Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newbie Survival Kit

Guest nini

By Guest nini
in Gluten-Free Foods, Products, Shopping & Medications

Recommended Posts

Guest nini
Guest nini
Posted

After 3 years of this, I have put together a large zip file of lists and articles that are very helpful to the newly diagnosed celiac.

If you are interested in having a copyof this survival kit e-mailed to you

PLEASE E-MAIL ME AT nisla@comcast.net

in the subject line put "Request Newbie Survival Kit"

this is a large file and it's just helpful stuff I have compiled over the past three years. It includes the Delphi list and several Restaurant menus, School supplies, Candy, articles, information that you can print out and share with others to help explain this diet and the reason for it.

If you have a cable modem it will be a fairly quick download, but if you are on dial up, be prepared to let it sit for a while!

disclaimer:

I did not come up with this info all by myself, I've compiled it with the help of other helpful celiacs over the past two years, and it's all been helpful to me. Also, this file is just a guideline, as always you will need to make your own decision on what works for you and what doesn't.

also, it's a zip file so you will need a program like pk unzip to open it... or any program that opens up archived files.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jaten Enthusiast
jaten
Posted

Request has been sent. Golly so many great folks here.

I can see the headlines now.....

Scientists Discover New Symptom of celiac disease: Extreme Kindness & Generosity!

minibabe Contributor
minibabe
Posted
I can see the headlines now.....

Scientists Discover New Symptom of celiac disease: Extreme Kindness & Generosity!

That is all I have recieved.....except from doctors <_<

I love everyone here! It is such an amazing website :D

Amanda NY

Guest nini
Guest nini
Posted
Request has been sent. Golly so many great folks here.

I can see the headlines now.....

Scientists Discover New Symptom of celiac disease: Extreme Kindness & Generosity!

it's my pleasure to help... I relied on the kindess and generosity of others when I was first dx'ed too...

Guest nini
Guest nini
Posted

bump... just in case any newbies haven't seen this...

ebrbetty Rising Star
ebrbetty
Posted

nini...how kind of you..I wish someone offered this to me last month. your always so helpful

Lisa Mentor
Lisa
Posted

:):):) That is really cool. I sure wished that I had that in August. I know that it will be a great help to all the newly diog. Kinda pay it forward. Very cool. Thank you for your time to do this.

Lisa

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 3 months later...
Chako Apprentice
Chako
Posted

What is the Delphi list?

And would this survival kit be good for a Canadian? :)

Lister Rising Star
Lister
Posted

not a newb but still could be helpfull, i dont need the delphi lists though but anything else is kewl

Guest nini
Guest nini
Posted

Lister, I thought I already sent you this... But maybe it was just the delphi lists... I'll send it again.

What is the Delphi list?

And would this survival kit be good for a Canadian? :)

I suppose so, just e-mail me at nisla@comcast.net and in the subject put "request newbie survival kit" and I'll send it... and you can judge for yourself if it's useful for a Canadian...

Kaycee Collaborator
Kaycee
Posted

Nisla, I am a New Zealander, (have only been diagnosed since February) so not too sure how much of the kit would be useful, but would like to have it sent to me.

The gluten free forum has been a life saver and wonderful to follow, and I am getting to feel I know quite a few of you all.

Your picture is a bit scary, but hey you obviously have a heart of gold. And when I see your picture with your piece of advise it is comforting.

I must admit that when first diagnosed, I thought coeliac would be a piece of cake, and that with everybody saying to watch this and watch that, I thought they were being a bit too severe. But hey, everybody was right, and I do have to be that careful. I never would've thought I would 've been so sensitive. Most of my immediate family have cast iron stomachs, and I was so used to having quite good health, apart from the diahrea. But now I have arrived here to where any little bit of gluten manages to keep me grounded for a few days, it is quite scary.

This sight is proving to me that I am now on the right track for me, trying to eliminate all manufactured products, and start mostly from scratch. I don't need the treats, as they are not always weight friendly, and I do carry a bit of excess weight. But sometimes I tend to push the boundaries, and that is when I get unstuck, and get to know the loo intimately again, but I am determined to get past that.

I'm quite proud to say, last night was my first dining out in a restuarant for a few months, it was my 49th birthday, and I am happy to say, I survived without any reactions what-so-ever, but I did push boundaries, luckily nothing untoward happened.

Thanks again Nisla.

Daxin Explorer
Daxin
Posted

Bump. Do not need the kit. Just trying to help all those other newbies out there who may be looking for answers.

Guest nini
Guest nini
Posted

Kaycee, I got your e-mail, you should have the kit by now... thanks for your comments!

  • 4 weeks later...
Guest nini
Guest nini
Posted

Open Original Shared Link

Attention!!! I now have uploaded the Newbie kit to my website! Click on the above link, scroll down until you see the link for Newbie Survival Kit, you can then just simply download it on your own computer!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      3

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      I worried at one point on my journey whether I had MS, having many of the symptoms myself. However, my symptoms improved dramatically with high dose thiamine hydrochloride, Benfotiamine, and Thiamine TTFD. Thiamine deficiency symptoms overlap with MS symptoms, including changes on brain MRIs. Thiamine deficiency affected my eyes (light sensitivity),...
    2. trents
      - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products...
    3. Matthias
      - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing...
    4. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen...
    5. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,328
    • Most Online (within 30 mins)
      7,748
    VerafromNJ
    Newest Member
    VerafromNJ
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Unexpected gluten exposure risk from cultivated mushrooms

      By trents · Posted

      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      Unexpected gluten exposure risk from cultivated mushrooms

      By Matthias · Posted

      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.