Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

No Wonder I'm Tired...


penguin

Recommended Posts

penguin Community Regular

Don't get me wrong, I love my dr, she uses an overall kind of approach and doesn't shoo you away with precriptions. She also sends a summary of your bloodwork to you, which has the basics in laymans terms.

I didn't know my platelets were high and my RBC's were small until I mentioned I had that in the past. I wasn't anemic this time, though I was pretty borderline.

I lost my summary that she sent, so I asked for a copy of the lab report. First, I was surprised that my cholesterol was higher than I thought, though not dangerous or anything. My triglycerides were really high, though! 257! I'm only 22! And not very overweight!

I did read, however, that high triglycerides and low hdl were found in children with untreated celiac, so maybe those will go down. Hopefully the same in adults. Eating flax now, just in case. Bring on the Omega-3's!!!!

What surprised me is that my SGPT (ALT) was low, that's a vitamin B-6 deficiency. No wonder I'm tired!

Just once, I'd like all of my bloodwork to be in the "within range" column <_<

Glad I got the report! Although, my flipping out over blood work is the exact reason the dr says not to get too hung up on the blood stuff. It's making me see why she said it was celiac with just a high IgG, though...the other bloodwork supports it, too.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



minibabe Contributor

now that is so annoying <_< . All we are searching for is the truth is that to much to ask? Why cant they jsut give you everything. It would be wonderful to have a set of your own charts. I will have to get a copy of mine to see, it would be interesting :blink:

Amanda NY

debmidge Rising Star

I've had a lot of experience with Doctors as my husband visited a lot of drs in the past 27 years and was misdiagnosed for all of them; but when we get blood work or any test I always get a copy of the reports (even for my bloodwork and tests). I keep a file for each of us for each year, example Deb 2001, 2002, 203, 2004,, etc. And I make a Health Resume for each of us which is a yearly synopsis of what conditions we do have, what medicines we take or took and the dosage, and when we go to a new doctor we include this Health Resume in his/her file on us.

For example, my husband was diagnosed with IBS so I'll show that on the Health Resume and the year he was first diagnosed, then in 2003 I'll show how he was diagnosed with Celiac, in 1999 I'll show that he had hernia surgery, etc. I try to keep it to one page just like a work resume.

In this way, no doctor can say that they didn't know our history.

I'll also include a copy of current blood work results.

Sometimes I get strange looks from the new doctors but hey, it's my health and I learned I have to watch out.

Guest Robbin

Deb, That is such a great idea. I have had drs. who are reluctant to give me the copies of my bloodwork and I wonder why? I paid for it! I miss my old family dr. in OH who always left the chart open so you could read it and gave you copies of everything. Now it's like top-secret stuff they write or something. Ticks me off. They are so afraid we might learn how to care for ourselves and understand the reports and maybe, just maybe might not need them so much. Cuts into the profits if we actually know about our own bodies and how they work.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,991
    • Most Online (within 30 mins)
      7,748

    ZENken
    Newest Member
    ZENken
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Have faith, you will survive. I get mine from Pipingrock.com.  500 capsules of 10,000 IU for $22.  That is almost two years worth for me.  250 caps 5000 IU for $6.69 if you only take 5,000 a day.  It's like half the price of Walmart.
    • Wheatwacked
      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.