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Going gluten-free

chrissy

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chrissy Collaborator
chrissy
Posted

i finally took the plunge and have gone gluten free with my kids. today is day 4 for me. i don't know about my meds yet, though. i still have to call and check on them. i would love it if going gluten-free could make enough of a difference that i could quit taking alot of my meds. i wish i could say that i was miraculously feeling better already, but time will tell.

christine

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Rusla Enthusiast
Rusla
Posted

I am sure you are on the right step. Are you the one with the stubborn son? If so, has he come around yet?

Becky6 Enthusiast
Becky6
Posted

I started to notice little things after a few days. Like after 2 days I realized that my stomach was a lot quieter than usual. And within 2 weeks I could not believe how badly my stomach had hurt everyday! My neuropathy took 2-3 weeks to subside a bit as well as for the joint pain. I hope this is the answer to you feeling better!!

penguin Community Regular
penguin
Posted

It's a lot like a toothache, you don't realize how much it hurts until it's gone...

...and then you do something dumb and it reminds you that, dangit that hurt! :rolleyes:

celiacsmom Rookie
celiacsmom
Posted

Good for you! You can do it & I'm sure you'll be feeling great soon!

chrissy Collaborator
chrissy
Posted
  • Author

yep, i'm the one with the stubborn son. once i get my family in the celiac study, he is willing to get tested since it won't be costing him anything.

christine

heli Newbie
heli
Posted

Most meds are gluten free these days, however many are bound with cornstarch and corn is in the same grass family as wheat, barley, rye. I personally have a huge reaction to all corn products. But to encourage you, over about 14 months I was able to eliminate all 12 daily medications.

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2Boys4Me Enthusiast
2Boys4Me
Posted
yep, i'm the one with the stubborn son. once i get my family in the celiac study, he is willing to get tested since it won't be costing him anything.

christine

What study? Can you give us more info?

chrissy Collaborator
chrissy
Posted
  • Author

it is a study on celiac at the university of california, irvine. it is open to families with 2 or more members diagnosed with celiac or DH by either biopsy, positive Ttg, EMA, or positive skin biopsy. i found a link to the study from a post on this board----but i can't remember who posted it, or what the thread was about. the woman i have been in contact with is maryam mousavi. they will do antibody testing and gene testing on our immediate family, and, if i understood correctly, they will test other family members that show symptoms. we have 4 older children that have not been tested yet, so it will be great to be able to not have to "convince" them to go pay to test for a disease they may or may not have. if you live in utah or california, they will have someone come to your home to draw blood. we live in idaho, so they will send us a kit to take to our hospital or dr's office to have blood drawn. kevin and i both come from larger families, and our children are "your's, mine, and our's" so i will be interested to see which of us (or both) carry the gene for celiac. our 3 children with celiac are children we have had together. another interesting thing that might come in to play-------when i was looking at some geneology, i discovered that quite a few generations back, (in germany) our family lines cross. weird, huh?----especially since he was born in idaho and i was born in louisiana---what are the chances?!

christine

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  • Posts

    • Anne G
      celiac disease and braces

      By Anne G · Posted

      Hello, My 17 yr old daughter was diagnosed with celiac disease 2 yrs ago. She does not have gum disease and no history of cavities. Her dentist is recommending braces for her lower teeth but I read it may worsen gum recession or possibly increase cavity risk which I know are already issues for patients with celiac. Has anyone here had braces and did it cause any problems or issues with gum recession?  Her dentist seemed oblivious that celiac patients are at higher risk of gum disease /cavities. Her bottom teeth are crooked but are pretty hidden even when she smiles. Thank you!!
    • trents
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By trents · Posted

      This is a common experience across the board with various brands of gluten-free bread products. Prices go up, size goes down. Removal of the egg component may be for the purpose of cost-cutting related to bird flu supply shortages or it may be catering to those with egg allergy/sensitivity, fairly common in the celiac community.
    • HAUS
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By HAUS · Posted

      Living with Coeliac Disease since birth, Bread has always been an issue, never too nice, small slices and always overpriced, But Sainsbury's Free From White Sliced Bread seemed to me to be an exception with it's large uniform 12 x 12cm slices that had the bounce, texture and taste of white bread even after toasting with no issue that it was also Milk Free. Unfortunately Sainsbury's have changed the recipe and have made it 'Egg Free' too and it has lost everything that made the original loaf so unique. Now the loaf is unevenly risen with 8 x 8cm slices at best, having lost it's bounce with the texture dense and cake like after toasting resembling nothing like White Bread anymore. Unsure as to why they have had to make it 'Egg Free' as the price is the same at £1.90 a loaf. Anyone else experiencing the same issue with it? - also any recommendations for White Bread that isn't prescription? / Tesco's / Asda's are ok but Sainsbury's was superior.
    • Mari
      My only proof

      By Mari · Posted

      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
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      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
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