Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Abdominal Aches And Pains

Moongirl

By Moongirl
in Coping with Celiac Disease

Recommended Posts

Moongirl Community Regular
Moongirl
Posted

did anyone get all sorts of aches and pains in and around the belly area the first few months of being gluten-free?? I feel like every other day i have a different type of pain or ache AND i feel like whatever i eat i get a burning sensation in my stomach!....at first they put my through CT scans, upper GI xrays, and blood tests, and found nothing, no acid reflux either! But could i have an acid problem in my stomach even if i dont have a reflux problem, my doc suggested prilosec, but i thought why do i need it if i dont have reflux? But now im thinking that i could just have a lot of acid in my stomach... :blink:

uff i feel like going gluten-free is like a detox program! (not that i have been to one, but i can only imagine)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


penguin Community Regular
penguin
Posted

Welcome to my world :rolleyes:

I have this gluten-free or not, though it's gotten a bit better. I ran the full gamut of testing and they couldn't find anything. Prilosec, zantac, nexium did nothing for me. The only thing that has helped is Bentyl, and that's an antispasmodic. If it gets really bad, I take phenergan. :unsure:

Moongirl Community Regular
Moongirl
Posted
  • Author
Welcome to my world :rolleyes:

I have this gluten-free or not, though it's gotten a bit better. I ran the full gamut of testing and they couldn't find anything. Prilosec, zantac, nexium did nothing for me. The only thing that has helped is Bentyl, and that's an antispasmodic. If it gets really bad, I take phenergan. :unsure:

did u also get a burning sensation in ur stomach after u ate? they gave me levsin, but the side effects were way worse then the actual cramps, so i dealt without it :blink:

Lollie Enthusiast
Lollie
Posted

Hey! I'm in the same boat! :blink: I have taken prilosec/neium for 10 years......Never really helped. ;)

I take a muscle relaxer, flexaril, if it gets too bad. I have tried the Levisnex-but it didn't really help. So sense I get back spasms from time to time I always have some muscle relaxers on hand. I would strongly advise you to stay clear of acid pump inhibitors,i.e. prilosec. When I had my upper endoscope they found small growths in my stomach. :huh: My GI said they were a side effect from years of prilosec. Needless to say, I no longer take those meds. I try not to eat pass 7pm and I try to keep it light. I have most of my problems at night. I sleep sitting up as well.

There is a link I found on this site talking about the possible correlation between acid reducers and food allergies......

If you want it let me know I send it to you!

Hope this helps.

Lollie

penguin Community Regular
penguin
Posted
did u also get a burning sensation in ur stomach after u ate? they gave me levsin, but the side effects were way worse then the actual cramps, so i dealt without it :blink:

I do get that, and since being gluten-free, it seems to be my first indicator that I've been glutened, because within a 1/2 hour I've got D.

I used levsin also, but like the bentyl much better. It doesn't give me a problem. I also take tylenol when it happens.

Moongirl Community Regular
Moongirl
Posted
  • Author
There is a link I found on this site talking about the possible correlation between acid reducers and food allergies......

If you want it let me know I send it to you!

Hope this helps.

Lollie

sure that would be great,

thanks

Lollie Enthusiast
Lollie
Posted
sure that would be great,

thanks

Here you go! :D

I found it pretty interesting- and irritating...... ;)

Lollie

https://www.celiac.com/st_prod.html?p_prodi...-32106507872.53

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Moongirl Community Regular
Moongirl
Posted
  • Author
Here you go! :D

I found it pretty interesting- and irritating...... ;)

Lollie

https://www.celiac.com/st_prod.html?p_prodi...-32106507872.53

Uff that does make me mad too, but good looking out....if i dont have acid reflux, then why would they put me on it?! i dont need any more food limitations!

Lollie Enthusiast
Lollie
Posted

i know! My doc actually told me about the growths in my stomach, said I didn't have acid reflux, but told me to continue taking the meds! <_<

i mean really, does that make any sense? Plus, I did more research into those acid inhibitors, and there are studies that say that extended use then stopping the drug, causes the pumps to over produce for a while, because they are trying to catch back up! ;) Good Grief! Anyway- I forgot to mention, you can use gaviscon to help with the acid- it just neutralizes the acid-doesn't stop you from producing. I have been off the prilosec/nexsium for 2months- and feeling better everyday and better then I had while on all those drugs!

Good Luck!

Lollie

elye Community Regular
elye
Posted

Don't forget, some docs get a cut of the total amount of these big pharmaceutical products they prescribe. I read and hear all kinds of horror stories of patients being prescribed expensive drugs for very nebulous reasons...

Lollie Enthusiast
Lollie
Posted

I know! That's what makes me so mad! :angry:

I was sick all those years, still am a little, and they never really tried to figure out what was wrong-just take these meds.....

I truly believe that we have to take over all responsibility for our health. I never trust docs and I try to research everything on my own. I ususally know what the doc will say, or what he should say. I've always had trouble with meds, I try to figure out more natural ways to control my illnesses, of course, there are definantly times when you must take meds.

Lollie

angielackner Contributor
angielackner
Posted

so um, what are "novel" foods...sorry if thats a dumb question. but i am on zantac...fairly high doses right now for the horrendous reflux i am having with my pregnancy...and i have been wondering if i am developing new food allergies right now as i have been getting a slightly ticklish throat the last couple of days...but it could also be the acid doing that i'm sure...but it feels like a lesser degree of how i feel when i have gluten, and i have not had any gluten lately, and this lasts all day...so i'm wondering whats up...i'll be asking my doc when i go in again next week...but now i'm wondering if the zantac is making all this happen in correlation with some other food.

angie

Moongirl Community Regular
Moongirl
Posted
  • Author
I know! That's what makes me so mad! :angry:

I was sick all those years, still am a little, and they never really tried to figure out what was wrong-just take these meds.....

I truly believe that we have to take over all responsibility for our health. I never trust docs and I try to research everything on my own. I ususally know what the doc will say, or what he should say. I've always had trouble with meds, I try to figure out more natural ways to control my illnesses, of course, there are definantly times when you must take meds.

Lollie

Unfortunately they are putting back on prilosec, b/c for some reason after my dx i started producing a lot of acid, and my stomach burns like he!! So i dont see much of another choice right now ;)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Bob red mill gluten free oats

      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this...
    2. knitty kitty
      - knitty kitty replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

      @SamAlvi, It's common with anemia to have a lower tTg IgA antibodies than DGP IgG ones, but your high DGP IgG scores still point to Celiac disease. Since a gluten challenge would pose further health damage, you may want to ask for a DNA test to see if you have any of the commonly known genes for Celiac disease. Though having the genes for Celiac...
    3. trents
      - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

      Currently, there are no tests for NCGS. Celiac disease must first be ruled out and we do have testing for celiac disease. There are two primary test modalities for diagnosing celiac disease. One involves checking for antibodies in the blood. For the person with celiac disease, when gluten is ingested, it produces an autoimmune response in the lining...
    4. SamAlvi
      - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
    5. Jsingh
      - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

      Hi, My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,868
    • Most Online (within 30 mins)
      7,748
    LMGarrison
    Newest Member
    LMGarrison
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      Bob red mill gluten free oats

      By Scott Adams · Posted

      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
      High TTG-IgG and Normal TTG-IgA

      By knitty kitty · Posted

      @SamAlvi, It's common with anemia to have a lower tTg IgA antibodies than DGP IgG ones, but your high DGP IgG scores still point to Celiac disease.   Since a gluten challenge would pose further health damage, you may want to ask for a DNA test to see if you have any of the commonly known genes for Celiac disease.  Though having the genes for Celiac is not diagnostic in and of itself, taken with the antibody tests, the anemia and your reaction to gluten, it may be a confirmation you have Celiac disease.   Do discuss Gastrointestinal Beriberi with your doctors.  In Celiac disease, Gastrointestinal Beriberi is frequently overlooked by doctors.  The digestive system can be affected by localized Thiamine deficiency which causes symptoms consistent with yours.  Correction of nutritional deficiencies quickly is beneficial.  Benfotiamine, a form of thiamine, helps improve intestinal health.  All eight B vitamins, including Thiamine (Benfotiamine), should be supplemented because they all work together.   The B vitamins are needed in addition to iron to correct anemia.   Hope this helps!  Keep us posted on your progress!
    • trents
      High TTG-IgG and Normal TTG-IgA

      By trents · Posted

      Currently, there are no tests for NCGS. Celiac disease must first be ruled out and we do have testing for celiac disease. There are two primary test modalities for diagnosing celiac disease. One involves checking for antibodies in the blood. For the person with celiac disease, when gluten is ingested, it produces an autoimmune response in the lining of the small bowel which generates specific kinds of antibodies. Some people are IGA deficient and such that the IGA antibody tests done for celiac disease will have skewed results and cannot be trusted. In that case, there are IGG tests that can be ordered though, they aren't quite as specific for celiac disease as the IGA tests. But the possibility of IGA deficiency is why a "total IGA" test should always be ordered along with the TTG-IGA. The other modality is an endoscopy (scoping of the upper GI track) with a biopsy of the small bowel lining. The aforementioned autoimmune response produces inflammation in the small bowel lining which, over time, damages the structure of the lining. The biopsy is sent to a lab and microscopically analyzed for signs of this damage. If the damage is severe enough, it can often be spotted during the scoping itself. The endoscopy/biopsy is used as confirmation when the antibody results are positive, since there is a small chance that elevated antibody test scores can be caused by things other than celiac disease, particularly when the antibody test numbers are not particularly high. If the antibody test numbers are 10x normal or higher, physicians will sometimes declare an official diagnosis of celiac disease without an endoscopy/biopsy, particularly in the U.K. Some practitioners use stool tests to detect celiac disease but this modality is not widely recognized in the medical community as valid. Both celiac testing modalities outlined above require that you have been consuming generous amounts of gluten for weeks/months ahead of time. Many people make the mistake of experimenting with the gluten free diet or even reducing their gluten intake prior to testing. By doing so, they invalidate the testing because antibodies stop being produced, disappear from the blood and the lining of the small bowel begins to heal. So, then they are stuck in no man's land, wondering if they have celiac disease or NCGS. To resume gluten consumption, i.e., to undertake a "gluten challenge" is out of the question because their reaction to gluten is so strong that it would endanger their health. The lining of the small bowel is the place where all of the nutrition in the food we consume is absorbed. This lining is made up of billions of microscopically tiny fingerlike projections that create a tremendous nutrient absorption surface area. The inflammation caused by celiac disease wears down these fingers and greatly reduces the surface area needed for nutrient absorption. Thus, people with celiac disease often develop iron deficiency anemia and a host of other vitamin and mineral deficiencies. It is likely that many more people who have issues with gluten suffer from NCGS than from celiac disease. We actually know much more about the mechanism of celiac disease than we do about NCGS but some experts believe NCGS can transition into celiac disease.
    • SamAlvi
      High TTG-IgG and Normal TTG-IgA

      By SamAlvi · Posted

      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
    • Jsingh
      Son's legs shaking

      By Jsingh · Posted

      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.