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Trusted Brands of Gluten-Free Oats


kidprodigy

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kidprodigy Rookie

Hi everyone!  I'm a new member on the Celiac.com forums and have a gluten-free food question for you.

I've been reading a lot lately about gluten-free oats and the fact that this food is a major "grey area" for people with Celiac disease.  It looks like some brands are safe to eat and others are not due to less-than-optimal processing practices.  This is causing major headaches for me as I'm an avid oatmeal fan and refuse to give it up!

The brands of gluten-free oats I've been using are Quaker Oats Gluten-Free Quick 1-Minute and Bob's Red Mill Gluten-Free Quick Cooking Rolled Oats.  Are these brands safe for Celiacs to eat?

Which brands of gluten-free oats do you recommend?

QuakerOatsGF.png

BobsRedMillGF.webp


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GFinDC Veteran

None, since they all make sick! :)

cyclinglady Grand Master

In the old days, it was advised to avoid oats for at least six months.  That is because some celiacs react to them (causing small intestine damage).  Is that you?  Who knows?  The only way to know for sure is to have a repeat biopsy three months after consuming oats.  Some countries do not advise oats at all.

https://www.coeliac.org.au/uploads/65701/ufiles/Position_Statements/CAPSOats.pdf

So, take it from two old timers, skip the oats for a couple of months until you are well.   There is a reason why so many celiacs can not heal.  Seriously about 2/3 never heal.   Mostly because they still are getting gluten into their diet (restaurants and processed foods) and yes, maybe even oats.  

It is hard to be patient.  Use another porridge substitute.  We eat rice porridge made in the instant pot.  Or consider other grains/seeds like buckwheat, if you are craving porridge.  

 

RMJ Mentor

After several years gluten and oat free and antibodies in the normal ranges I asked my gastroenterologist if I could eat oats.  She had me eat them for 6 months and then retested my antibody levels.  No effect!  I can eat oats! I use Gluten Free Harvest oats.  

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    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
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