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Prevention.com

debbiewil

By debbiewil
in Publications & Publicity

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debbiewil Rookie
debbiewil
Posted

Lists celiac disease as one of the top 7 misdiagnosed illnesses. Word is getting out - slowly.

Open Original Shared Link

Debbie

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happygirl Collaborator
happygirl
Posted

Great article! Thanks for posting that!

plantime Contributor
plantime
Posted

"Recognize symptoms.

They can include chronic diarrhea, abdominal bloating and pain, weight loss, foul-smelling stool, seizures, edema, and a painful skin rash. "

Shame these are the only symptoms they list. I never had diarrhea (I was constipated), did not have weightloss (I gained too easily), and never had the others listed. It is a good article, just not very indepth. I expected more from Prevention.

debbiewil Rookie
debbiewil
Posted
  • Author

Yeah, I wish they had listed more of the symptoms and talked about the neurological problems some celiacs and gluten intolerant people face. But hey, it's a start. And I like the fact that they did talk about how it is so often misdiagnosed.

Debbie

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    • Alibu
      Waiting on biopsy after positive bloodwork, but also not really believing this is real

      By Alibu · Posted

      @knitty kitty I see, thank you!!  Yes, basically the biopsy just said "normal villous architecture."  It didn't give any kind of Marsh score at all, but it sounds like it would be a 0 based on the biopsy report, which is why he's saying it's Latent or Potential celiac.  It's just weird because I know in Europe if I was a child, they wouldn't even do the biopsy, so how does this system make any sense?? I have had an A1c and it's normal.  I do know that I have insulin resistance, however, so there's that. Wow, thank you for all this information!!!  I have a lot of reading to do!
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      Diagnosis confusion

      By trents · Posted

      That is one issue but the bigger issue may be the human tendency to rationalize it all away without an official diagnosis such that you keep falling off the gluten free bandwagon. But there is the option of going for the gluten challenge in a more robust way and getting retested.
    • Scott Adams
      foods

      By Scott Adams · Posted

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      Oh yes, I figured 50g of bread would contain way less than that in gluten. I just meant to say that I tried to make my 2 daily slices count instead of 2 tiny Wonder bread slices haha.  Thanks for the insight trents, I appreciate someone validating that what I'm going through isn't all in my head or something! This process has been so frustrating and confusing.  I guess the only thing about not getting the "official" diagnosis is not knowing how strict to be with CC (in my early 20s trying to think about the long term effects) but I hope starting the diet will bring some relief either way. Thanks again. 
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