Help With Symptoms Or Lack Of

[Cin]

Hello,

In the past 6 months, my mom, my brother and his daughter have all been diagnosed with celiacs disease. My mom was 67 when she was diagnosed and my brother is 36. I am 41. I am to undergo testing next week. My mom never had symptoms until about one year after an "adhesion" surgery. Just one a whim they did the test for celiacs because her granddaughter had it. My brother did have vomiting/gas especially after Pizza. I do not feel I have any symptoms but as a rule do not eat grains often i.e. occassional bread/pasta/muffins/sweets. Now, I have 4 children. My 3rd child has UTI's (urinary tract infections) she has seen a urologist for that but she is almost 9 and she still has bowel accidents but not usually diarrhea just what I would call "pasty" for the lack of a better word. We have tried mineral oil, bowel regimens etc. but it seems to be an ongoing issue. She does not complain of abdominal pain or bloating. Has anyone ever encountered incontinence of stool in an older child like this. If I am positive I plan to have all my children worked up....should I do it anyway even if they dont have symptoms as there seems to be a genetic predispostion? Thanks Cindy

[hez]

Hi Cindy welcome to the board. My children are youger so I have not encountered the same problems. We did have our kids tested once I found out. I always have the attitude that it does not hurt (that much) to have a blood test. Plus it can give you peace of mind. I think it is great that you and your extended family are taking this seriously and getting tested. There are many of us with families that are not getting tested even though they should.

Hez

[elfkin]

My six year old had years of UTI's and even surgery with her bladder/kidney problems. I have no idea if it is gluten related or not. She just went gluten free about 8 weeks ago. My 2 yr. old son is celiac and has been gluten-free for a year and a half. We have just started putting together the problems in other family members. My (6 yr. old) daughter hasn't had a UTI since going gluten-free, but that could or could not be related. Her joint pain, knee pain, etc. has disappeard, as have a few other symptoms. She also hasn't had an "accident" since going gluten-free - something she had a lot of before. Sorry, I can't say if it is related or not, but it is interesting. . .

[Cin]

My six year old had years of UTI's and even surgery with her bladder/kidney problems. I have no idea if it is gluten related or not. She just went gluten free about 8 weeks ago. My 2 yr. old son is celiac and has been gluten-free for a year and a half. We have just started putting together the problems in other family members. My (6 yr. old) daughter hasn't had a UTI since going gluten-free, but that could or could not be related. Her joint pain, knee pain, etc. has disappeard, as have a few other symptoms. She also hasn't had an "accident" since going gluten-free - something she had a lot of before. Sorry, I can't say if it is related or not, but it is interesting. . .

Thanks for your input....your right it is interesting. I had heard from another source((I don't know how reputable) that UTI's and celiacs disease could be related but have not been able to verify yet......anyone have any ideas????? I myself have had too numerous to mention UTI's since I was about 5. I will keep you posted once I get my results for celiacs next week. Cindy