Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gerd/heartburn

Guest cassidy

By Guest cassidy
in Related Issues & Disorders

Recommended Posts

Guest cassidy
Guest cassidy
Posted

I have had reflux my entire life. I had surgery for it when I was 11 and I was fine until last year. My first surgery has come undone and I'm considering having a second one.

I know gerd and celiac can be related. I have only been gluten-free for about 2 months. I feel much better, but my gerd is not going away. I realize it takes a while to heal so I'm wondering if my gerd will go away over time. If anyone had gerd before being gluten-free and it went away when they went on the diet, how long did it take for the heartburn to get better? Was it your last symptom to go away, or did it stop as soon as your other symptoms?

If I don't have the surgery by March 15th, then it will be the end of August before I can do it. We have weddings, family vacations and work trips scheduled until then. This wouldn't be a problem except we want to start trying to get pregnant. I'm taking too much medication now, and unless this changes because of the surgery or the gerd going away, we can't try.

I really feel a lot of pressure to get this taken care of now, but I don't want to rush into anything.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest nini
Guest nini
Posted

I can't remember specifics, but I think it went away primarily by the third month... but I still had intermittent problems with it depending on what I ate. There may be something else in your diet that is currently aggravating the reflux. Like dairy? or citrus? You may want to look into what you are eating and see if there is a pattern...

Also, if you had it for a really long time it's not going to go away overnight. Your body is amazing in it's ablility to heal itself, but you have to give it time and treat it right!

I don't know what your typical diet is like, but if you are not stickiing to a diet of naturally gluten free foods, and eating a lot of the gluten-free substitute products, those may be aggravating your condition as well, processed foods are harder to digest. Also raw vegetables are harder to digest, Just trying to think of ideas here... trying to remember what aggravates my reflux and sets it off again...

covsooze Enthusiast
covsooze
Posted
I can't remember specifics, but I think it went away primarily by the third month... but I still had intermittent problems with it depending on what I ate. There may be something else in your diet that is currently aggravating the reflux. Like dairy? or citrus? You may want to look into what you are eating and see if there is a pattern...

Also, if you had it for a really long time it's not going to go away overnight. Your body is amazing in it's ablility to heal itself, but you have to give it time and treat it right!

I don't know what your typical diet is like, but if you are not stickiing to a diet of naturally gluten free foods, and eating a lot of the gluten-free substitute products, those may be aggravating your condition as well, processed foods are harder to digest. Also raw vegetables are harder to digest, Just trying to think of ideas here... trying to remember what aggravates my reflux and sets it off again...

I'm only in my second month of being gluten-free, but have noticed a significant improvement with the GERD. Strangely, I had no problems at all with it in the first couple of weeks, and then it came back. I think my body was thinking - hooray, no more gluten! and then figured, yeah, but there's still all these other foods to contend with, so now I'm figuring out what they are. So far for me: dairy, tomatoes, rice, tea, fatty foods and spicey foods. I think there's bound to be more before it gets better. I agree with Nini about the naturally gluten-free foods - my GERD is definitely worse when I eat gluten-free processed stuff.

HTH

Susie

tiffjake Enthusiast
tiffjake
Posted

Mine went away almost right away. I don't know if that helps you, but maybe hearing different things from different people will give you some insight. I only have it now when I eat gluten. When I do get GERD I kinda throw-up in my mouth, so it was pretty bad. But it has almost completely (sp?) gone away for me.

Guest BERNESES
Guest BERNESES
Posted

I've been gluten-free for a year and I still have to take Nexium for my GERD. I was diagnosed with it when I was 18 so I had it for about 20 years before going gluten-free. When they did my biopsy for Celiac's, they also biopsied my esophagus and it was pretty damaged (pre-Barrett's esophagus which is like pre-pre-cancerous) so they will be watching mine carefully. I'm choosing to stay on the Nexium (I had previously been on prescription Zantac) because of the extent of the damage. Esophagus cancer is NOT something I want (obviously) because it has a very, very poor prognosis.

But you may heal. You had surgery when you were 11? Just wondering how old you are now if you don't mind answering. maybe I just had it too long.

Guest cassidy
Guest cassidy
Posted

I'm 28 now. If my gerd gets to the point where I'm taking my aciphex once a day, then that is pregnancy class b, and you are technically allowed to take it. I'm taking the medicine twice a day now. I've tried cutting back and it does't go well.

Guest BERNESES
Guest BERNESES
Posted

Yeah- I will continue to take it too even though we're trying to conceive. I've never heard of any specific risks associated with it (although I know there are risks inherent in anything you put in your body!). I just figure I'm better off taking something that prevents it and heals my esophagus as it's so damaged.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest cassidy
Guest cassidy
Posted

Berneses - Nexium is pregnancy class b, so you can take it. It is recommended that you do not breast feed when you are on any PPIs. My concern is the twice a day dose I'm on now, since the maximum daily dose is once a day. I agree that I hate taking medicine, but sometimes it is necessary, I just think twice the maximum dose is a risk I'm not willing to take for long.

Guest BERNESES
Guest BERNESES
Posted

I don't blame you at all! i've heard that pregnancy exacerbates reflux too- not looking forward to that. Have you decided what you're going to do? I wish you the best with whatever you decide. Beverly

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      3

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      I worried at one point on my journey whether I had MS, having many of the symptoms myself. However, my symptoms improved dramatically with high dose thiamine hydrochloride, Benfotiamine, and Thiamine TTFD. Thiamine deficiency symptoms overlap with MS symptoms, including changes on brain MRIs. Thiamine deficiency affected my eyes (light sensitivity),...
    2. trents
      - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products...
    3. Matthias
      - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing...
    4. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen...
    5. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748
    Jane02
    Newest Member
    Jane02
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Unexpected gluten exposure risk from cultivated mushrooms

      By trents · Posted

      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      Unexpected gluten exposure risk from cultivated mushrooms

      By Matthias · Posted

      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.