I thought maybe someone here has experienced it as well.

This all started in January when I woke up, within 30 minutes I was vomiting, severe diarrhea, light/foggy headed, unsteady on feet, muscles twitching, lower legs and forearms went cold, and I passed out for 3-4 seconds. Friend rushed me to hospital, and it happened again there, where they thought it was a 3-4 second seizure. 

This continues to happen, albeit in a lessor capacity. I haven't had a pass out/seizure incident, but the signs that lead to it still happen. It comes on quick, and lasts for about 2-3 hours, and afterward I'm extremely fatigued. The only thing I think is helping stop it is, tons of water. It seems I'm dehydrating very fast, but this could just be me over analyzing. If anyone has a clue to this, or has experienced it, I would love to hear from you. 

Thanks 

Yeah, I just learned I need to stay on gluten. I plan on getting back on today. I'll be tested on the 22nd. I was just looking to see if anyone else ever experienced this symptom. 

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